Thread by @marygerdt

Excellent article #SmolderingMS
I Accept it as a Diagnosis #MultipleSclerosis
Also Dr. G wants to redefine MS as a Biologic Disease,
Currently a Radiologic Disease-MRI changes guide treatment/verifying relapse. I favor Biologic. Emphasis on Total Body Health.

https://twitter.com/gavingiovannoni/status/1466348683117699074

@GavinGiovannoni For Me, the Patient, Monitoring my Day to Day Function, Symptoms, Impairments, Cognition, Sleep, Mental State, Activity, Trends, Social. If something out of whack, MS Team could be notified. Maybe a phone call, medication tweak, come in for eval, real time.

@GavinGiovannoni in my quest to eliminate #Gadolinium from @US_FDA approved drugs, I have done reading about MRI. I never realized active MS lesions only show up relatively briefly. Yearly MRI’s are a crap shoot. Oh look, there must be a new one…

@GavinGiovannoni Don’t hate me because I’m beautiful. I believe #Gadolinium for injection is partly toxic Free Gad. I believe it is spun up when the big magnet 🧲 hits it. I believe a small amount lodges in twisted, Gnarly places in vasculature: scars in skin, muscle, bone, brain

I think a better way to Monitor #MultipleSclerosis patients is for Doctors & MS Teams-Clinicians, Nurses, Social Workers, PT, OT to have access to my body diary 📔 My list of troublesome symptoms, stresses, good days, bad days. I monitor my heart rate, and So much more @ouraring

I’m pairing with Neurologist designed @Apollo_Neuro
I’m using Apollo 7-8 times spread out day and Night. Have had noticeable improvements gradually. Also saw HRV ⬇️ with spell of illness.

Using @Luminosity to exercise and assess various aspects of cognitive function. I can tell when I am tired. Trends tell me am I doing better? Worse? Somehow fusing technologies together could give you a daily snapshot. I might be slipping and not report. May think it’s minor. Fin

@Luminosity correction: I use Lumosity 🤦‍♀️ Brain games, not Luminosity 😎
@UnrollHelper #unroll please 🙏🏼😎🎁