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Nicole Lee Schroeder, PhD Profile picture
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8 Jan, 5 tweets, 2 min read
Cw eugenics

If anything this pandemic has solidified my disabled identity and community. Hearing and reading eugenics-driven language every single day has made it impossible to belong or feel safe in non-disabled spaces. 1/5
Former friends and family members and colleagues have continuously rolled their eyes and scoffed and told me I'm overreacting. How can I be overreacting when I'm faced with statements like this every single day? 2/5
Let's pretend that someone looked at you and said "what do you really do for the world? Let's face it your life is expendable. Instead of protecting your life I'd rather go out to eat/go to a concert/travel, even if I might kill you after." 3/5
How would you feel after that? Would you feel safe? Beloved? Valued? Would you feel like you belong? Like you have a future? Like you can move through the world? 4/5
I don't know how to relate to so many people. How do you form relationships with those who casually tell you you should die? Who tell you you're the problem when you call out this rhetoric? Who tell you you're overreacting bc you just want to survive? 5/5 #DisabilityTwitter

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More from @Nicole_Lee_Sch

Nicole Lee Schroeder, PhD Profile picture
3 Jan
I'm on a dating hiatus bc I can't deal with potential partners who don't feel the gravity of the pandemic. No I will not go out to eat, or go indoors anywhere, or kiss you, or be close with you, when you're not taking the same precautions I am to save my own life. 1/4
Unrelentingly for the past two years it's felt like dates have, on the whole, simply decided that my day-to-day life in isolation (except for work) is not enough. There's always the "well how long do you want to zoom/talk on the phone/chat without meeting?" 2/4
When I answer - until I feel safe again - that's never satisfactory. Which is fine that's their prerogative. But it's still hurtful. My life is fun and purposeful and delightful even without in-person socialization/intimacy. Partnership does not require physical presence. 3/4
Read 4 tweets
Nicole Lee Schroeder, PhD Profile picture
3 Jan
I'm teaching a #dishist course this term. I'm anxious and scared about teaching for all the pandemic reasons (and desperately hoping we make the switch to remote through spring break). Nevertheless, this is the course I needed when I was dx with a disability at 19. 1/4
Almost a decade later I now get to introduce students to disability history. To help disabled students reclaim their past. To teach others how to be informed allies. To talk about the precedence of ableist policies. And hopefully to dream of a less ableist future. 2/4
Things are not good at all. But I'm finally becoming the person I needed in undergrad. I'm not a great teacher, I'm still really struggling to adjust to teaching in a high stress situation, but I'm here and I'm trying. 3/4
Read 4 tweets
Nicole Lee Schroeder, PhD Profile picture
31 Dec 21
If you are presenting at in-person only conferences, which didn't offer accommodations to scholars with children, or scholars with disabilities, or scholars who are high risk right now - you are contributing to academic ableism. 1/4
I really just want non-disabled scholars to acknowledge that some career choices, like in-person conferencing, have an impact on those of us who CAN'T choose to go. Moreover you may be burdening local health sectors with cases that you bring into the new space. 2/4
When you take advantage of opportunities that are not available to all of us in the academy, you actively tell disabled scholars (and many other groups) we don't belong, that our research doesnt matter as much, and that we'll just have to press pause while you speed on ahead. 3/4
Read 4 tweets
Nicole Lee Schroeder, PhD Profile picture
24 Dec 21
People are going to the ER to get official medical documentation because they know that the medical system, and the govt, will fuck them over should they ever need to claim disability. 1/3
Including statements like:
1. You didn't have COVID
2. You didn't seek proper care and developed chronic symptoms
3. You don't meet the clinical criteria for long COVID 2/3
If the medical system took patients at their word people wouldn't feel pressured to go get documentation. And if disability claims weren't dependent on doctors deciding that you are/are not disabled based on a vague and arbitrary set of criteria people would stay home. 3/3
Read 4 tweets
Nicole Lee Schroeder, PhD Profile picture
23 Dec 21
I'm concerned with all the talk we have about hospital overcrowding. Yes overcrowding for acute care management for COVID patients depletes the system. But for disabled patients, the system was ALREADY broken and overcrowded. 1/6
Lists to get in to see specialists in chronic illnesses and comorbidities are already endless for us. It's common to wait at least a year per specialist, and with an influx of millions of disabled individuals with long COVID, those wait times will get even higher. 2/6
Treatment options and research is currently being halted, delayed, or terminated in order for the system to focus on acute COVID-related demands. And so we have very few treatment options on the horizon. I was closely following so many clinical trials that just stopped. 3/6
Read 6 tweets
Nicole Lee Schroeder, PhD Profile picture
20 Dec 21
Got the classic "rare disease" line of questioning at my gyno today. Please for the love of God stop asking chronically ill patients who coordinates our care. No one does. No one. They just splice up our bodies piecemeal and send us to the next specialist. 1/4
When I had my "best" care I had a: geneticist, pain mgmt dr, cardiologist, neurologist, neurosurgeon, a GI, a GP, one orthopedist for each joint (which back then were hips, shoulders, hands), a bracing specialist, a PT team, and a gyno. 2/4
That's 13 drs. None of whom spoke to one another, coordinated care, or ensured their recommendations didn't clash with those of my other specialists. My GP just wrote numerous referrals but couldn't coordinate care bc they *were not trained to do so.* 3/4
Read 5 tweets

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