Share this page!

Dr Elisa Perego Profile picture
Twitter logo
Apr 6 • 5 tweets • 8 min read
Thanks @LongDeutschland to let me know #LongCovid is now officially in the German Dictionary too, after other countries like the UK, US, and Italy
We've come a long way
A thought to all patients, advocates, patient-researchers, and allies who have been fighting for recognition 💙
@ClaireHastie1 @preshitorian @LaurieStras @Dr2NisreenAlwan @james__glen @MartaEsperti @LongCovidItalia @apresj20 @apuakoronaan @itsbodypolitic @LongCovidSOS @LongCovidKids @apresj20 @Food_reward @Ra2myl @felicitycallard @Know_HG @Amy_Ant @ahandvanish @CovidSolidarit1 @keyeri
@long_covid @LongCovidAdvoc @selkieO @Doctor_IMF @ShaneyWright #FBLC
@LongCOVIDPhysio @LongCOVIDEurope
@patientled @AthenaAkrami

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Dr Elisa Perego

Dr Elisa Perego Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @elisaperego78

Dr Elisa Perego Profile picture
Apr 7
A great thread by @dgurdasani1 on where we are in terms of pandemic development
I strongly concur vaccination is great, but doesn't necessarily prevent infection, symptomatic disease, severe acute disease, fatal disease, and #LongCovid. We have already the data to show that

🧵
Omicron and sub-lineages have significant immune escape features that may lower, among other things, the efficacy of our vaccines. Immune escape was evident soon after omicron emerged. This was published, for example, in top @Nature in December 2021

nature.com/articles/s4158…
SARS-CoV-2 is still evolving at a fast pace. Actually, evolution seems to have accelerated as the virus spreads rapidly, largely uncontrolled, across the globe. The severity of future variants is unpredictable

nature.com/articles/s4157…
Read 5 tweets
Dr Elisa Perego Profile picture
Apr 7
Covid as a clotting disorder ||
Further evidence SARS-CoV-2 infection increases the risk of thrombotic events and other coagulation-related anomalies in both acute and #LongCovid || a large-scale study based on 2020 and 2021 cohorts

@bmj_latest 🧵

bmj.com/content/377/bm…
The authors report an increase in the risk of deep vein thrombosis, pulmonary embolism and bleeding with covid || risk of coagulation-related abnormalities persist for months after the first weeks of covid ~ as reported by the patient community > #LongCovid
As the authors themselves acknowledge, their data are based on analysis of medical records: it is well possible, thus, that thrombotic phenomena | coagulation problems are more common than reported in their research || spoiler from the #LongCovid patient community: yes! 👇
Read 6 tweets
Dr Elisa Perego Profile picture
Apr 7
SARS-CoV-2 is *very* airborne. Many people don't understand it. Public health officials aren't open about the mode of transmission. Most people have problems in grasping the extent and reality of airborne transmission. Policy makers must be clear about this
#COVIDisAirborne
Even people who understand the importance of masks, do not fully grasp the virus can stay in the air for a while even if the infected person has left. The cigarette smoke analogy is so good. People in position of power (policy, media, politics) should be open about this
Another issue is how fast the virus is at infecting you, even if you stay within with the virus-laden air for a relatively short period. So, we see people, for example, removing masks on flights to eat. Or, sadly, policy makers removing their masks to talk to journalists
Read 4 tweets
Dr Elisa Perego Profile picture
Apr 6
A review of #LongCovid as a thrombotic phenomenon. With discussion of endothelial injury, clotting, tissue hypoxia, lung vascular damage, platelet activation etc. || The authors address the need for early anticoagulant | antiplatelet therapy

🧵

frontiersin.org/articles/10.33…
A little note about patient-led research and the need for appropriate recognition of patient-driven expertise: many issues in the paper have been raised by the #LongCovid community starting already 2 years ago
Here some involved early @MartaEsperti @Longcoviditalia @JasmineHayer @ItsAngInLA @preshitorian | many others too |
@felicitycallard and I tackle some of these stories, and issues around expertise, in a review of patient-led contributions to covid science

osf.io/preprints/soca…
Read 9 tweets
Dr Elisa Perego Profile picture
Apr 6
A positive step forward from the @WhiteHouse and the Biden Administration on addressing #LongCovid. A formal statement is out on 5 April 2022.
I am grateful to the advocates and researchers, including the patient-researchers, who made this possible 💙 🧵

whitehouse.gov/briefing-room/…
I hope this roadmap to study and treat #LongCovid will be highly productive. I hope research will help people suffering from Long Covid to get their lives back. I hope research will be focused on treatment and care, in addition to simply quantifying the disease
I hope any cure, or treatment, or new knowledge, gained from the work envisioned in the roadmap, will be deployed to help marginalised communities, in addition to those with access to high-quality healthcare.

#LongCovid #TreatLongCovid
Read 4 tweets
Dr Elisa Perego Profile picture
Apr 5
I have been doing a little research on eye problems in covid and #LongCovid (on request from a tweep)
I came across reports of eye stroke, micro-emorragies, retinal microvascul injury, and all kind of peculiar damage to the 👁 🔺️ | the most severe cases probably rare but .. 🧵
For example, retinal vein occlusion associated with covid | thrombus in the eye | 59 year old patient | linked by authors to the common, prolonged hypercoagulation state of covid | several weeks from onset

#LongCovid

retinatoday.com/articles/2020-…
Acute ophthalmic artery occlusion in a 48 year-old patient with covid-19 on apixaban 👁

neuroeyeorbit.com/blog/acute-oph…
Read 9 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

Like this author's thread?

Get emails when @elisaperego78 has new unrolls!

Check out other threads from @elisaperego78!

Read all threads by @elisaperego78

:(