Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture
Feb 21, 2022 β€’ 32 tweets β€’ 13 min read β€’ Read on X
πŸ“£ What today's announcement means to us? 🧡

This account gives an anonymous voice to Clinically Vulnerable people in our support group on Facebook.

Threats now to:
Lives, jobs, freedoms + safe access to schooling & healthcare.

Join us for support πŸ‘‡
facebook.com/groups/6185063…
1/
This thread aims to share our members thoughts, each struggling with the broad and significant impacts of the announcement to be made today by Boris Johnson in the HoC.

2/ Freedom for some is being granted at the expense of freedom
"End of any freedom with covid has now been stolen for the vulnerable."

"The mental health of my children going to school will now spiral downwards uncontrollably."

3/ Our death sentence from Covid has now been set.
What will happen to our children?

"End of any freedom for our teenagers to live 'normal' lives."

"My child will be sat in class wondering if her peers will infect her, when she's at highest risk of death from Covid."

4/ My immunosuppressed son has at least been able to meet a few
"It is disgusting when I’m told to check my child for nits, yet being CEV myself with a CV child in Primary I’m not told of covid cases but the Govt thinks its ok to spread covid to kids repeatedly [.].Why is covid not mentioned on this school infectious disease control list?"
5/
Many have been forced out of unsafe schools already. @halfon4harlowMP 's so called "Ghost Children" offensive terminology given some may die.

"This means we may likely deregister children from school to protect a CEV family member. Schools aren’t safe. This is unfair."

6/
Don't forget the teachers!
Told not to wear masks. Surrounded by infected children.

"As a teacher with blood cancer I will risk my life every time I step in the classroom."

"As a dedicated Headteacher of a primary school I feel let down and marginalised."

7/
"My life now depends on other people doing the right thing- so terrifying. CEV teacher, Mum and wife."

It is not much to ask
#Testing
#MasksInSchool😷
#HEPAπŸ’¨
(which will pay for itself by reducing sick days)

8/
Forcing people to return to work F2F is meaning people who can contribute to society are choosing between 'lives & livelihoods'.

"My hubby will be forced back to the office, while I will probably have to isolate in a room to keep myself safe this is not freedom for all."

9/ Pre covid I was a valuable, working member of society living
"I have incurable cancer, kept stable by immunosuppressant drugs; I am well enough to work and play an active role in society but how can I once all the measures that help me protect myself against covid are gone?"

10/ I’ve already had to give my job up as a Teaching Assistant
"I didnt feel safe so resigned from Education. Now have to count the pennies to keep us afloat."

"It feels like all hope of rejoining society is gone now (age 47, immunosuppressed mum, worked and lived a typical, active life pre COVID)."

11/ "This forces me to choose between maintaining life and
Safe access to *not just schools* but anything including vital healthcare will be essentially denied.

"It will be totally impossible to safely receive: eye tests, dental treatment, medical care, vaccines & essential home repairs after β€˜Freedom Day’."

12/ It means being isolated from life. It means only attending t
"I’m left weighing up whether it’s more dangerous to miss my medical appointments and blood tests for my chronic condition, or to attend them?"

"No chance of a near normal life for me now, stay at home indefinitely just to stay alive."

13/
"This terrible decision makes everyone's life more dangerous. It will make my life and other CEV peoples lives smaller, more stressful and for some, unnecessarily, much shorter."

14/ Freedom for some is being granted at the expense of freedom
"Well I'd better plan my own funeral as I will no longer be safe anywhere; CEV is not a choice."

"Sickness absence management policies will mean people with covid DO go to work and WILL pass it on to others, it is much more than a respiratory disease"

15/ "living with COVID" should mean maintaining mitiga
Facing a constant and unending threat to life impacts on mental health for children and adults in affected households. People are dealing with the breakdown of relationships, self harm & suicidal thoughts.

"Samaritans on speed dial."

16/
We need 'reasonable adjustments' or mentally how do we square this circle?1

"As a immunosuppressed parent I’m now facing the choice of curtailing my young daughter’s life indefinitely or continuously risking my own. These are avoidable choices noone should have to make."

17/
People don't know where to turn.

18/
If we go anywhere we must wear masks. This is about 'Social Responsibility' NOT 'Personal Responsibility'.
"I'm wearing my mask to protect *you*."
#WearAMask😷

19/
"Where’s the evidence to support this, is it so difficult to wear a mask in crowded indoor places, on public transport and stay at home if you have Covid?"

20/ Look at what they’re doing to people with this flagrant la
"Maintaining simple measures against Covid 19 won’t impact the majority but could literally mean the difference between life and death to millions of CEV people. Why don’t we matter enough? Protect the most vulnerable in society!"

21/
"What do the scientists say? I thought we were 'Following the Science'?"

"This terrible decision makes everyone's life more dangerous. It will make my life[.] shorter [and] more stressful [.]."

"This will make our family feel even more like collateral damage."

22/ Why does wearing masks stop us opening up the economy, savin
Transplant patients carry a precious gift.

"This approach makes a mockery of Max and Keira's organ donation law that we fought so hard for. The second chance of life gifted to transplant recipients will be placed in jeopardy.

Callous, careless & cavalier!"

23/
Antivirals πŸ’Š should be offered to ALL Clinically Vulnerable & elderly patients but only 50% can access these via the Panoramic Trial.

We see this as 'health rationing' since they are already proven.

Immunosuppressed who do qualify struggle to access.
24/
I'm clinically vulnerable at risk of death, why can't I have 100% assurance that I can get life saving antivirals if you insist on putting my life at risk by removing protective measures?"

25/

Everyone knows and loves ❀️ an elderly or Clinically Vulnerable person. Vulnerabilities can strike at any time & Covid is causing them.

"You could be diagnosed with cancer tomorrow & require chemo. You’d be told to avoid infections. Would these rules sit ok with you then?"

26/
Covid is a novel virus. We are still learning so much about it.

We don't want more Clinically Vulnerable people.

We don't want more @LongCovidKids or @LongCovidSOS adults.

Multiple infections are a growing concern.

27/

We need a plan.

To plan for nothing is a nothing of a plan.

So we must with engage with our world class scientists. We are 2 years into the pandemic (yes, it is a pandemic still - ask the @WHO) need a sustainable long term response.

28/

Instead @BorisJohnson frames protections preventing infection & long term damage as "restrictions".
"Restrictions pose a heavy toll on our economy our society, our mental wellbeing & on the life chances of our children."

The Vulnerable have lost the most of all of the above.
29/
Bereaved Families @CovidJusticeUK have and lost loved ones. We fear that their group will continue to grow at a faster rate.

This simply isn't "Learning to Live with Covid" it is shortsighted and will undermine authority in any future effort to respond to new variants.

30/
So we ask for compassion, understanding and the support from the people of Britain.

Please stand with us against removing *protections* which have allowed vulnerable people a small taste of freedom these past months.

It is not acceptable to lock us up indefinitely.

END/

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More from @cv_cev

Jan 21
🚨Dame Kate Bingham🚨
Dubbed the "hero in a pink jacket πŸ’•"

On Evusheld:
"I felt very strongly [.]. We were following a very clear 2 tier strategy where the CV immunocompromised were being deprioritised [.] I felt that was *manifestly* wrong both ethically and morally [.]"
1/🧡
The above video was taken out of sequence. The below should give more context...

KB "So actually, the first goal was around protecting the UK population."

CTI [Hugo Keith KC]
"Do you think you succeeded on securing or making available those monoclonal antibodies?"

KB "No!"
2/
Kate goes on to make the argument that by not protecting this population, we were also promoting viral mutation and the evolution of variants.

3/
Read 23 tweets
Jan 17
πŸ’₯Clinically Vulnerable Families πŸ’₯

Yesterday, @lara_wong, took the stand as founder and leader of CVF.
**Sorry for the delay!**

- New risks posed by Covid-19
- We need to be recognised as an equality group.

1/ FOLLOW THIS THREAD
Clinically Vulnerable people were, and are still, being let down.

2/
The lack of infection prevention and control in vaccination centres for an airborne virus was very concerning.

3/
Read 21 tweets
Dec 28, 2024
πŸ’Š Important 🧡 - 'flu antivirals πŸ’Š

Here’s a quick thread on what you need to know about accessing antivirals for treatment and prevention in the UK.

1/ Image
When are antivirals recommended?

Antivirals are advised for:
πŸ’™πŸ’œπŸ’— High-risk groups (see list below)
πŸ₯ People with severe symptoms or those hospitalised.

Early action is vital!

2/ Risk factors for complicated influenza  These include:  neurological, hepatic, renal, pulmonary and chronic cardiac disease  diabetes mellitus  severe immunosuppression  age over 65 years  pregnancy (including up to 2 weeks post-partum)  children under 6 months of age  morbid obesity (BMI β‰₯40)
The 'severe immunosuppression' group is different again, but this list is "not comprehensive".

If you think you may qualify as Clinically Vulnerable to 'flu, it is always worth asking.

3/ 5. Severe immunosuppression  Examples of severe immunosuppression relevant to this guidance are given below. Degrees of immunosuppression are difficult to quantify and individual variation exists, therefore this list is not comprehensive. Examples of severe immunosuppression include:  severe primary immunodeficiency  current or recent (within 6 months) chemotherapy or radiotherapy for malignancy.  solid organ transplant recipients on immunosuppressive therapy  bone marrow transplant recipients currently receiving immunosuppressive treatment, or within 12 months of receiving immunosuppressio...
Read 8 tweets
Nov 27, 2024
🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/
"Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
πŸ›‘Shielding

CEV people are a diverse group with varied personal circumstances.

It provided a passport:
🏠 Right to work from home
πŸ’· SSP entitlement
🚚 Food & medicine deliveries
πŸ’‰ Priority vaccine access

3/
Read 28 tweets
Nov 27, 2024
🚨 British Medical Association - closing

"aging estates meant that infection control measures could not always be fully implemented."
- Large open bays
- Inability to distance
- Lack of side rooms for isolating patients
- Lack of ventilation

1/
"The inquiry proceedings have laid bare the catastrophic consequences that are destined to be repeated without fundamental change."

2/
"healthcare workers were at higher risk of contracting Covid-19."

"The Health and Safety Executive [failed] to challenge adequacy of the IPC guidance, to act on concerns raised by [the BMA], and to ensure that employers compied with their health and safety responsibilities."

3/
Read 10 tweets
Nov 26, 2024
🚨 @cymru_inquiry Covid Bereaved🏴󠁧󠁒󠁷󠁬󠁳󠁿
Anne-Louise Marsh-Rees, Co-Leader.
Great witness!

🩺Symptoms were unclear
πŸ›‘Shielding comm confusing
⛔️Protect the NHS

Please do look at this whole 🧡
1/
No communication with the people who were affected. They have had to work hard to lobby for changes.

2/
IPC guidelines weren't questioned when there was outbreak after outbreak.

Traffic lighting of wards for Covid+ patients and non Covid+ not adhered to.

3/
Read 7 tweets

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