God it’s been humbling to be a carer and experience the NHS from the other side.
#LongCovid has shown me just how much our current ‘single specialty’ model of medicine is failing patients with chronic disease. I knew this before, but it’s hammered it home (1/4)
#LongCovid has shown me just how much our current ‘single specialty’ model of medicine is failing patients with chronic disease. I knew this before, but it’s hammered it home (1/4)
Also interesting is the complete paralysis of health care professionals to be able to treat without an ‘evidence base’ or ‘guidelines’ in the NHS. All evidence starts with anecdotes and case series.
In a new disease we need a different more agile model of creating evidence (2/4)
In a new disease we need a different more agile model of creating evidence (2/4)
We need a mechanism for rapid small scale testing of new drugs/ therapies in different cohorts, fast tracked ethics approval and rapid review, analysis, publication, adoption and spread. RCTs are important but can’t be the whole answer when millions are suffering (3/4)
The sad thing is there’s no urgency other than in the people affected. #LongCovid is a public health emergency in my view. I am not excluding other illnesses eg #MECFS, we have an epidemic of chronic disease, all equally important. Our model of medicine needs a complete overhaul.
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