Four months in to doing Xolair home injections. Told by my specialty pharmacy I don't have the paperwork on file to do injections at home from my dr. And they can't access the funds in my Xolair acct even tho it's active. Can anyone do their job? 1/3
Anyone? My Drs office? Xolair copay system? Blue Cross Blue Shield? Optum Pharmacy? Why am I constantly being threatened with losing care, and blamed when people fail to perform their tasks in these medico-insurance spaces? I'm so tired of begging for access to meds. 2/3
It's like for a few months things seem okay and I fall into this lull that maybe my care won't be disrupted. That maybe I won't spend hrs doing work to sort it all out. That maybe precedence means stability. But then days like this I watch that stability fall to pieces. 3/3
Lol Optum Specialty pharmacy told me it's my job to wait on hold w xolair bc they have a long wait time. I need to explain to Xolair that the pharmacy can't process my claim bc my acct is active but they're missing back end info. Am I suddenly an insurance claims agent?

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More from @Nicole_Lee_Sch

Jan 22
This thread is for educators bc I am worried by how my students talk about their accommodations. Many are apologetic, many feel the need to convince me that they CAN do well and that they ARE smart. And all I can think is: what the fuck did you do to make them feel this way? 1/17
First of all I'm a disabled academic who has had accommodations since the sophomore year of undergrad. I had accommodations forms each term for the rest of undergrad and grad school - were they helpful? No. Accommodations treat disabilities like cookie cutter issues.2/17
Disability Services has a list of accommodations, and a set number of each they can give. It's a quota system of interventions like "time and a half" or "quiet test spaces" that's designed to save the school as much money as possible while pretending at access. 3/17
Read 17 tweets
Jan 8
Cw eugenics

If anything this pandemic has solidified my disabled identity and community. Hearing and reading eugenics-driven language every single day has made it impossible to belong or feel safe in non-disabled spaces. 1/5
Former friends and family members and colleagues have continuously rolled their eyes and scoffed and told me I'm overreacting. How can I be overreacting when I'm faced with statements like this every single day? 2/5
Let's pretend that someone looked at you and said "what do you really do for the world? Let's face it your life is expendable. Instead of protecting your life I'd rather go out to eat/go to a concert/travel, even if I might kill you after." 3/5
Read 5 tweets
Jan 3
I'm on a dating hiatus bc I can't deal with potential partners who don't feel the gravity of the pandemic. No I will not go out to eat, or go indoors anywhere, or kiss you, or be close with you, when you're not taking the same precautions I am to save my own life. 1/4
Unrelentingly for the past two years it's felt like dates have, on the whole, simply decided that my day-to-day life in isolation (except for work) is not enough. There's always the "well how long do you want to zoom/talk on the phone/chat without meeting?" 2/4
When I answer - until I feel safe again - that's never satisfactory. Which is fine that's their prerogative. But it's still hurtful. My life is fun and purposeful and delightful even without in-person socialization/intimacy. Partnership does not require physical presence. 3/4
Read 4 tweets
Jan 3
I'm teaching a #dishist course this term. I'm anxious and scared about teaching for all the pandemic reasons (and desperately hoping we make the switch to remote through spring break). Nevertheless, this is the course I needed when I was dx with a disability at 19. 1/4
Almost a decade later I now get to introduce students to disability history. To help disabled students reclaim their past. To teach others how to be informed allies. To talk about the precedence of ableist policies. And hopefully to dream of a less ableist future. 2/4
Things are not good at all. But I'm finally becoming the person I needed in undergrad. I'm not a great teacher, I'm still really struggling to adjust to teaching in a high stress situation, but I'm here and I'm trying. 3/4
Read 4 tweets
Dec 31, 2021
If you are presenting at in-person only conferences, which didn't offer accommodations to scholars with children, or scholars with disabilities, or scholars who are high risk right now - you are contributing to academic ableism. 1/4
I really just want non-disabled scholars to acknowledge that some career choices, like in-person conferencing, have an impact on those of us who CAN'T choose to go. Moreover you may be burdening local health sectors with cases that you bring into the new space. 2/4
When you take advantage of opportunities that are not available to all of us in the academy, you actively tell disabled scholars (and many other groups) we don't belong, that our research doesnt matter as much, and that we'll just have to press pause while you speed on ahead. 3/4
Read 4 tweets
Dec 24, 2021
People are going to the ER to get official medical documentation because they know that the medical system, and the govt, will fuck them over should they ever need to claim disability. 1/3
Including statements like:
1. You didn't have COVID
2. You didn't seek proper care and developed chronic symptoms
3. You don't meet the clinical criteria for long COVID 2/3
If the medical system took patients at their word people wouldn't feel pressured to go get documentation. And if disability claims weren't dependent on doctors deciding that you are/are not disabled based on a vague and arbitrary set of criteria people would stay home. 3/3
Read 4 tweets

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