1/5 For anyone who wonders what severe ME looks like, this is how I have spent 90% of every day for the last 10 years. It is a living hell. It is incredibly common, and incredibly severe, but is ignored by society and by medicine. #MECFS #Chronicillness 
2/4 ME is twice as common as MS and just as severe according to the NICE guidelines issued to GPs. However, doctors receive almost no training whatsoever about ME. The funding is pitiful, merely a fraction of other chronic diseases.
3/5 ME causes more ‘functional severity’, and has a higher score on the DALY chart (disability adjusted for lost years) than any other disease. Immunologist Nancy Klimas once said ‘I have spent my entire career researching AIDS and ME. Given the choice I would rather have AIDS.’
4/5 Post viral illnesses have been around as long as viruses, but are more important now than ever before because of the pandemic. It is estimated that 2% of the population are suffering from #LongCovid symptoms. Most will recover but some will remain chronically ill for life.
5/5 Funding must improve. Education for doctors must improve. But we must begin with simply raising awareness amongst the general population. You can help by sharing this post.
If you want to make a donation please visit meresearch.org.uk or actionforme.org.uk
If you want to make a donation please visit meresearch.org.uk or actionforme.org.uk
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