I found that before sharing this data with lawmakers they’ve often NO idea that ABA is even slightly controversial, because they’re not hearing form Autistic adults, only ABA providers, and the occasional parent who’s been manipulated by the ABA industry.
We REALLY need Autistic adults, especially ABA survivors to find there way into and testify in those legislative sessions and budget meetings.
Also, if you can get a meeting behind closed doors one to one with your lawmakers to talk to them - it is also very effective and may be safer than testifying in public hearings.
The first thing I would love for people to understand about sensory processing and sensory overload is that a NeuroDivergent Person, with sensory processing difference’s ability to tolerate certain stimuli can vary, from week to week, month to month, even day to day.
The ability to tolerate sensations can very, depending on a variety of factors.
One of those factors being how well rested, or how well off that individual NeuroDivergent Person is doing, on that particular day.
It can be the perfect storm if that person is feeling low energy that day, or they’ve already got a lot on their plate.
Maybe they’re already really stressed out about some personal thing or some change that’s happening in their life, or they’ve not slept well all week.
Well, for me, that is when some kind of sensory input becomes so overwhelming to me that I either shut down, meltdown, or run away from it; because I am basically sent into almost a panic or, just this need to stop, or get away from and escape it.
Some of my common triggers for sensory overload would be bright, fluorescent, lighting, certain smells, and certain sounds just really get to me.
Before I found out I was Autistic, I thought a lot of this was anxiety and panic attacks, but then I realized there was actually environmental triggers, causing this reaction inside me.
💯% FALSE: I want to set the record straight that, though I have PARTICIPATED in MANY campaigns and boycotts with others in the #ActuallyAutistic community, I do not have any such boycott list.
I have made lists of resources before, listing HELPFUL resources, but I personally don’t like boycott lists, because I feel they don’t leave people room to grow, since people often don’t update these lists.
Lots of claims being thrown around about me recently but NONE of them have had any evidence or are conveniently omitting and changing details- EX: claiming I worked to get a single mom fired - who ACTUALLY got herself fired for harassing minors on TIKTOK.
There have been a lot of people this year trying to get me to quit, thinking that if they make post after post about me, and harass me I will stop speaking about the issues that impact me and people I care about. I’m oppositional & defiant so it fuels me to do even MORE.
Every time someone tells me “stop taking about ________ - stop saying _________ - it becomes forbidden fruit, compelling me to scream louder and through more channels.
They are fueling my growth by demanding I stop.
I won’t stop… you can’t make me.
Keep sending your list of demands but I’m not interested in them and I won’t obey.
My work recently was shared by @Upworthy, who lead respectful & didn’t change my words… I described myself as “autistic” I’m the article. Yay!
Not yay - nonAutistic people in the comments telling me and Upworthy they should have changed my words to say “person with autism”
Seriously, just stop it! I can’t believe it’s 2021, almost 2022, & we still have nonAutistic people trying to tell Autistic People how they should refer to themselves.
Note: most of them who are offended seem to be NT “professionals” that work with families. #ActuallyAutistic
Also not yay - all the people saying I’m not really Autistic based off the 4 one minute or less videos they included in the story…
Growing up, I struggled in my relationships with other kids my age.
When I did hang out with other kids, they were often older or younger than me, additionally, my relationships were often very superficial, because, even when I wanted to, I didn’t understand how to get close to others or let people in.
For many years, as a preteen and a teenager, my best friends were our family cat and my dog, Ripley.
When I struggled to bond with others around me (even my family and caregivers) animals always were as kind to me as I was to them - like a mirror reflection back on me.