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Feb 1 • 4 tweets • 3 min read
Had no literal idea this “follow up interview” was gonna be live TV, but tried to remind @CBSMornings viewers it’s been 2 years & there’s still no warning about #LongCovid disabling 10-30% of all infected folks ~ and it’s 💯 critical we #CountLongCovid & #TreatLongCovid
When I open my zoom link and saw people talking about Afghanistan and Ukraine I was like is going on lol and then they I hear “you’re on in 30 seconds”
Full interview here cbsnews.com/video/long-ter…
Here’s was my response to “what do you say to folks who say #LongCovid is not a real physical disease”

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More from @loscharlos

charlos Profile picture
Jan 29
“Its the 1st study to demonstrate lung abnormalities in #LongCovid patients who are breathless & other investigations are unremarkable. It suggest the virus is causing some persistent abnormality in the microstructure of the lungs or pulmonary vasculature” theguardian.com/society/2022/j…
It’s two years & still deal with chronic debilitating breathlessness from #LongCovid. It seems all of the “normal tests” don’t really help with this disease 🤷‍♂️ - It’s time to have a very serious conversation about how to expedite diagnostics at “operation warp speed”.
@ShaneyWright @LongCovidSOS @C19LH_Advocacy @long_covid @YoDoctorYo @ahandvanish @Aguirre1Gustavo @Survivor_Corps @itsbodypolitic @LekshmiMD @elisaperego78 @calirunnerdoc @j_b_kennedy @Girish_cbe @longestrecovery @simmian42 @drschweig @DaveLeeERMD @dianaberrent @LongCovidKids
Read 6 tweets
charlos Profile picture
Jan 14
“There is reason why we think #LongCovid could be worse with #omicron.. 1st is most cases of Long Covid occur after mild infection.. 2nd is due to omicron’s immune evasiveness, which may make it harder to clear”

Excellent convo w/ ⁦@EricTopol⁩ & ⁦@Bob_Wachter⁩
“Right now we should plan for the worst for #LongCovid ~ This whole idea of accepting millions of infections a day as inevitable ignores Long Covid.. the last point about vaccines protecting against LC, it might halve the risk but that’s still questionable” - @EricTopol
@ahandvanish @dianaberrent @arthur_affect @jencurtinmd @PutrinoLab @LongCovidSOS @long_covid @fi_lowenstein @ItsAngInLA @j_b_kennedy @doctorasadkhan @calirunnerdoc @YoDoctorYo @farid__jalali @VirusesImmunity @AyannaPressley @SFdirewolf @NanetteAsimov @luckytran @edyong209 @mattbc
Read 4 tweets
charlos Profile picture
Jan 13
At the hearing Senator ⁦⁦@timkaine⁩, who himself has #LongCovid, asked, "What is the ⁦@NIH⁩ doing right now, or what's the current status of NIH research, to better understand Long Covid, to look at symptoms and potential treatments." 👏 eatthis.com/news-fauci-lon…
Dr. Fauci said “there seems to be a persistence in multiple organ systems indicating that even if you clear the virus, one of the possibilities—& I emphasize because it needs to be validated—is you don't completely clear the fragments of the virus & have continual stimulation.”
“That research is ongoing and is in the very early stages. He [Fauci] said this was one possible #LongCovid breakthrough.”
Read 4 tweets
charlos Profile picture
Jan 2
32 today, so far I’ve spent my entire 30’s w/ #LongCovid 😵‍💫 ~ Haven’t been able to leave the house for a meaningful outing since last Spring.

This year I’d love the world to start responding with the urgency required to address the greatest mass disabling event in history. 1/4
Would love to see medical community warn the public about #LongCovid with the same vigor they have encouraged vaccination. Would love to see meaningful discussion about how to fast track the most promising treatments the same way we have vaccination & acute therapies. 2/4
Would love to see a robust daily conversation about how we’re going to support #LongCovid pts who can no longer work or support themselves but don’t qualify for disability or other social service supports. They didn’t ask for this condition. How will we respond? 3/4
Read 7 tweets
charlos Profile picture
Dec 29, 2021
Combined triple treatment of fibrin amyloid microclots and platelet pathology in #LongCovid can resolve persistent symptoms.

“Fibrin amyloid microclots block capillaries & inhibit the transport of O2 to tissues, accompanied by platelet hyperactivation”
researchsquare.com/article/rs-120…
“We used a triple therapy to treat the microclots & platelet hyperactivation. During this medication regime, 24 patients were followed, the endothelium layers recover sufficiently over a 3-4 week period, this allows for normal clotting physiology & endothelium function to return”
“All patients in this cohort, reported a significant reduction in their #LongCovid symptoms. We suggest that a platelet and clotting grading system should be used as a simple and cost-effective diagnostic method for the early identification of long COVID/PASC.” 👏 @resiapretorius
Read 4 tweets

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