Time for an update on things here!
Most importantly; il pleut, beaucoup, au dehors !πŸ˜• Notre chien ne veut pas aller au walkies!πŸ™„ Elle fait une lie-in!🀷 (Avec dΓ©jeuner en lit). Je ne va pas au shopping!πŸ˜‹. Fin.
Sums up life here!

But onto other stuff:
You've no doubt been aware in the wake off the council decision to cancel the eviction there's been meetings on meetings to try to sort something.
The safer homes lady is doing a grand job helping me, talking about what next, discussing where I'm at, etc.
....
Social services have been mostly silent! After 3 wks they finally call back to say they can only do domestic help once the place is cleaned & cleared out! πŸ™„ πŸ€” As if i can do that on my own! A calculated decision to try to get out of having to do anything? ...
Oh, but I'll have to pay? Sounds more & more like a privatised service already! They'll see if there are charities that can help? πŸ€” Social services on the cheap? (You have to ask, would we need quite so many charities if the gov actually did their job!)...
They also ask if i thought going to a day care centre would help me! πŸ€” Those who know me well enough will know my response involved sitting on my hands & biting my tongue! Day care centre isn't really my style, unless they can offer things like diving tuition, get me fresh air..
Honestly! Do they think I'll sit & play bingo all day?
& On that note: medical.
Thu i was in hospital for another mtg with rheumatology. The final one they tell me. Because now we have an answer! The problem with both my hands (incl the new development on the right that the thumb
Won't let me grip things properly or firmly w/o severe pain, like a mug, knife or pen! & Is spreading!) Is not immune related but osteoarthritis! *Sigh* yep, another to add to my laundry list, now 10, 5 of which have no cure! So, what next? Steroid injections & physio, forever!
And yes with all that alone leaving me exhausted. The pain isn't helping the fiber is exhausting. I don't even feel much pain from the back, not the painkillers, I'm just numb to it. It goes crunch, i gag, feel rough & it possess after a bit!
Is my MH suffering? In a major way!
I feel like slowly but surely, my life's, my identity is being stolen from me, bit by bit!
I feel I'm becoming a shell of who i once was.
That i no longer matter!

I won't bore you with all the other battles, there are many!
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More from @Heretoanywhere

17 Sep
Let me ask you a question.
I presume you've heard the news of sacked health workers in France. (Only 5% max of all)
Before you scream foul, just for a mo, I'd like you to do something pls, put yourself in my shoes!

Why? - I've no immune system AT ALL!

A cold, the flu could kill
Btw, how are you feeling in those shoes, knowing there's all those bacteria & viruses floating around at work, that your kids being home, that you then take & spread, or you give to them & spread?

Are you still feeling comfortable?
Now let's say you need to go to hospital for a regular check. Your consultant needs to see you to take bloods!
You know hospitals are full of sick ppl!
All that coughing, spluttering, being sick, shouting; spreads germs, yes?

I'm sure you'd expect hand washing as a minimum!
Yes?
Read 12 tweets
14 Sep
WHY?
#NHS "trusts have continued to incentivise the practice, with GPs being offered bonuses to keep in person attendances low"
Why are MANAGERS doing this?
I've given up speaking to my GP surgery!
I'm at high cancer risk!
An existing rheumatology patient
dailymail.co.uk/news/article-9…
I was told, days ago, if i couldn't get the bloods done that i needed (due to the #blood vial crisis) they'd have to cancel my apt & it would be a year till if get another!
Remember, I'm already in the system, classed as vulnerable due to being a Tx patient, this high risk!
1 yr!
The local GP surgery manager already hates me & has tried to have me removed. It's a rural practise (the only one) covering all the villages in a 10 x 5mi area!
So what if my recent round of tests haven't been forwarded & I'm not seen for another yr?
What if i were your 10yr kid?
Read 5 tweets

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