Watching new C19 infections turn into #LongCovid this week on Twitter has been difficult. I'm still shocked at how little most people know. Luckily, info on this illness exists, thanks to those who experienced it in earlier waves. I want to share some of that first-hand guidance:
In August, 2020 @theheatherhogan wrote about contracting C19 and being diagnosed with dysautonomia – a common diagnosis for a lot of folks with #LongCovid. She detailed her story in @autostraddle: autostraddle.com/the-soft-butch…
Also in August 2020, @mileswgriffis wrote a beautiful essay in @adventurevida about navigating the uncertainty of #LongCovid: adventure-journal.com/2020/08/living…. This article delves into fatigue, isolation, and cycling symptoms.
In February, 2021, @edhornick wrote about his experience with #LongCovid for @YahooNews: tinyurl.com/yckt593v. Ed's piece highlights similarities between #LongCovid + related illnesses, get into the histories of other neglected illnesses + shared symptom management techniques.
In May, 2021, @chiluvs1 shared her story of being a "poor, disabled, Black woman, living with long COVID" for @HuffPost: huffpost.com/entry/long-cov…. Chimére's story highlights the impact of medical racism and sexism, as well as the ways this disease can be financially devastating
In June, 2021, @morganstephensa wrote about mental health + #LongCovid for @CNN: cnn.com/2021/07/23/opi…. In this essay, Morgan talks about brain fog, mental illness, + more. This may be a triggering read for some, but it also may be helpful for those wondering, am I alone?
In August, 2021, @sandhya__k wrote a very helpful guide to accessing care for #LongCovid in @latimes: latimes.com/science/story/…. This article includes tips for staying organized as well as some guidance for the emotional toll navigating healthcare systems can take.
In October, 2021, @priyakamal shared a timeline of her journey with #LongCovid in @timesofindia: timesofindia.indiatimes.com/home/sunday-ti…. She writes about learning she had developed POTS, dealing with "crashes," and finding hope after finding a doctor who understood her condition.
In December 2021, @SRMHughes wrote about her experience with #LongCovid in @Medium: stephaniemitchellhughes.medium.com/one-year-in-li…. This essay touches on the importance of patience and rest, and how misleading information about COVID recoveries can make Long COVID patients feel more isolated.
there are so many others who have shared their story + provided guidance. You can connect w/ this community, by checking out the hashtags: #FBLC (which means "follow back, Long COVID" – a great way to make friends on here!), #LongCovid and #pwME (people w ME – a related illness)
As an American Covid-19 "first-waver" (I got sick 3/13/20), I feel both utter despair at seeing people experience what I went through, and hope that their journeys may be slightly easier, thanks to the info patients have gathered + shared in the past two years ❤️
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