πŸ“£ What today's announcement means to us? 🧡

This account gives an anonymous voice to Clinically Vulnerable people in our support group on Facebook.

Threats now to:
Lives, jobs, freedoms + safe access to schooling & healthcare.

Join us for support πŸ‘‡
facebook.com/groups/6185063…
1/
This thread aims to share our members thoughts, each struggling with the broad and significant impacts of the announcement to be made today by Boris Johnson in the HoC.

2/ Freedom for some is being granted at the expense of freedom
"End of any freedom with covid has now been stolen for the vulnerable."

"The mental health of my children going to school will now spiral downwards uncontrollably."

3/ Our death sentence from Covid has now been set.
What will happen to our children?

"End of any freedom for our teenagers to live 'normal' lives."

"My child will be sat in class wondering if her peers will infect her, when she's at highest risk of death from Covid."

4/ My immunosuppressed son has at least been able to meet a few
"It is disgusting when I’m told to check my child for nits, yet being CEV myself with a CV child in Primary I’m not told of covid cases but the Govt thinks its ok to spread covid to kids repeatedly [.].Why is covid not mentioned on this school infectious disease control list?"
5/
Many have been forced out of unsafe schools already. @halfon4harlowMP 's so called "Ghost Children" offensive terminology given some may die.

"This means we may likely deregister children from school to protect a CEV family member. Schools aren’t safe. This is unfair."

6/
Don't forget the teachers!
Told not to wear masks. Surrounded by infected children.

"As a teacher with blood cancer I will risk my life every time I step in the classroom."

"As a dedicated Headteacher of a primary school I feel let down and marginalised."

7/
"My life now depends on other people doing the right thing- so terrifying. CEV teacher, Mum and wife."

It is not much to ask
#Testing
#MasksInSchool😷
#HEPAπŸ’¨
(which will pay for itself by reducing sick days)

8/
Forcing people to return to work F2F is meaning people who can contribute to society are choosing between 'lives & livelihoods'.

"My hubby will be forced back to the office, while I will probably have to isolate in a room to keep myself safe this is not freedom for all."

9/ Pre covid I was a valuable, working member of society living
"I have incurable cancer, kept stable by immunosuppressant drugs; I am well enough to work and play an active role in society but how can I once all the measures that help me protect myself against covid are gone?"

10/ I’ve already had to give my job up as a Teaching Assistant
"I didnt feel safe so resigned from Education. Now have to count the pennies to keep us afloat."

"It feels like all hope of rejoining society is gone now (age 47, immunosuppressed mum, worked and lived a typical, active life pre COVID)."

11/ "This forces me to choose between maintaining life and
Safe access to *not just schools* but anything including vital healthcare will be essentially denied.

"It will be totally impossible to safely receive: eye tests, dental treatment, medical care, vaccines & essential home repairs after β€˜Freedom Day’."

12/ It means being isolated from life. It means only attending t
"I’m left weighing up whether it’s more dangerous to miss my medical appointments and blood tests for my chronic condition, or to attend them?"

"No chance of a near normal life for me now, stay at home indefinitely just to stay alive."

13/
"This terrible decision makes everyone's life more dangerous. It will make my life and other CEV peoples lives smaller, more stressful and for some, unnecessarily, much shorter."

14/ Freedom for some is being granted at the expense of freedom
"Well I'd better plan my own funeral as I will no longer be safe anywhere; CEV is not a choice."

"Sickness absence management policies will mean people with covid DO go to work and WILL pass it on to others, it is much more than a respiratory disease"

15/ "living with COVID" should mean maintaining mitiga
Facing a constant and unending threat to life impacts on mental health for children and adults in affected households. People are dealing with the breakdown of relationships, self harm & suicidal thoughts.

"Samaritans on speed dial."

16/
We need 'reasonable adjustments' or mentally how do we square this circle?1

"As a immunosuppressed parent I’m now facing the choice of curtailing my young daughter’s life indefinitely or continuously risking my own. These are avoidable choices noone should have to make."

17/
People don't know where to turn.

18/
If we go anywhere we must wear masks. This is about 'Social Responsibility' NOT 'Personal Responsibility'.
"I'm wearing my mask to protect *you*."
#WearAMask😷

19/
"Where’s the evidence to support this, is it so difficult to wear a mask in crowded indoor places, on public transport and stay at home if you have Covid?"

20/ Look at what they’re doing to people with this flagrant la
"Maintaining simple measures against Covid 19 won’t impact the majority but could literally mean the difference between life and death to millions of CEV people. Why don’t we matter enough? Protect the most vulnerable in society!"

21/
"What do the scientists say? I thought we were 'Following the Science'?"

"This terrible decision makes everyone's life more dangerous. It will make my life[.] shorter [and] more stressful [.]."

"This will make our family feel even more like collateral damage."

22/ Why does wearing masks stop us opening up the economy, savin
Transplant patients carry a precious gift.

"This approach makes a mockery of Max and Keira's organ donation law that we fought so hard for. The second chance of life gifted to transplant recipients will be placed in jeopardy.

Callous, careless & cavalier!"

23/
Antivirals πŸ’Š should be offered to ALL Clinically Vulnerable & elderly patients but only 50% can access these via the Panoramic Trial.

We see this as 'health rationing' since they are already proven.

Immunosuppressed who do qualify struggle to access.
24/
I'm clinically vulnerable at risk of death, why can't I have 100% assurance that I can get life saving antivirals if you insist on putting my life at risk by removing protective measures?"

25/

Everyone knows and loves ❀️ an elderly or Clinically Vulnerable person. Vulnerabilities can strike at any time & Covid is causing them.

"You could be diagnosed with cancer tomorrow & require chemo. You’d be told to avoid infections. Would these rules sit ok with you then?"

26/
Covid is a novel virus. We are still learning so much about it.

We don't want more Clinically Vulnerable people.

We don't want more @LongCovidKids or @LongCovidSOS adults.

Multiple infections are a growing concern.

27/

We need a plan.

To plan for nothing is a nothing of a plan.

So we must with engage with our world class scientists. We are 2 years into the pandemic (yes, it is a pandemic still - ask the @WHO) need a sustainable long term response.

28/

Instead @BorisJohnson frames protections preventing infection & long term damage as "restrictions".
"Restrictions pose a heavy toll on our economy our society, our mental wellbeing & on the life chances of our children."

The Vulnerable have lost the most of all of the above.
29/
Bereaved Families @CovidJusticeUK have and lost loved ones. We fear that their group will continue to grow at a faster rate.

This simply isn't "Learning to Live with Covid" it is shortsighted and will undermine authority in any future effort to respond to new variants.

30/
So we ask for compassion, understanding and the support from the people of Britain.

Please stand with us against removing *protections* which have allowed vulnerable people a small taste of freedom these past months.

It is not acceptable to lock us up indefinitely.

END/

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More from @cv_cev

Feb 19
Ultimate Freedom Day is forcing the most vulnerable into impossible situations.

How can we #StaySafe?
No testing. No isolating.

How can we judge our risks?
No ONS data, no government data.

How can we even access healthcare?
No masks.

1/

news.sky.com/story/covid-se…
With no masks and no isolating how can forced return to F2F work be viable in these circumstances?
We are choosing between #LivesAndLivelihoods

How can we send our children to school safely?
We are choosing between #educationANDlives

2/
Why is the answer ONLY more vaccines?
Severely immunosuppressed may not have made a response to 4.

Where is the real world evidence this will make a difference?
No other country is offering 5 doses.

What about the other CV / CEV?
Vaccines waning.

3/
independent.co.uk/news/health/co…
Read 8 tweets
Nov 23, 2021
Nadhim Zahawi has written to School leaders.

Focus = attendance

This is particularly concerning attendance targets are already driving many headteachers to threaten vulnerable households with fines and prosecutions.

1/

content.govdelivery.com/attachments/UK…
He emphasises the fact that schools must not use the following mitigations: bubbles or isolation of contacts.

Whilst insisting on the need to improve attendance "maximising school attendance a top priority" in a #Pandemic.

2/
Next, something we have been pushing for (if only it wasn't in that same paragraph demanding attendance). An acceptance that vulnerable children have been impacted more than others. * although no mention of children in vulnerable households.

3/
Read 19 tweets
Aug 25, 2021
🧡A letter, signed by Prof Jennifer Harries OBE, has informed parents of Clinically Extremely Vulnerable children that they are not CEV anymore.

Even being identified as needing a vaccine isn't a reason to shield.

NB/ Many (12-15) have still not received a first dose yet. 1/
Seeking to reassure parents
"Recent clinical studies have shown that children & young people are at very low risk of serious illness if they catch the virus. We are pleased to let you know that your child is therefore no longer considered to be clinically extremely vulnerable" 2/
...before the big blow...

"It is important that your child continues to attend their school or other educational settings."

* With a caveat that actually maybe your child is still CEV and "will still have to isolate or reduce their social contact".

3/
Read 9 tweets
Aug 24, 2021
With no

#vax4kids
#MasksInSchool
T&T billions supporting in-school contact tracing
HEPA
Quarantine of those taking PCRs
OR of households with +ves
Updates on Delta symptoms
Reductions in class sizes

How can CV/CEV households keep safe exposed by schools?

We need #SAFESCHOOLS
Families are in impossible situations.

We don't want to withdraw our kids and deny them formal education. We want our human rights to be conserved #educationANDlives.

#RemoteEd - extended to those isolating denied to those with households at risk.

What choices do we have?
If we take any days off we face fines, prosecutions and social services. Blunt tools aimed at those taking term-time holidays or school refusers.

Last school year, families had to battle for lives.

Even when attendance *wasn't* compulsory our members were receiving threats.
Read 9 tweets
Jul 21, 2021
There is evidence LEA's are planning to withdraw school places from Vulnerable families (again).

Some schools had been supportive.

Others had allowed people to remain On-Roll but not given resources.

Whilst many families were threatened with fines/prosecution/child services.
Education is a HUMAN right.

Life is a HUMAN right.

These are continuing to remain in conflict *for ALL vulnerable CV/CEV families* as we are generating further vaccine escape.

That is *why* CV & CEV will be offered boosters in the Autumn.

2/
Children in exam years will lose their rights to vital qualifications.

This is what will happen if your child stays at home to learn next year:

3/
Read 15 tweets
Jul 19, 2021
Nadhim Zahawi announced:

"The JCVI recommends vaccines for children 12-15 who have severe neurodisabilities, Down's Syndrome immunosuppression and profound or multiple learning disabilities."

1/
"The JCVI advice also recommends offering the vaccine to children and young people aged 12-17 who live with someone who is immunosuppressed."

2/
Whilst this is a start and we welcome the offering of vaccines to these children to protect incredibly vulnerable families, we feel this does not go far enough.

CV/CEV households all need #vax4kids urgently. We don't understand the risks posed by all of these vulnerabilities.
3/
Read 4 tweets

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