#mastcellawarenessday#MCAS Wish I wore make up and didn't have Pirate's Booty crumbs on my shirt but here goes an impromptu MCAS talk! Part 1
Part 2
Part 3
These freeze frames are something. Lord, I hope this helps someone. There must be a more social media savvy way to do this!
Part 5
Part 6
El fin. Don't forget to ask about frequent illness and check for selective Ig deficiency!
OMGosh, I skipped GI! H2 receptors! Bloating, Crampy pain, grassiness, nausea, IBS symptoms. There is sooo much more to say about MCAS! It affects EVERY THING.
1/
Raising a child w #hEDS#MCAS#POTS requires lots of love, reassurance and planning. Inspired by @The_Weed I will attempt to be half as eloquent and helpful as he was in the thread I just retweeted.
How do these kids get #PTSD?
Their symptoms are ignored, they are told...
2/ they need to ignore their symptom, toughen up, work through pain, not act like a baby, stay w/keep up w/ their peers, try harder, etc.
They may have fatigue, pain, discomfort, or an indescribable feeling that something is "wrong" (perhaps a subluxation) $ they need to stop.
3/ The result of this is crushing isolation. They have nowhere to turn. Language has failed them. Asking for help is a vulnerable act, and at their most vulnerable they have been struck down, made to feel weak bc they can't just "toughen up" and been shown that the only people...