#DelhiHighCourt to shortly hear a plea wherein #AIIMS had sought for release of funds from the Centre for the treatment of children with rare diseases. The central is expected to reply today.
ASG: We are very alive to the sensitivity of the matter. We are not at all considering it adversarial. I have spoken to the Chief Secretary.
ASG: A similar matter was listed before the Karnataka HC, the HC said as an interim measure asking the Central and State to contribute, the matter went to #SupremeCourt . The apex court had passed a speaking order.
ASG: The #SupremeCourt has asked the Karnataka HC to decide the validity of the policy. We received a communication from #Aiims yesterday.
Bench: Now that you say that you have been in touch with Chief Secretary himself, you need to put a measure in place here.
Bench: Now that you say that you have been in touch with Chief Secretary himself, you need to put a measure in place here.
A Doctor from AIIMS is now explaining the nature of therapy that can be administered to children with rare diseases.
ASG says expert committee report needs to be revisited and explained to the court.
Dr. Kabra from AIIMS: We are really working hard to ensure children get treatment.
Court: Our view is not this, some statements were made by anxious parents.
Dr. Kabra from AIIMS: We are really working hard to ensure children get treatment.
Court: Our view is not this, some statements were made by anxious parents.
Dr. Kabra: We have to think of a long term treatment for this Even if treatment is given to children, we are looking to see how we can support these children in the long term.
Dr. Kabra says that for some medicines, short terms effects are known however long time efficacy is not know.
Bench: We are living in strange times now. We did not know the efficacy of many vaccines when they came we still administered them.
Bench: We are living in strange times now. We did not know the efficacy of many vaccines when they came we still administered them.
Bench: Nobody knew what would entail #COVID vaccine right? We were all testing out medicines which would evoke some response. It was like shooting in the dark. #vaccine
ORDER: Heard Ld.Counsels for the petitioners, Amicus and ASG who appears to assist us in this matter. The court has also had the benefit of the presence of Dr.Kabra who has explained the nature of treatment of the diseases. Referring to the chart, Dr. Kabra apprises the court.
It would be appropriate for the institute to further examine the medical records to recommend whether commencement of treatment is likely to yield results. The recommendation maybe placed on records. AIIMS has placed on record a demand for funds for Gaucher. ASG to reply,
Matter adjourned by 4 weeks.
Matter likely to come up June 1, 2022
• • •
Missing some Tweet in this thread? You can try to
force a refresh
