Tamar Tired Profile picture
Feb 12 6 tweets 2 min read
This. I am diagnosed with various labels that mean I face stigma in services I access. My job is to use the insight from that to improve those services. The problem is, I face stigma in my job because of those diagnoses too. In order to mitigate the stigma, I got a >
> Masters Degree in the job I work in to so that there would be no excuse for non Lived Experience staff to continue to make decisions in how to co-produce services. Like @keirangoddard1’s question in his thread, this was treated as an obstruction to the status quo, a threat >
> something to be silenced and shown the door. Non LXP staff have ensured that future co-production will not be developed by specialist LXP staff trained in the areas of mental health they work in, as well as being trained >
> and supervised to be able to challenge tokenism and ensure that ‘grooming’ to rubber stamp decisions already made does not take place when doing this important work. I was horrified to learn that co-production decisions relating to services that work with complex, stigmatised >
> diagnoses like ‘personality disorder’ were now going to be taken from #LXP staff trained in that area & given to unpaid SUs. As my education & experience literally made me redundant, I wept and was told to seek clinical help at the very services I was supposed to be improving >
> but had never been allowed to. I wept knowing I’d have to experience the impact of these decisions on my future clinical care. I wept for so much. These stories of corrupted co-working: grooming, unaccountability & silenced ‘troublemakers’ are everywhere. Just start listening.

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More from @tamar_whyte

Feb 15
1/Surely this indicates an overt example of discrimination - in this instance, saneism- against #LXP Peer Support Work roles? Is this discrimination on the part of #AgendaForChange #A4C or is it unscrupulous managers writing job descriptions that use keywords to dumb down roles?>
2/This is why we need #LXP senior roles so that we have recruiting managers who work within our discipline who understand the different levels of skillsets required for each type of job & ensure that these aren’t belittled by conflicting internal agendas. Presently no structures>
3/are in place in most organisations to prevent this and #LXP staff are at the mercy of benevolent individuals rather than a robust system to protect them from discrimination in the workplace structures & working environments. That just isn’t good enough. The other issue is that>
Read 13 tweets
Jan 7
PLS RT: Does anyone know of any #LXP (Lived Experience Professional roles ie. Peer Support Workers, Lived Experience Researchers) that have reached Employment Tribunal stage for Disability Discrimination in the UK? All I’ve heard of reach settlement before court stage #MadTwitter
Employment & Equality of #LXP’s is something that I’m trying to build understanding of because presently it is disparate and isolated by employer or even employee. I hadn’t realised til recently that there have been quite a few Tribunal applications >
> for discrimination at work, however all I have heard of where settled prior to court. I can’t find any examples of one going to Employment Tribunal Court. I’d really appreciate if people could put this out there so I can discover & collate any examples. They will be of great >
Read 5 tweets
Jan 1
Doing a Daisy 🐈 all day today. It’s been the morn/afternoon/eve after one of the crazier NYEs in my life. But every New Years Day is a reminder of Mum. 21y, but still remembering today. The shock of learning that #Epilepsy kills. She never made a big deal/complained about it 💜>
2/ Apart from a disabled rail pass she never really seemed ill. She somehow managed 4 very strong minded kids and a difficult life. Her life got more and more difficult as her life went on and her last 7 years were very sad indeed, she was physically very disabled & very unhappy
3/ That’s the saddest thing I remember. Her being sad and having had such a shitty life, especially at the end. I think of her as a very loving Mum who was a real homemaker and an incredible cook. She could could anything. Whip up meals for a family of six out of leftovers. >
Read 17 tweets
Nov 18, 2021
1.Lots of feelings today. I’m in the middle of trying to officially get discrimination and inequality recognised. It’s really hard. I’m so fucking tired and sad. I want to fast forward to an open court where I get to say what’s happened and it’s done & over whether I win or not >
2. I’d have been happy with a systems change that would have addressed inequality. Most people can’t cope with how awful this process is and you never hear about other Lived Experience Professionals (Researchers, Peer Workers etc) who have raised grievances because >
3. organisations often give a settlement payment to keep it from going to tribunal. I don’t think anyone could offer me a big enough sum to do that. It would need to be so big they’d never, ever do that again to anybody because they couldn’t afford to. >
Read 9 tweets
Nov 17, 2021
1. Back when I was diagnosed with EUPD in 2005 I did the usual Google thing & found @Quora. I’ve never bothered unsubscribing & I keep getting email bulletins with Q&As from people who detest ‘toxic Borderlines’ and are rampant Royalists. Yet I STILL haven’t unsubscribed >
2. It winds the everlasting f* out of me, I get torn between responding to the worst of the bile & misinformation posted (bad idea: too much energy), to unsubscribe (good idea💡) or to observe occasionally (brave: a step outside my personal social media echo chamber) >
3. It’s also a reminder that even for most of the differences of opinions on Personality Disorder/‘Personality Disorder’/Trauma & it’s treatments, most of the people (clinicians/non-clinicians) taking part in these conversations care enough to do so, whether we agree or disagree>
Read 9 tweets
Oct 8, 2021
1. MENTAL HEALTH CHARITIES: A thread. The frustrating thing about charities & govt funded orgs is they are gagged to remain neutral. The causes, triggers & worst stressors of mental health issues are social, environmental, political. Roof over head, disability benefit, etc >
2. Yet charities can’t comment. So all the resource and funding goes to orgs who structurally are prevented from helping where it is needed most - they can try to soothe the trauma a bit but not get anywhere near stopping it. This means that the only way to really do that is by >
3. not being a charity, because if that’s what you are, you become pretty useless when govt policies lead to thousands of deaths of people with mental health conditions and you want to organise a special day or coffee morning to chat about mental health. Some organisations like >
Read 7 tweets

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