Peer-2-peer healthcare: are we ready for a revolution?, by @GavinGiovannoni gavingiovannoni.substack.com/p/peer-2-peer-… Excellent Dr. G @GavinGiovannoni 👍🏼
Lately has been hard to get basic medical questions answered, “Press 1 to speak with Phonemail “. My Friends online are here all the time.
@GavinGiovannoni When first diagnosed, I was a long time Nurse. Support group offered but I didn’t want to see people or travel more. I worked on the road. National MS Society too upbeat, too basic. Discovered @shiftms and a Match is made. We’re all different. I need discussion.
Maybe it’s good to expand on your work of pros and cons of various platforms, apps. Maybe assign your Students to follow groups or even lead a group. Hard to ask Doctors. #Gadolinium toxicity my latest crusade. My latest tools: @Apollo_Neuro and @ouraring traveloguefortheuniverse.blogspot.com/search?q=Apollo+
Some Patients are Strict about Following Doctor’s Plan,
Some Listen to Doctors and Then Search the WWW.
Many Patients hear “Blah, Blah, Blah.” When You tell them the bad news and what are the horrible next steps.
You might not think Horrible,
The person sitting there might.
When the Doctor is Too Cerebral or Patriarchal or Too Distant or Too Touchy, Patients should communicate their concerns, writing out concerns at home before clinic visit.
By addressing, efficiently, Patients’ concerns and giving them Reference articles to read, You connect.
When the Doctor doesn’t open up,
The Patient talks to the Neighbor and goes on a Fad Diet or funky Herbal Combination. Or goes into a chat room looking for Answers. With Strangers who become Friends, Supports Us when everyone else goes to work. Fin 😎

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More from @marygerdt

1 Nov
Need tip line. There’s a Nurse 👩‍⚕️ 👨🏽‍⚕️ 🧑‍⚕️ out there, who knows the exact scenario. Forced 2 break Usual Influenza Virus Protocols-isolation, STOP 🛑 Admissions from Hospital!
Mercy Ship & Javits Center Open
2 sites, if used, would have saved Thousands of Vulnerable Elders.
I would focus on Charge Nurses, Directors of Nursing with Families, who need jobs and would consent to such violations of containment of infection. Dedicated Staff. No mixing of air, meals or walkways. Giving Tip caller immunity would level the playing field. To AC, it’s a ⚽️
I would write a letter to The Licensing Entity and copy each owner of facilities agreeing to engage in unsafe transfers and cohorting infected patients with vulnerable elders in Facilities. The Highest Protected Class.
CC: Legal Aid (at least half NY Medicaid funded).
Read 6 tweets
29 Oct
Gadavist (gadobutrol) injection | Radiology US Always On (in) My Mind.
Next tweet will share Highlights of our Battle against #Gadolinium. Meanwhile, take a gander at what the @FDA Accepts as safe. Have You ever been asked How many MRI’S W/Gad you’ve had?
radiologysolutions.bayer.com/products/contr…
⬆️⬆️⬆️ From @Bayer website.
@Wagner_Nephro @sennasthunder @lambertdebb @Gadolinium_MRI @planetd1 et al 🙏🏼👩‍💻
Bayer should Correct “Nephrogenic Systemic Fibrosis”.
It is Systemic Fibrosis.
It is Caused by the Drug Gadolinium.
It is Iatrogenic Systemic Fibrosis.
Not just renal pts.
@US_FDA
1️⃣ I am seriously puzzled by Iatrogenic Systemic Fibrosis isn’t Listed under Adverse Reactions.
2️⃣ What happens to People who’ve had multiple lifetime doses, pregnant, pediatric patients and people with Inflammatory Conditions? I’ve never been asked these questions.
Read 5 tweets
13 Oct
@Voices4Seniors @GovKathyHochul @rontkim and Families, Friends, Advocates,
This is the essential, very sad task of analyzing what went wrong. No denying, it was catastrophic. Next step is Reform and Defining the Chain of Command for decisions, pitfalls. Mistakes were made.
It will be helpful to hear from the People in the Chain of Command. Owners of Facilities involved, Administration, Directors of Nursing, Infection Control Nurse, Attending Physicians along with Families & Representatives. Don’t forget Emergency personnel, Ambulance company reps,
Local Agency on Aging, Health Department at the Local State and Federal Level, Ombudsmen, Legal Aid, CMS. Guardian advocates. Last but Certainly the Most Telling are Stories of Elders themselves. Once Vibrant Aging turns South, the Loss comes just as Your ability is diminished.
Read 6 tweets
12 Oct
@rafshmatko I believe @OfficeofMelania
Represents a Beautiful Successful Woman
Immigrant, Speaks 7 Languages
Married to a Wealthy Successful Businessman and USA 🇺🇸 President 2016-2020. Republican. He Threatened ending Congress’s limitless credit line.
She Doesn’t engage slinging rot.
@rafshmatko @OfficeofMelania You know #realDonaldTrump 45th President of the United States 🇺🇸
Banned by Twitter. Guess You might have heard of Cancel Culture. Hard to believe that this is Condoned by many. Meanwhile the same nude photo of FLOTUS45 is always going around. Gee, does Jack Dorsey Know? Care?
@rafshmatko @OfficeofMelania Wait… do any Women in Media Care?
Woman’s Rights Groups?
People?
How a Beautiful Successful Woman is Shunned, Downplayed Ignored.Sniped at, Tried to rile Her up.
It didn’t work.
She doesn’t rile easily nor share her inner core.
❤️ Melania
Your Father Captured Her Essence.
Read 4 tweets
10 Oct
Just attended My Church on @YouTube @Ord_Off 🙏🏼
Great Service 👍🏼
One slide had me pondering,
#realDonaldTrump image flew by.
He was constructing a Wall. A Barrier where Non Americans walk into USA. No Fence, No Customs, No Declaration, No #Covid Questions.
Canada Border Closed.
I just watched this video by #realDonaldTrump which explains a lot. He talks Regulatory Reform, Property Rights, Stepping up Ventilator manufacturing and sharing with less fortunate countries. He called #COVID19 the China Virus. At the time he was mocked for this by #MSM
#Telehealth in speech #realDonaldTrump Covid-19 necessitated Distance Assessment and management of Patients by Medical Staff. No credit by #MSM . In Fact @Twitter banned him for “inciting a riot”. He did not. Why was Nancy Pelosi’s elevator unlocked? Capitol police stood back.
Read 8 tweets
3 Oct
You know it’s hard enough growing up in the USA 🇺🇸.
I know, I know, We Have a Lot of Resources.
Sorely lacking when it comes to Self Esteem.
@Facebook banned the 45th POTUS, #realDonaldTrump.
Anybody can be Banned, Banished, Extinctified, Cancelled.
Afraid of Freely Speaking. 1️⃣
2️⃣ Meanwhile, #realDonaldTrump ‘s Wife, Former #FLOTUS is on Social Sadistic Media like @Twitter sees the Runaway Insults, Sensitive photos of Her, Rude, Obnoxious,
BULLYING is the word. Teenagers learn what they see. “Let’s gang up on Susie or Kyle or Donnie “ Get ‘em cancelled.
3️⃣ @Facebook and @Twitter have become the Moral Standard for their Participants. I started using as an adult in my 50’s when this Era of “Social Media” started. I liked that I could “talk” to People around the world 🌎, indeed Off the Planet, too @Space_Station ❤️🚀🛰
Read 10 tweets

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