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Lucibee 🌻 Profile picture
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Mar 3 • 8 tweets • 4 min read
That’s a substantial leap… 😳 #LongCovid
Bar chart of #LongCovid symptom duration
Estimated number of people living with LC symptoms (1000s) Image
Latest #LongCovid data estimates from @ONS
Bar chart of #LongCovid symptom duration (ONS)
Estimated number of people living with LC symptoms (1000s) up to 5 March 2022
[NB - this will include those infected up to 5 Feb 2022] Image
Note also that this *won't* include those infected in the most recent omicron wave (BA.2) in the UK - which is at least 10 million people (possibly up to 20 million).
Any LC symptoms will take another couple of months to filter through to this dataset.
ONS have now included more time splits on the longer term data.

784,000 estimated to have #LongCovid for >1 year, includes:
360,000 for 12-18 months,
350,000 for 18-24 months,
74,000 for more than 24 months (2 years)

#CountLongCovid #TreatLongCovid
Concerning that, if we look back to the first dataset (Mar 21), 70,000 were estimated to have had LC symptoms for >1 year.
Now (1 year on) a very similar estimate (74,000) for >2 years.
Does this mean that those who still have symptoms at 1 year will still have them at 2 years?
Better indications from the rate of increase of the blue bar.
Start of omicron wave (Jan to Mar 22) looks slower than delta (Aug to Oct 21) despite much higher case nos.
Vaccination is doing a lot. 🤞

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More from @_Lucibee

Lucibee 🌻 Profile picture
Feb 10
This is a really important paper that goes a long way to explaining how diseases such as ME/CFS and #LongCovid might arise after viral infection.
I'll attempt a few lay explainers in this thread 🧵
In this article, Prusty explains how unstable and not-the-usual peptides generated from usually hidden locations on the cell or viral genome can be mistaken for foreign viral antigens and lead to immune attack, even though they look like part of the host.
In the rush to present foreign antigens to the immune system, unstable proteins produced by the cell that would normally degrade without causing issues, are presented on the cell surface and trigger an immune response from CD8 cells
Read 9 tweets
Lucibee 🌻 Profile picture
Feb 7
#LongCovid featured on @ITVCymruWales Sharp End tonight.
@Eluned_Morgan said she had met with pwLC last week, and they had all said that the service they receive from the LC service was excellent.
She doesn't believe any "anecdotal reports" that they are not.
@LongCovidWales
@ITVCymruWales @Eluned_Morgan @LongCovidWales "We are following NICE guidance..."

Errr... how is NOT having multidisciplinary centres following NICE guidance? Image
Good article on #LongCovid on BBC Wales News and website, but shame about the title(s)
(article title: Long Covid: 'My shame over 18-month work absence'
embed title: Long Covid: Brain fog causes work absence but swimming helps)
bbc.co.uk/news/uk-wales-…
Read 10 tweets
Lucibee 🌻 Profile picture
Jan 29
I hope Prof Reicher won't mind if I try to explore this further, because this is one of the things that has been so problematic (and toxic) in discussions around ME/CFS.
The problem here is that this has been weaponised by certain people to imply that it is those with ME who are doing the demeaning, by complaining that they have been told that it is "only in their mind".
It is the implication that is incorrect. Because those making the complaint are not demeaning mental health conditions, but are complaining about a misdiagnosis that means they will not be treated appropriately.
Read 19 tweets
Lucibee 🌻 Profile picture
Jan 28
"Reassuring news" from a study that seems to make the same errors that other "reassuring" studies have made.
Not reassuring to those #LongCovidKids who've had #LongCovid for getting on for 2 years now
@LongCovidKids @jneill
@LongCovidKids @jneill Screenshot and study link for blockees link.springer.com/article/10.100…
Ooooo. This study is riddled with misclassification bias. It has serious problems. They have done very little to exclude contamination of the controls, other than ask a question about whether kids had tested positive for covid.
Read 9 tweets
Lucibee 🌻 Profile picture
Jan 28
Government have now responded to the school ventilation petition, but seem to fundamentally misunderstand what is being requested.
Are they really that stupid?
@CathNoakes #Ventilate #CovidIsAirborne
petition.parliament.uk/petitions/5952…
They seem to be trying to argue that because air filtration units don't reduce CO2, they are not as good as opening the windows.
But that's a misunderstand of the use of CO2 as a proxy measure.
#CovidIsAirborne
#SafeEdForAll @SafeEdForAll_UK
Read 4 tweets

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