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Long Covid Kids / longcovidkids@bsky.social Profile picture
@LongCovidKids
May 4, 2022 • 7 tweets • 13 min read • Read on X
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Have you seen the #LongCovidKids Padlets?
@padlet is an interactive website/app that provides a visual library of internet links that our team updates as new information emerges.
Think of it as a scrapbook of useful links
Since the start of the pandemic, we have been collating
resources & info to help us improve recognition, support & recovery
We have five Padlets suitable for different audiences;
• Children bit.ly/3DbaR2d
#LongCovidKids #ShineALightOnLongCovid
@FYI_SkyTV @suepeters21 @tes @ihv @earlyyearsontap @LucindaNatDoc @PYL_London
• Young people bit.ly/3IEJOh0

@RCPCHtweets @childcomwales @ChildrensComm @ChildrensCommNZ @SeneddChildren @AppgCoronavirus @fhcappg @NEUnion @NVTweeting @NHSuk @UKHSA @PublicHealthW @childcomwales
#LongCovidKids #ShineALightOnLongCovid
Families bit.ly/36x5xu9

Padlets provide information in one place to improve understanding. You can use the information to raise awareness in schools and with medical professionals.

@GordonBrown #LongCovidKids #ShineALightOnLongCovid
• Schools/education professionals bit.ly/35a2PKr
Find information & signposting
@covid_teachers @paysupplystaff @NASUWT @cyclingkev @NEUnion @NEUSouthWest @nadhimzahawi @educationgovuk @bbceducation @HeadsRoundtable @WorksopHead
#LongCovidKids #LongCovid
• Health and social care professionals bit.ly/3IEKwuG

We will continue to add to our Padlets, please let us know if there is something you think needs to be there and our volunteers will take a look.

@OTforLC @Occ4LifeLtd @mariacaulfield
#LongCovidKids
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More from @LongCovidKids

Long Covid Kids / longcovidkids@bsky.social Profile picture
Oct 23
LCK Closing Subs @covidinquiryuk
Sarah Hannett KC

"failures constitute an ongoing breach of the government's duty to place the best interest of children at the heart of their decision making and to respect the human rights of those children & their families"

#ChildrensRights
4 Points.
1st - The ongoing impact on our clients and their families.
"Our clients' children did not "bounce back" after their COVID infection or reinfection, rather COVID infection led to #PIMS or developed into #LongCovid leading to serious ill heath and disability"
#Children
2nd

"at no point (then or since) has any governmental body warned parents, children or schools about the existence of & risks of #LongCovid - the silence constitutes a public health failure" Cases rising rapidly were accepted as strategic risk.

#ChildrensRights
Read 12 tweets
Long Covid Kids / longcovidkids@bsky.social Profile picture
Oct 9
🧵Understanding How the @covidinquiryuk Handles Questions

We know that many of you are feeling frustrated that some of the key questions we hoped would be asked in the Covid Inquiry haven’t yet been put to witnesses. We completely understand and we share that frustration.
We Image
wanted to explain a bit about how the Inquiry process works, so it’s clearer why this is happening and what we’re doing about it.
The Inquiry is a statutory process, which means it operates under strict legal rules. The questioning of witnesses is led by Counsel to the Inquiry Image
(the Inquiry’s own legal team), under the direction of the Chair, Baroness Hallett. This means that neither core participants nor members of the public can directly ask questions during the hearings unless granted permission. Image
Read 10 tweets
Long Covid Kids / longcovidkids@bsky.social Profile picture
Mar 17
🚨 New: Long Covid services are failing patients.

📊 A joint report from  @long_covid  & @LongCovidKids reveals:
🛑 Clinics are closing.
🛑 Care is inconsistent & often falling short of NHS commissioning guidelines.

Action NOW!

#LongCovid #ClosingClinics bit.ly/3FBNMvaCollage of diverse individuals including adults and children with varied expressions. Text: "Disabled, discharged and disappearing from view" over black background. Long Covid Support and Long Covid Kids charity logos.
🔹 01 - Over half of adults & children with #LongCovid told us they consider themselves #disabled.
Yet services are closing, & care is inconsistent. Long Covid must be recognised as a serious, disabling condition.
🔗
#ClosingClinics bit.ly/3FBNMvaChart shows 55% of adults and 50% of CYP disabled by Long Covid. Text reads: "Levels of disability" and shows the charity logos for Long Covid Support and Long Covid Kids.
🔹 02 - 61% of children & 28% of adults told us they didn’t know Long Covid services existed.
How can people access care if they don’t know it’s available?
📢 We need awareness & proper investment.
Read the report:
🔗

#LongCovid #ClosingClinics bit.ly/3FBNMvaOrange and black graphic titled "Insufficient awareness." Highlights lack of awareness about Long Covid services. Stats: 28% adults, 61% CYP unaware. Shows the logos for Long Covid Support and Long Covid Kids.
Read 12 tweets
Long Covid Kids / longcovidkids@bsky.social Profile picture
Jan 22
‘Compared with the pre-COVID condition, the COVID group had greater severity of inattention, somatic complaints, thought problems, internalizing problems, poor school functions, and interaction problems with their parents in the post-COVID condition’

#LongCovid #LongCovidKids Image
84 children aged 6–16 received assessments within 6 mths after being tested + for 🦠

Parents reported observations 3 months before infection & the most recent 2 wks (post-COVID condition) on a wide range of psychopathologies & social functional impairments

#LongCovidKids Image
Preventing infection in children should be high priority.

Please share this study with those who have the power to protect all children.

@GwynneMP
@wesstreeting
@bphillipsonMP
@educationgovuk

#LongCovidKids #LongCovid #CleanAir #Education

sciencedirect.com/science/articl…Image
Read 4 tweets
Long Covid Kids / longcovidkids@bsky.social Profile picture
Nov 27, 2024
Closing statement from Sarah Hannett KC on Children and Young People 27/11/24.

"Long Covid is a new childhood disease whose prevalence is equivalent to childhood diabetes"

#LongCovid #LongCovidKids #CovidInquiry
One teenager told Every Story Matters that "it's a big identity crisis, my Mum and I were fit active people, I was meant to be beginning pro ballet as a career"
"at a young age difficult a you are finding out who you are, it's an identity I don't want"

#LongCovidKids #LongCovid
"In the UK throughout 2020 there was no information published by @GOVUK stating that children & young people could have any, let alone debilitating symptoms from COVID/LongCovid"
"When families sought assistance for children suffering they were routinely dismissed"
@SammieFMc
Read 9 tweets
Long Covid Kids / longcovidkids@bsky.social Profile picture
Sep 6, 2024
🧵 Module 8 Prelim Hearing @covidinquiryuk @LongCovidKids @LCKScotland
CYP with #LongCovid suffered the double burden of the direct effect of their illness and disability as well as the indirect effects of the pandemic & it's associated measures felt by all CYP
Sarah Hannett KC
Some CYP have lost their lives to COVID-19, many continue to suffer from the life changing, disabling symptoms of #LongCovid

Patients & their families suffer the additional burden & stigma of being disbelieved and disparaged or having symptoms minimised or dismissed as anxiety
We agree with the observations made by the CRO that the Pandemic, & we would add #LongCovid, exacerbated and continues to worsen existing inequalities amongst CYP in terms of, for example social economic status, ethnicity & disability
#LongCovidKids
Read 17 tweets

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