Thank you all for holding space and sharing your stories. We are not alone in the trauma that we have dealt with, the impacts are not just on our academic career - it could be emotional too. My self esteem has been low & it stays there, all of the ableism almost confirms 1/ [QT]
not having as much value, maybe I deserved it, and I could be at blame since I am the common denominator in all the abuse. It is like being who I am is not okay and that is not okay. This society is toxic to exist as a disabled person compounding onto whatever we each manage 2/
every day for our health. I am the one who will go out of my way to support others and I have. I am CEO and co-founder here, I am a founder of @JADEdisjustice, a board member with @HealthAdvocateX, a social media manager for @academicvoices, co-founder of @dismhmatters, and
Communications Student Co-Chair with @APHADisability. I love what I do as a disability advocate, I just have never loved myself. My mom rides into me like weight is my number one issue and I just feel fat shamed. I have lived my life in being harsh and critical to myself while
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unconditionally kind to others. I was raised through the first 34 years of my life with a father that would tell me that I am not good enough, criticized not finishing school fast enough, and asking when I would ever do anything in my life. He is now dead to me out of self
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preservation. I find that I am in a place where I am willing to be honest with myself and to process through my own traumas to maybe get to a place where I like myself. I am the common denominator in my traumas in the medical office, psych units, and parents because of
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the way that disability is perceived in this society. Even in DEI communities, I feel like disability is given whatever resources or energy is left after focusing on the Underrepresented communities that they are proud of. It is like #Academia wants to hide #Disabled people
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when its treatment of Disabled people can make existing conditions worse & lower our quality of life. The access fatigue of always needing to ask for accommodations leads to moments where I condone inaccessibility when I need support. We don’t talk about disability, so parents
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have never really thought of disability as something to be proud of, that exists on a spectrum and even we may still be learning what disability identity means to us. It doesn’t condone fat shaming or blaming me for not getting through higher education faster. Maybe if
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I knew all the way back in 2002 that accommodations existed for #Schizophrenia and it was a disability, I would have gotten the support I needed to not have to take a 10 year break from academia. Later in 2011, the voices resolved and I live with #BPD. The stigma that
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mental illness holds can really change everything and I think that it is critical to realize where our control is. The fact that I haven’t eaten today is in my control, after I post this I am getting lunch LOL. What isn’t in my control, your control, or anyone’s control is
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the way an ableist society has trained us all about disability. Some of us have learned what disability is through experience, others are allies that are amazing, but there is always going to be a large group of people with fixed ideas about disability to be changed or that
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are unwilling to change. The medical trauma is caused by a field that is openly ableist towards @Disabled_Docs. The inpatient trauma in psychiatric unit is caused a field that is openly ableist towards @DisabledInPsych students especially with mental illness. These fields are 13/
slowly changing with disability advocates, but our health care system is broken. Just like hurt people hurt people, broken systems break those depending on the system. I graduated from @UCSanDiego and bought the extension of @UofCAHealth Student Health Insurance, but
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during my time at @UCSanDiego the @UCSDHealth system stopped taking Medi-cal. I don’t know what happens to my insurance after January and I cannot change doctors. I want to maintain my providers, so I have to buy a plan that will cover them. I feel like new providers are
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unsafe because every trauma I have had involved a new provider that I didn’t trust. #DisabilityTwitter, we deserve better and our trauma has never been our fault. @PublicHealth should be fully accessible and culturally aware of disability, not just @APHADisability.
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I think that trauma informed communication is not thought of enough with the disability community. @DeathCab4Callie, I appreciate your candor about 12 years of traumatic experience. Being abled, there is the privilege to just get lab experience. Yet being #DisabledInStem, so 1/
many of us are survivors of trauma. @StemDisabled@DisabledAcadem@Disabled_Docs@DisabledStem and many others call out the ableism and toxicity of being a disabled researcher in STEM. I started today talking about trauma anniversaries & I want to thank you for being here for
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my first trauma anniversary. It has been a hard day emotionally and physically, but it has been refreshing to see that I am not alone. I forgot to ask in my earlier polls, so here are some bonus polls and a question:
Anonymous A4: Not really. The second the interpreter leaves, my labmate acts like I don't exist. I try to initiate communication with them as much as I can without the interpreter. They don't really show any interest or effort. My PI has been wonderful and wants
me to be comfortable with or without an interpreter. I agree, but, they don't have the same life experience as I do, so it is naturally their blind spot. It is really frustrating because networking is critical in this field. What would help us to feel welcome is
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1. PLEASE include us and interact with us. Learning ASL would be ideal (I'd be surprised if that ever happens) 2. Caption everything, not CRAPtion please. 3. For any university events/lab events such as presentations, please make sure we have advanced notice and/or make
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Thank you so much for sharing this. The impacts of ableism, classism, and even sexism from able-bodied MI/ND is something that I have experienced. It is something that is unspoken largely, but needs to be said. I am not saying "all able-bodied MI/ND" are bad, but there is 1/
a need for self-reflection of each able-bodied MI/ND individual to think of if they have ever done harm to a physically disabled MI/ND person. It may be harder because emotions can be rough to read, but apologize if you can to those you have hurt & ask how you can be a better
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ally. Allyship is not something that is limited to the non-disabled community. Each of us who live with physical and/or mental disabilities thankfully cannot have all physical and mental disabilities (Thank goodness, LOL). This means that we can each be allies to different
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I fully support #CripTime and it almost took me a full day to reply to the #DEHEMChat this week. I think that this also applies here for this topic about trauma to think of the impact intersectionality and identity has on how we experience our disabilities. I think that if I
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was not Black, a lot of the trauma that I experienced would not be my story. I may have felt more supported in #Academia. I might have a balance with more privileges rather than a crippling amount of barriers that hit me in the classroom, in the clinic, and in my life. Having
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invisible disability that are dynamic with infrequent cane use, I sometimes feel #ableism from within our disability community. With that here is a thread of all of the #DEHEMChat questions, if you haven’t answer yet feel more than free to answer during my takeover and I will
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It takes bravery to share what you did, Angelina. Thank you. I may be brave, but more than brave - I am tired of the way people are treated and how disabled people also deal with the weight of ableism in the midst of it all.
I'm going 1/
to address this question as I believe that it is important to consider the trauma of the inpatient experience. I only know my experience around inpatient psychiatric hospitalization, but if you want to share your experiences in medical
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inpatient hospitalization - this is a safe space to share and you can DM this account and I can post anonymously for you about your experience. The harm that comes to light is the harm that will one day be held accountable
So let's get into some questions for you in polls!
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Today is my first trauma anniversary of the most severe medical trauma I have dealt with in my life in a critical period of my academic journey. Really, I could be in graduate school
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right now. My applications to my 7 planned programs could have been so strong. This medical trauma happened 2 months before the deadlines to my graduate school programs. I had just gotten to the point where I was ready to fill out the applications that acceptance would have
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meant leaving my medical teams, but I was prepared to make that change. This medical trauma was the worst 2 hours of my life to a consent that really wasn’t a full consent, to have my pain dismissed, to have wheelchair support to leave denied, to have a resident speak with
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