Chronically ill culture is having symptoms that would send most people to the ER, then saying "idk maybe it'll go away" and laying on the couch instead. #NEISvoid
Before anyone says this is irresponsible: Most ER docs aren't trained to treat chronic/complex patients so they typically can't help anyway. Also, $$.
This isn't a thread for unsolicited advice, so please don't throw it at people in the replies.
#AcademicTwitter: What are the best ways you've made and/or seen college instructors make courses more accessible?
Some peers asked me for tips so I’ll start with my own, but please add to the list! I’m always looking to learn about more best practices and ideas. 🧵
The biggest tip: 1. Don't wait until a student hands you an accommodations form to start thinking about accessibility.
2. Don't require doctor's notes for absences/makeup exams. They’re expensive and create unnecessary appointments. Just trust your students. If they're lying, it'll catch them someday.
On unsolicited advice for chronically ill folks: Why do we get so upset when you recommend a book, diet, vitamin, exercise, essential oil, tea, meditation, etc?
1. Because it’s condescending. It suggests that we haven’t done our own research, or aren’t smart enough to consider these ideas. (Anyone recommending yoga or veganism, this is for you. It’s not like we haven’t heard of these things.)
2. Because it feels like victim blaming. It insinuates that it’s our choice to be sick because we don’t want to try new ideas, or we’re just too lazy or closed-minded to do so.
(Truly, if our conditions had easy & accessible cures, we wouldn’t be sick!)
This semester my @UUtah Disability & Comm students did Community Activism Projects instead of exams. They identified an issue related to disability and access in their communities, then spent the semester planning and doing something about it.
The projects were AMAZING. 🧵
The only rule was that the projects had to be outward-facing and engage audiences beyond our class, which is why I’m sharing a few here.
There were several more, including some personal/medical ones that I’m not sharing for the sake of privacy, but they were just as awesome.
One duo conducted surveys about disability and access in the U’s Greek Life recruitment practices. They created a detailed report of the results and included research-based recommendations for future practices, which they presented to the U’s Panhellenic Council.
What makes disabled people #HighRiskCOVID19? I'm lesson prepping for next week's lecture on disability justice, so I made a list!
Heads up: Only the 2 items are directly medical. The rest have to do with sociopolitical issues related to ableism.
THREAD. (Please add to it!)
Starting with the obvious: 1. Medically, some disabled people are more likely to die from COVID or have severe cases if infected. Chronic conditions related to immune, respiratory, & cardio systems are major factors here, but this isn't anywhere near a comprehensive list.
2. Disabled people have to work. The choice to "stay home" is a false one for most disabled folks. We have to pay rent, medical bills, food, and other basic living costs. Further, many disabled folks are kept in entry-level positions in "frontline," public-facing (riskier) jobs.
I know many folks are struggling with getting things done these days, but I’ve been more productive since the pandemic began than I ever was before it. Why? Academia has been more accessible than ever to chronically ill grad students.
Without mandated wake up times, evening classes, or extra events to attend, I can work when my body works best—and rest when I need it. Virtual events & conferences also mean I can participate while taking care of my body at home and avoiding flares from travel.
I’ve been able to spend more time reading, writing, & doing teaching prep because I’m not wasting energy managing symptoms that come with typical academic life. Issues like sitting for long periods and forcing my body/mind to work during symptomatic times of day are gone.
THREAD // On forced sterilizations and ICE: This is not new for the US. Especially in closed-door systems like immigration centers, prisons, asylums, institutions for disabled people, etc., it’s a long-standing form of eugenics and social control. Sources below ⤵️