Need to convince someone who’s vaccine hesitant? I have a story for you. Yesterday I was introduced to someone whose whole family has been infected & impacted in this outbreak. Most in her family have “recovered”, but some still in terrible places. Known names of our pandemic /1
response emailed me to introduce her to our group. This is also indicative that they don’t know how else to help those who don’t get better right way. To be clear, that’s around 37% of cases at moment who don’t “recover”. She was desperate & a mother in crisis. My heart broke /2
Her adult son, previously healthy, is having regular seizures. A new delta #longcovid extra. No one knows how to help. But worse there are no “post MIQ pathways”. Imagine that? You’ve been ushered away, but now no help when you need it most. Because you’re no longer infectious/3
GP’s have no protocols. Specialists no space & no intel. There’s no help coming. How would you feel about that? Threatened. Worried. Scared. I do what I can. That’s all I can do. Please think of Long Covid in your decisions. I am here to help, but what can I really do? /4
The answer is not enough. We need so much more. This is a multi factory virus, & needs all of us - not just govt - to do their bit. Let’s start with reducing risk. Vaccinate if you can. This, this breaks me today. This poor mum and son. 🥲 /5

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More from @Jenene

20 Sep
I want to talk about values. A 🧵

It’s hard to know what to say when it becomes evident that friends have fallen down mis or disinformation rabbit holes. I get how it happens, the algorithms are working actively to pull you into the content you engaged with. 1/
The more of it you look at, the more of it you will see in your feed. Maybe that bolsters the belief that it is true.

But almost all of them are well educated people who are capable of understanding data or at least asking for assistance in disseminating information. Yet many /2
don’t, they engage with pseudo science and take it as facts. We pulled an immunologist into our COVID support group specifically to do this task for us, as we knew so many people were getting fooled by what seemed credible. Frequency of exposure to the same old misinformation /3
Read 11 tweets
25 Aug
The only way out of this, is THROUGH IT. That’s usually the bit people wobble at, it can get bleak, tough & they give up. Persistence & resilience is the secret to any objective led success. It will require individual tenacity & belief in the shared goal. No shortcuts. All in. 1/
That doesn’t mean you have to rethink your politics. Think of it like trying to launch a project. I mean this pretty much is the ultimate reality show; The Hunger Games meets The Apprentice. It’s possible to align over a common interest in Aotearoa NZ /2
At various stages of this things will happen to question our faith in the common purpose. It all chips away at nagging thoughts everyone has from time to time. Weeding thru things & analysing what is truth is really fucking hard for everyone /3
Read 10 tweets
22 Aug
Yesterday was emotionally challenging. A number of friends were posting quite a bit of criticism on how the pandemic is being handled in NZ. As is their right to do & from their POV it's just "critical analysis". As someone who has been hugely affected by the virus 1/
at a health level, it's really hard to read. I couldn't work out why I was so upset all day, just in my belly feeling really nauseous and on the verge of tears. PTSD is a really big issue with those who have had Covid and I realised that watching people break away from the /2
"team" approach that has kept us largely safe thus far was upsetting - it felt like the beginning of the unravelling of people's cohesiveness. I worry - sometimes to the point where I can't sleep at night- about friends and whanau getting sick and dying. I've seen it 1st hand /3
Read 9 tweets

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