Ben King 🌏 Profile picture
Feb 3, 2022 45 tweets 23 min read Read on X
Day 3 of #Omicron symptoms was my worst so far, with fatigue & a very heavy head, alongside sneezing. My tight chest, feeling of reduced lung capacity and tickly lung sensation had subsided slightly, as did the coughing, that had become painful on Day 2 #Oximeter down to 96%...
...so I slept a lot on Day 3.

But now it's 1am on Day 4 and I feel full of life. Fatigue gone. No more headache. Slight wheeze still, Oximeter 96%; no appetite, but sense of smell and taste are fine.

Wonder whether the worst is over, as I'm double AZ-jabbed plus Pfizer-boosted?
I can't find evidence of people relapsing into worsening symptoms post-Day 3, but my lungs are my weakness... Am I good right now because I slept so much over the last 3 days?

Tomorrow I begin my participation in the @UniofOxford #Molnupiravir (antiviral) trial.

Link follows... ImageImageImage
The @UniofOxford and @NIHRresearch #PANORAMIC trial is designed to study the #molnupiravir antiviral drug as a treatment for early #COVID19 infection such as mine.

panoramictrial.org

Glad to be taking part as someone in my late 40s, with severe #asthma.

@NIHRtakepart Image
Day 5 #COVID19 update: Pretty much as Day 4. Fatigue/exhausted by early afternoon, despite lying down constantly. Second half of this week has been much less about the lung weakness and the persistent cough; that's still there, but sinus pressure, sneezing & racing heartbeat now.
Day 6 & am getting quite sick of #COVID19 isolation. But symptoms are easing except for a tickly cough (thanks to the antivirals?) Blood oxygen 99% & resting heartrate has finally dropped to my normal range. Strong +ve LFT means I'll be isolating until at least Day 9 (Tuesday) 😒 Image
Day 7 update:

I felt absolutely fine this morning, with just the positive LFT and a persistent tickly cough to remind me to maintain isolation.

But a couple of hours setting Cover lessons for Monday has wiped me out. Exhausted now and chest is very tight. Heartrate back up too.
Day 8 and still testing positive on lateral flow. Resting heart rate is at last back to (my) normal ~50 b.p.m. however 👍
Coughing continues. #Omicron #COVID19 ImageImage
Day 9 update:

#Omicron is not #mild

I'm triple jabbed, but the virus is strong, even after my 5-day course of antivirals.

Tested positive daily for 9 days.

Heartrate is back up and headache all day. Cough and tight chest have eased with bed-rest.

#WearAMask to protect others
Day 10 Image
Day 11 update:
Cough continues. Tight chest & heart palpitations returned after mentally-challenging tasks this morning. Simple physical tasks also more strenuous than they'd usually be. #Oximeter readings drop from 98 to 95 with minor exertion.

#COVID19 is NOT #JustLikeTheFlu. Image
Day 12 update:

Negative LFT, but need many sleeps throughout the day, on top of usual nightime deep sleep.

Resting heartrate back to normal, yet any mental or physical exertion can more than double it. SATs OK.

Main symptom: tight chest & Weak Lungs...
Day 13. Went for a short (200m) walk on the level yesterday, so thought I'd be OK to walk a few hundred metres (dead flat) today. Felt light-headed, so, with #oximeter to hand, started to monitor. Went sub-90% oxygen saturation so sat down. Just moving between adjacent benches...
...or standing up took O2 levels measured by oximeter to 80s & even lower (accuracy?!) Partner collected car, so stablised around 98%.

I know I need to rest. Am monitoring. Just taking this photo on my phone took level down to 92% moments later.

#COVID19 *not* #JustLikeTheFlu Image
Day 14. Tightest chest I'm ever felt, even as an asthmatic - from the bottom of my lungs to the top of my windpipe. Not wheezing, though - more an extreme 'tightness' leading to regular coughing. #Oximeter reading is 99% when resting, so resting's what I'll do.
#COVID19
Day 15:
When in #BedRest my #Oximeter readings range from 94-98 (Sp O2); HR from 55-110bpm. Lowest of these values on waking.

When I get up & simply walk 10 steps to the bathroom & then back, my blood oxygen drops dramatically (low 80s) & HR exceeds 130bpm. #TissueHypoxia? [1/3]
Post-#COVID19 people may experience loss of hypoxic sensation - The only clues to my poor condition when not lying/sitting still are my #dizziness, blurring eyesight, & very fast heartbeat/ #palpitations

#SilentHypoxia?

Got sent to A&E last night by NHS 111. SATs were in...
[3 of 3]
...low 80s on walking in, so I sat down & took deep breaths. They then measured my (good) SATs! Approach is,"don't get out of bed & call 999 if O2 at rest drops <94." Consciously deep breathing raises O2 & lowers HR, but loss of hypoxic sensation is concern during sleep!
[4 of 3 😉]

Triple jabbed since 1 Nov. Take Fostair daily for my asthma and it is not particularly well controlled during all of this. Using Ventolin inhaler a couple of times daily for last 3 days, since the short walk I (clearly shouldn't have) attempted on Saturday afternoon.
Listened to this clip and wonder what @mattinadakim thinks of my situation...
bbc.co.uk/sounds/play/m0…
Still early for me, based on clip 5- to 10-minutes in. And says have to wait 5 min before taking a reading suggests that I might actually be fine.
#PulseOximeter #SilentHypoxia
Here's the @NHS advice on using a Pulse #Oximeter during or post-#COVID19 infection:
Day 16: Phone call with doctor:

- ECG & Blood test (including D-dimer to check for potential blood clots);

- 5-day course of steroids to ease symptoms;

- Poss. chest X-ray - will review.

Feel much better when lying on my front, so will keep doing that. Keeping record of SATs.
“We collectively dropped the ball on COVID,”...“And I feel we’re about to drop the ball on long COVID.”
Day 16 continued:

I'd like to know WHY just walking the 10 steps to the bathroom results in my blood oxygen concentration dropping dangerously low, & my heartrate jumping up to beyond 120b.p.m.

And WHY getting both into and out of the bath was even worse: 80s for O2; >130b.p.m.
Day 17:
Tests done at my surgery. Hoping for results soon. Main concern remains my speedy heartrate (well over 150 b.p.m. as I entered my house on return) and low blood oxygen saturation (which dipped into the 70s as I walked from the car to my front door.) #Oximeter invaluable.
End of Day 17:

Blood test (D-dimer) results already in. Suspected pulmonary embolism (lungs?) from COVID. Hope to get CT scan & more tomorrow. Already on blood-thinners.

Main emotion: #Gratitude 🙏 for the many supportive friends who've checked-in with me ...and for this lot 👇 ImageImageImageImage
Day 18 - 03:45

Continuing to share, as it may help me and others experiencing post-COVID symptoms.

Woke 3am. HR 57 b.p.m. Blood oxygen 97%. Lying on front I remained mostly free of symptoms.

Got up to visit bathroom and tightness in calf of right leg was feeling much [1 of 4]
...less like a muscle spasm (as I had assumed it was following my short attempted walk on Saturday) and more like a heavy 'cramp.'

Stood up & walked to bathroom & then straight back to sitting on side of bed. Put #oximeter on my finger to monitor SATs. HR was raised, but, by...
...deep breathing on my bathroom visit, saturated O2 was at 98%. Lay on my front and 'cramp' in right leg flared-up, as did incredible tightness in lungs. Kept #oximeter on & within seconds its alarm went off for (slow) HR of 47 b.p.m. This was soon followed by alarm for 70% O2.
[4 of 4] Deep breaths and guided meditation helped my organ systems to stabilise within 5 min.

Now lying on front. Symptom free! O2 at 98%; HR in 70s.

D-dimer blood test suggests blood clot(s) somewhere. Loads of them throughout my lungs, or big one(s) in calf of my right leg?
Think this is my first time in hospital (for my health) since I was 12. I'm 49! Everyday heroes, for sure 🙏 @NHSMillion

X-ray done & more blood tests taken. CT scan coming up.
They've been running lots of tests on me at Torbay Hospital today to rule out serious Post-COVID complications. Of course, the 'non-serious' effects can also be long-lasting - e.g. my lungs are struggling when standing. Hopefully not: I'm only a week after last testing positive.
Being discharged overnight. Back in first thing tomorrow for CTPA scan of lungs.
Full day in hospital.

Chest X-ray clear. ECG clear. Bloods looking OK, apart from high D-dimer values. It's not *just* blood clots that cause this, just having COVID can do it. But they want to rule it out.

CTPA scan to rule out pulmonary embolism will be tomorrow...
Multiple healthcare staff have checked out my painful calf muscle and have decided Deep Vein Thrombosis there is unlikely. But it gets incredibly cramped-up very quickly when walking. As for the lasting pain in my left side, they reckon it's a nerve issue - sciatica.
Discharge nurse shocked by my high blood pressure, fast heartbeat & low SATs. Yet I explained how 'normal' that now is for me when upright, since COVID.

Providing the direct hit from #StormEunice allows, I'm back in first thing for the CTPA scan.

Thank you @marathontaxis 🙏
Overheard in #TorbayHospital

Woman to elderly man in wheelchair: "You're going to see the dentist"

Man: "The gunsmith?"

Woman: "*DENTIST*"

She gave me massive grin from under her mask 🙂

Got here early for CTPA scan and had it straight away! Smooth start to the day.
So, #COVID19 is #JustLikeTheFlu, yes?

Multiple blood clots on right lung (centre and periphery) confirmed by CTPA scan. Probably came from larger clot in right thigh (not confirmed), hence blood not returning up my right leg and 'pooling' in right calf area.
[1 of 2]
Feeling positive to actually know what's making my heart beat so fast and blood oxygen drop so much, and calf of right leg fill-up with blood when I walk/stand. On good blood thinning drugs and already improving. Home now.

Too many people minimised my symptoms. Dangerous.
End of Day 19 of my #COVID19 journey
& final tweet of a *long* thread...

Anticoagulant dose was tripled today. Body readjusted immediately in many ways (incl. pulse strength, HR & SpO2)

Too many to thank publicly for guiding me, esp. in week since COVID-negative. Life-savers 👊
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More from @benking01

Jul 31
7 Lessons Learnt for #ventilation and indoor air quality from this pandemic:

1. Listen to expert advice from a range of disciplines and use it to guide infection risk management and management of indoor air quality;

2. Opening a window is not enough;

[1 of 3] #COVIDisAirborne
Image
3. Plan for better buildings for the future;

4. Use equivalent ventilation as a supplement in poorly-ventilated spaces;

5. Building design matters;

#COVID19 #CovidIsNotOver Image
6. Monitor ventilation performance at all times when buildings are occupied;

7. We need Regulation of indoor air quality to protect human health in public spaces - including #schools and #hospitals.

#LongCovid @LongCovidKids @NHSuk @bphillipsonMP @GwynneMP @CarolineVoaden Image
Read 4 tweets
Feb 22
This was an incredibly useful hour of advice. Thank you so much to Dr @BinitaKane and her guest, Prof. Todd Davenport @sunsopeningband 🙏


I scribbled some notes and will gradually communicate my biggest takes in this thread 🧵

#LongCovid #PEM #Pacingyoutube.com/live/lFmmyuUZ0…
Prof. Todd Davenport emphasised a variety of approaches to managing my #LongCovid #PostExertionalMalaise symptoms. At the heart of my new understanding is the realisation that, for the past two years since my first Covid infection, I now have an ENERGY-LIMITING DISEASE.

[1/?]
I have been using my @KiActiv
Smartwatch (provided to me for Free via @NHSDevon following my Long Covid and PEM diagnosis) for many months now, alongside the cost-free features of the @visible_health app. But I now understand how to use these in a more informed way...

[2/ ] Image
Read 7 tweets
Oct 8, 2022
It took my legs a few minutes to warm up this morning, but glad to report that long morning walks remain easy, in contrast to later in the day. #Totnes is waking up beautifully ☀️
5 miles walked this morning, with no adverse effects. Then strimmed & mowed a lawn. Great to not be worried about my heart and lungs as I got a real workout from the gardening. However, I'm mindful of the warnings of some with #LongCovid that I should continue to pace myself.
Read 73 tweets
Mar 27, 2022
Spent more time in the garden today. Insect populations are booming! A bit of sunshine really helps to lift the spirits.
#Hoverfly Image
Had a run of 3 good days, but just tried doing *some* of the things my lungs had allowed me to do over the weekend & over-did it by fixing the ball-cock in the toilet cistern! Lowered my guard; lungs are tight again (first time in 10 days) & I'm lightheaded. #PulmonaryEmbolism
Read 78 tweets

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