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Blood Cancer UK Profile picture
@bloodcancer_uk
Feb 15, 2022 • 8 tweets • 4 min read • Read on X
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🩸 We were started in 1960 by a family who lost their 6-year-old daughter to leukaemiaand so funding research into childhood blood cancer has always been a key part of our work.

🔬So this International #ChildhoodCancerDay we wanted to share just how far our research has come...
🎉 Improvements to blood cancer treatments now mean 89% of children survive leukaemia and lymphoma, up from 79% 20 years ago!

🤗This means that 700 more children and young people survived blood cancer who wouldn’t have done if the survival rate had stayed the same. #ICCD2022
🙌The improvement in childhood leukaemia survival has been amazing, and we are so proud of the role our research has played in helping improve treatments for childhood leukaemia...
Let's talk about the minimal residual disease (MRD) test: one of the biggest #cancer breakthroughs of the last 30 years.

🔎 In the 1990s we funded 2 researchers who developed a method for detecting cancer cells that are left behind in the blood or bone marrow after #treatment
💊 The MRD test is now used worldwide as the gold standard for assessing responses to treatment, and helps #doctors to make sure each child gets the right strength of treatment for their disease.
👶 But in some types of leukaemia for babies aged under 1, the survival rate is still tragically low.

🔬 That’s why we’re funding Professor Katrin Ottersbach at the University of Edinburgh to try to find out more about why leukaemia develops in babies...
... "The overall goal of our research is to discover and develop new treatments that specifically benefit these really vulnerable young children and that are kinder and that improve their survival." - Katrin
If you would like to see kinder treatments developed for more children this #ICCD2022, please consider making a donation towards research like Katrin's.

Because research will beat blood cancer❤️
bloodcancer.org.uk/get-involved/w…

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More from @bloodcancer_uk

Blood Cancer UK Profile picture
Apr 2, 2022
⚠️As infection levels in the UK continue to rise, we want to reiterate exactly what you need to do if you're immunosuppressed and think you have Covid.

It's important to act quickly so you're able to access the new antiviral and antibody treatments available to you 👇
First, confirm your diagnosis using a Government-supplied lateral flow or PCR test immediately.

Immunosuppressed people should all be sent a pack of lateral flow tests, but if you don't have any you can order more here if you're eligible:

gov.uk/order-coronavi…
You should inform your GP and hospital team immediately if you test positive for Covid, and you should receive an assessment call from the NHS within 24 hours.

If you don't receive a call, make sure you follow up.
Read 6 tweets
Blood Cancer UK Profile picture
Mar 31, 2022
It's #MyelomaAwarenessMonth & we're going to share some facts about #myeloma

First things first... what is #myeloma?

Myeloma is a type of #bloodcancer that affects plasma cells in the bone marrow.

Keep reading to find out more & help us educate others by giving us a RT

1/6
Did you know...

That the acronym 'CRAB' is used to remember the common symptoms of #myeloma?

Each letter of CRAB stands for something that causes the symptoms of myeloma.

Find out what they are 👇
2/6
'C' stands for too much calcium in the blood, and it can cause people to:

🤮 Feel sick
❌Have a low appetite
🧻 Have difficulty pooing
🚽 Need to wee more often
🥤 Feel thirsty
🥱Have a lack of energy
😵‍💫Feel confused

#MyelomaAwarenessMonth 3/6
Read 6 tweets
Blood Cancer UK Profile picture
Mar 30, 2022
This month @sajidjavid assured Parliament that immunocompromised people in England would continue to get free asymptomatic Covid tests.

But last night, the Govt announced the immunocompromised would only get tests to use if they have symptoms. 🧵(1/6)
We’re disappointed the Govt has changed its mind on this.

Without asymptomatic testing, immunocompromised people can’t get an early warning if they think they may have been exposed to Covid. (2/6)
It’s also disappointing the Govt won’t provide free tests for close contacts of the immunocompromised.

With the infection rate very high, getting close contacts of immunocompromised people to test before they meet them is an important way of protecting them (3/6)
Read 6 tweets
Blood Cancer UK Profile picture
Feb 15, 2022
NEW: Next week, the Government will announce its 'Plan for Living with Covid-19' in England🧵...
Around 500,000 people in the UK are immunosuppressed, including people living with blood cancer and stem cell transplant patients.

Many do not get the same level of protection from the COVID-19 vaccines as everyone else.
Today, with 17 other charities, we're calling for 5 key tests that the plan must meet to give immunosuppressed people the confidence and support they need to live with COVID-19. Image
Read 6 tweets
Blood Cancer UK Profile picture
Feb 9, 2022
We’re concerned the Government have announced plans to bring forward the scrapping of isolation rules in England and know how much anxiety and anger it will cause for people in our community.

🧵1/5
We’re yet to see the Government set out their plan describing how the country will learn to live with Covid, specifically how people with blood cancer and others who are immunocompromised will be able to return to a normal life.

2/5
That plan must include additional support for our community including employment support & making it as easy as possible to access vital Covid treatments.

Ministers also need to ensure the public know that there are 500,000 in the UK for whom the vaccine is less effective..

3/5
Read 5 tweets
Blood Cancer UK Profile picture
Feb 8, 2022
This is the news we like to hear! 🙌 🎉

Two people with leukemia who were first to receive CAR-T cell therapy remain “cured” after 10 years. ❤️
...Since then, this treatment has been approved in the UK for some people with leukaemia and types of lymphoma. It is also currently being looked at as a potential treatment for people with myeloma too 🩸
Thanks to your kind donations, we’re able to fund dedicated researchers like Professor Waseem Quasim's work aims to create a more universal CAR-T cell therapy. His research could lead to people with other blood cancers benefiting from this treatment in the future.
Read 4 tweets

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