1/Surely this indicates an overt example of discrimination - in this instance, saneism- against #LXP Peer Support Work roles? Is this discrimination on the part of #AgendaForChange#A4C or is it unscrupulous managers writing job descriptions that use keywords to dumb down roles?>
2/This is why we need #LXP senior roles so that we have recruiting managers who work within our discipline who understand the different levels of skillsets required for each type of job & ensure that these aren’t belittled by conflicting internal agendas. Presently no structures>
3/are in place in most organisations to prevent this and #LXP staff are at the mercy of benevolent individuals rather than a robust system to protect them from discrimination in the workplace structures & working environments. That just isn’t good enough. The other issue is that>
4/presently organisations who may find these types of changes a threat are still in a position to develop and recruit for senior #LXP posts themselves. They can still find ways to rubber stamp development of these posts by ‘including service users’, rather than working with >
5/skilled and experienced #LXP consultants who will ensure that systems of supervision and support will have been developed, not only for LXP staff but for teams learning to work with them, as well as adequate resources and budget allocated to develop this work. It is >
5/ entirely unacceptable to expect service users to do this work for free or an involvement fee, when this service would easily cost £1000 consultancy fee for any other organisational or developmental change consultant brought in to do this work. Maybe more. Director level >
6/ consultancy is easily £2000+ a day. Equality is not £150 inclusion fee, y’all. It is also not expecting service users to know the internal NHS systems or the level of discrimination towards Mental Health that exists amongst staff towards staff. For service users who happen to>
7/ have those skills, you don’t get to exploit them because of it. You wouldn’t get to pay the CEO £150 involvement fee because they are a service user as well (albeit in another trust or via private healthcare for their bipolar diagnosis), would you? I didn’t think so. >
8/We need to get away from letting non-LXP staff get away with doing ‘participatory’ work. This is #LXP work. If an organisation cannot tolerate knowing that people who use lived experience in their work are going to take the issues raised by service users into the heart of the >
9/ organisation and keep them alive in the meetings and discussions that happen when they go home from the involvement days with tea, biscuits and smiles - then they should not be trusted with either this work or developing systems where #LXP staff are employed to do it either. >
10/ Something needs to happen where external #LXP led agencies work with NHS trusts and ensure that things are done effectively, and report them if they aren’t. Millions of pounds of ‘participatory’ funds are being used to pay non-LXP staff in posts they keep developing for >
11/ themselves to manage #LXP staff or do LXP work, whilst creating Band 2/3 Peer Support Worker roles. It isn’t ok. There’s no accountability presently. We need @NHSEngland to start thinking about how this is done. Feel free to add your own ideas, thoughts & comments below *End*
1. Check out this great thread. Here is my own experience in this area. I have an MSc in working effectively with people diagnosed with ‘personality disorder’. This includes service design & critically using various models to inform this, ie. all systems analysis, org change >
2. group theory etc AS WELL AS ensuring needs of SUs met first. Studying as an LXP was f* hard because there was the need to constantly critique this through an experiential lens rather than the tried & tested other disciplines who have loads of academic resources to rely on. >
3. We also had to factor in issues such as the contested and western lens diagnosis designed by people from a certain demographic, how it impacted on people on end users from another demographic and intersectionality. We had to justify our positions academically and demonstrate >
This. I am diagnosed with various labels that mean I face stigma in services I access. My job is to use the insight from that to improve those services. The problem is, I face stigma in my job because of those diagnoses too. In order to mitigate the stigma, I got a >
> Masters Degree in the job I work in to so that there would be no excuse for non Lived Experience staff to continue to make decisions in how to co-produce services. Like @keirangoddard1’s question in his thread, this was treated as an obstruction to the status quo, a threat >
> something to be silenced and shown the door. Non LXP staff have ensured that future co-production will not be developed by specialist LXP staff trained in the areas of mental health they work in, as well as being trained >
PLS RT: Does anyone know of any #LXP (Lived Experience Professional roles ie. Peer Support Workers, Lived Experience Researchers) that have reached Employment Tribunal stage for Disability Discrimination in the UK? All I’ve heard of reach settlement before court stage #MadTwitter
Employment & Equality of #LXP’s is something that I’m trying to build understanding of because presently it is disparate and isolated by employer or even employee. I hadn’t realised til recently that there have been quite a few Tribunal applications >
> for discrimination at work, however all I have heard of where settled prior to court. I can’t find any examples of one going to Employment Tribunal Court. I’d really appreciate if people could put this out there so I can discover & collate any examples. They will be of great >
Doing a Daisy 🐈 all day today. It’s been the morn/afternoon/eve after one of the crazier NYEs in my life. But every New Years Day is a reminder of Mum. 21y, but still remembering today. The shock of learning that #Epilepsy kills. She never made a big deal/complained about it 💜>
2/ Apart from a disabled rail pass she never really seemed ill. She somehow managed 4 very strong minded kids and a difficult life. Her life got more and more difficult as her life went on and her last 7 years were very sad indeed, she was physically very disabled & very unhappy
3/ That’s the saddest thing I remember. Her being sad and having had such a shitty life, especially at the end. I think of her as a very loving Mum who was a real homemaker and an incredible cook. She could could anything. Whip up meals for a family of six out of leftovers. >
1.Lots of feelings today. I’m in the middle of trying to officially get discrimination and inequality recognised. It’s really hard. I’m so fucking tired and sad. I want to fast forward to an open court where I get to say what’s happened and it’s done & over whether I win or not >
2. I’d have been happy with a systems change that would have addressed inequality. Most people can’t cope with how awful this process is and you never hear about other Lived Experience Professionals (Researchers, Peer Workers etc) who have raised grievances because >
3. organisations often give a settlement payment to keep it from going to tribunal. I don’t think anyone could offer me a big enough sum to do that. It would need to be so big they’d never, ever do that again to anybody because they couldn’t afford to. >
1. Back when I was diagnosed with EUPD in 2005 I did the usual Google thing & found @Quora. I’ve never bothered unsubscribing & I keep getting email bulletins with Q&As from people who detest ‘toxic Borderlines’ and are rampant Royalists. Yet I STILL haven’t unsubscribed >
2. It winds the everlasting f* out of me, I get torn between responding to the worst of the bile & misinformation posted (bad idea: too much energy), to unsubscribe (good idea💡) or to observe occasionally (brave: a step outside my personal social media echo chamber) >
3. It’s also a reminder that even for most of the differences of opinions on Personality Disorder/‘Personality Disorder’/Trauma & it’s treatments, most of the people (clinicians/non-clinicians) taking part in these conversations care enough to do so, whether we agree or disagree>