Thread by @elisaperego78

#LongCovid was defined by the patient-advocate-researchers who first identified | named the condition as a prolonged form of severe covid, indeed 🔥
This is in the 2020 peer-reviewed | medical literature
Policy makers are trying to minimize it to promote erroneous policy

🧵

https://twitter.com/MerylSwanLake/status/1479054288945127425

For example, prominent #LongCovid researcher Prof. @felicitycallard successfully and powerfully questioned the "mild covid" narrative in a May 2020 academic publication

#MildCovid

somatosphere.net/2020/mild-covi…

In "How and Why Patients Made Long Covid" @felicitycallard and I make clear many early #LongCovid advocates | patient researchers had severe, life threatening covid

Many were left at home with no care in extreme conditions. These are real people

sciencedirect.com/science/articl…

In this @bmj_latest piece from 1 October 2020, my co-authors and I clarify again that Long Covid rejects the concept of "mild" --- including in the young

I define covid | #LongCovid once again as a multiphasic, prolonged disease

blogs.bmj.com/bmj/2020/10/01…

In this scientific letter published in September 2020, my co-authors and I reject, again, the #MildCovid narrative

We bring the hospitalized vs non-hospitalized dichotomy down: many severe patients in hotspots were left at home and developed #LongCovid

wellcomeopenresearch.org/articles/5-224

In this pre-print from early 2021 @felicitycallard and I criticize again early official guidelines that saw covid as respiratory disease only, "mild, short" in the young

We demonstrate how patient-made #LongCovid blew this narrative away

[new coming]

osf.io/preprints/soca…

Prominent #LongCovid advocate and journalist @fi_lowenstein was hospitalized with acute covid

Fiona wrote about this experience in the New York Times in spring 2020

Fiona was only 26 year old at the time

Long Covid is not #MildCovid

nytimes.com/2020/03/23/opi…

In this cutting-edge contribution from spring 2020 @ahandvanish and the @patientled team blew apart the official narrative of covid as a short-term, mild respiratory disease in most

Rather, covid is prolonged and multi-system

#LongCovid

patientresearchcovid19.com/research/repor…

I just shared here some publications from early adopters and patient researchers in #LongCovid --- among many others available

These are papers and contributions that are cited in official guidelines on Long Covid worldwide and across the wider scientific | academic spectrum

If you look for the stories and contributions of many early #LongCovid patient researchers and advocates, you will clearly see many had severe, sometimes life-threatening disease

Many were refused admission only because hospitals were overwhelmed. Some risked to die.

#LongCovid had been presented in some press and by some policy makers as "mild disease" and "fatigue" only for political reasons

Long Covid comes as a spectrum. Some have milder disease. Some have life threatening disease and are refused proper care

Covid is not mild

@MartaEsperti @preshitorian @apresj20 @Ra2myl @keyeri