Me, criplit author, to one of my writing pals: If I were writing out my own course of #LongCovid with the aim of sketching out a fictional character, I would 100% scratch it out as not plausible. "Tone down. This is verging on ludicrous. Pull back on the crises."
On a serious note, I think that is a factor in why it's so difficult to get doctors to believe us. Disbelieving patients is a feature of medicine, don't get me wrong, but as a medical geek, no other illness has caused me to keep checking the *instruments* due to wild readings.
When you grow up with doc's offices and hospitals a regular feature of your life, you learn early on that wild readings happen and not to freak out about a blip, but when *everything* looks like a blip but the equipment isn't faulty, are we measuring useful things anymore?
I'm not saying anything profound, but I'm sitting here with a fever of 101.4F, the tinnitus is back, a bunch of other symptoms back, yet a sat of 99(?) for the first time since June, so I'm feeling contemplative, I guess.
Update! Well, it was 99 eight minutes ago when I wrote the tweet before this one, but now... see? Implausible. Surrealism. Just... Monty Python's Flying Circus of Bodily Malfunctions. (Hey @EricIdle, would there be legal trouble to be had for subtitling Long Covid thusly?😁) A blue pulseox probe on my finger that says my oxygen satura

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Meg seanchaibeag

Meg seanchaibeag Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @seanchaibeag

Feb 2
Didn’t expect this comment to take off – I was lending support to a fellow chair user who’d had a traumatic experience many of us have, and this discussion arose. Since it seems to have shocked some bipeds, I want to talk about what to do if you see it.
The first thing to remember is, the vast majority of wheelchair users *cannot* afford to escalate confrontations in public. If you’re going to say *anything*, please make sure you’re not Hulking out on the perpetrator – they will take it out on *us*. Aim to defuse, not enflame.
There are two different behaviors to watch for. The first is much more common – a stranger grabbing a wheelchair user from behind and shoving us out of their way like we’re an empty shopping trolley (no “pardon me,” no “sorry,” no acknowledgement there’s a human sitting there).
Read 18 tweets
Dec 5, 2020
(#COVID19 and orphan drugs thread: 1/9)

My original life plan from ~8 was to be a pulmonologist specializing in cystic fibrosis. I spent all my free time at uni on an underground citizen research team dedicated to trying to crack the biochemistry.

israel21c.org/dont-invent-ne…
(2/9) We were on the right track, but ~20 years too early; our research was the very very VERY beginnings of what eventually led to ivacaftor (Kalydeco). So when I plow through a Covid abstract & break it down a bit, know that I have no qualifications, but it’s a lifelong hobby.
(3/9) The piece above reminds me of a solo trip to the local science museum during a history of medicine exhibit. A substantial section was devoted to “orphan drugs” – drugs that had been fully developed and passed safety testing, but never got funded for efficacy trials/license.
Read 10 tweets
Dec 5, 2020
I had no idea Father and Son was originally written as part of a(n unfinished) musical set during the Russian revolution. Continue to be impressed by the fact that Yusef Islam/Cat Stevens voice hasn't changed a bit in 50 years. (Why do I care? Personal anecdote ahead.)
When I first transferred from segregated gimp school to tree hugging hippie school, folk/protest songs and guitar were part of the curriculum. We sang a lot of Cat Stevens (+ Jimmy Cliff, Peter Tosh, Pete Seeger... you get the idea). So, there's a certain subset of music...
That takes me back to the days where I was just discovering what autonomy meant, how big the world was and how little I knew of it, what being disabled really meant (sociologically), what injustice was, what intersectionality & being an ally meant, and what to do about any of it.
Read 7 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

:(