Last night was the first night in a week (or maybe 2 weeks?) that I didn't wake up between 4-6am.

I finally feel mediocrely rested ("rested" for me, someone with a sleep disorder),

& my first thought upon waking up was "Oh I have enough energy, I should work today."

1/10
Then I remembered the last few days, the thread I wrote.

And I think if I go back to work mode right now, I'm not going to sustain myself for the rest of the week.

The sooner I start, the sooner I'm going to crash.

So I've decided to maybe not immediately do that.

2/10
I think autistic people often play the role of "useful" to create relationships, to obtain any ounce of support or understanding.

It's natural for us to want to go back to being as useful as possible because that's the only way the world ever wants to interact with us.

3/10
Our world doesn't support "needy" autistic people, burnt out autistic people, non-special-skills autistic people.

People only care if you show your usefulness. We're so used to operating this way, we don't even think twice about it.

4/10
It's the default for most disabled people, but I think for autistic people, usefulness means connections with others (usually non-autistic people).

Usefulness means we won't be isolated. It means having friends, having external approval from parents, bosses, mentors.

5/10
I think there is a fear that if we cease being useful, no one will love us or support us or even just care about us.

We have constantly changed ourselves so that other people don't react negatively, don't find us rude or mean or argumentative or know-it-alls or uptight.

6/10
To cease being useful is to face that fear and know that some of our relationships may crumble because of it. That people might see us as selfish, that they won't care when we don't have something to offer anymore. When we don't play therapist or go the extra mile at work.

7/10
Autistic people:

I will still care about your well-being even if you can't work.
I will still care about you even if you can't do what you have defined your identity around.
I will still care about you even if you don't feel useful.

8/10
I will still care about you even if you have nothing to contribute.
I will still care about you even if you can't do advocacy or can't "stand up for yourself" like so many people may tell you to do.

I will still care.
I hope that others will still care too.

9/10
You are not useless.
Human beings who have limitations are not useless.
Human beings who cannot "produce" or cannot "work" are not useless.

Everyone deserves to be supported and cared for.
Even you.

10/10

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More from @AutSciPerson

27 Sep
Autistic Adults May Be Erroneously Perceived as Deceptive & Lacking Credibility

"The findings revealed that autistic individuals were rated higher on perceived deception and lower on perceived competence & character compared to neurotypical individuals."

link.springer.com/article/10.100…
Well, this explains my entire graduate school experience.

One of the saddest results from that paper?

Even after disclosing, neurotypical people didn't find them deceptive anymore but still rated them much lower in competence.
Also one of the behaviors that NTs used for determining deception is smiling/laughing,

Which is terrifying because that's exactly what I'm do when I'm in a very tense situation.
Read 4 tweets
26 Sep
Let me explain why I have been emotionally frustrated when I see non-autistic people replying to my threads about burnout with

"Doesn't everyone experience this though?"

Because we aren't allowed our own space to talk about our own unique experiences as autistics.

1/8
Because we don't have the language to even express how different it is to grow up being expected to be a different human being than you are 24/7 since you were 5 years old.

Because we are never allowed respite from educating and explaining to neurotypical minds.

2/8
Because when you say "Doesn't everyone?" you are negating the unique aspects of growing up as an autistic person in a society hostile to autistic people.

If you are asking that question, you clearly don't have enough information about the autistic experience to answer it.

3/8
Read 9 tweets
26 Sep
This scene in How to Train Your Dragon is just, everything.

Hiccup: You know, we have a surplus of dragon-fighting vikings, but do we have enough bread-making vikings, or home-repair vikings?
*Dad gives him axe*
I don’t want to fight dragons.

Stoic: Oh come on, yes you do.

1/4
Hiccup: Rephrase. Dad, I can’t kill dragons.

Stoic: But you will kill dragons!

Hiccup: No I’m really very extra sure that I won’t. Can you not hear me?

2/4
Stoic: This is serious, son. When you carry this axe, you carry all of us with you, which means you walk like us, you talk like us, and you think like us.
No more of *gestures to him* this.

Hiccup: You just gestured to all of me.

Stoic: Deal?

3/4
Read 4 tweets
25 Sep
Autistic people: *Makes a statement*
Neurotypical people - Question very specific and pedantic things about the statement and expect a response.

Neurotypical people: *Makes a vague statement* - Does not expect any questions, pushback, or responses that could derail it.
I'm just thinking about the absurd hoops that abled neurotypical people jump through to justify eugenics of autistic people.

The ridiculous questions we get asked, about our value, humanity, worthiness,

and the lack of benefit of the doubt we receive in return.
I mean hell, it doesn't matter that I wrote an article that encompasses a decent amount actual research showing that ABA is ineffective and even harmful,

they just refuse to read it, decide to lie, to stay in denial.

This is what exhausts me the most.
autisticscienceperson.com/why-aba-therap…
Read 15 tweets
25 Sep
I got up an hour ago and ate breakfast.

It's 5:45pm

I've literally either been resting/sleeping on the couch or the bed since about 9pm last night.

This is what abled neurotypical people don't see. They just see me being "functioning" during the weekday.
And here's the reason most autistic people don't share these kinds of experiences -

Because it makes neurotypical people doubt whether we can "be productive" or do enough.

It can risk future employment.

It can risk how our current colleagues/co-workers see us or bosses.
Showing one bit of weakness as an autistic person means putting a target on your back and basically giving them a reason to either exploit you or fire you.

So we constantly hide the stuff we go through because it's never going to help us.
Read 4 tweets
23 Sep
I think I just realized why autistic burnout is so bad.

It's because when neurotypical people reach their limits, they can't go on.

When autistic people reach their limits, they continue because they know they have to continue to be considered valuable.
1/
I was told that if I get burnt out, I won't be able to do anything, so I should rest.

What I didn't say because I was still thinking it through,
is that when I get burnt out, I go on for weeks or months more because that is expected of me and I Cannot Let People Down.
2/
And so often autistic people are constantly pushed to their limits even at 4, 5, 8 years old. Constantly.

We are so often already at a level of stress from NT expectations and our environment that neurotypical people don't even comprehend it.
3/
Read 20 tweets

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