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LymeDisease.org Profile picture
@Lymenews
May 7, 2022 • 5 tweets • 5 min read • Read on X
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Dr. @khoney giving an update on the progress that has been made since 2015 and how @Lyme_X is promoting innovation in Lyme disease diagnostics and treatment.
#LymeDiseaseAwarenessMonth
We at LymeDisease,org and all of you who participated in our survey helped establish the number one research priority for Lyme disease: Better testing. lymedisease.org/top-ten-lyme-p…
The AAAS meeting, bringing patients and other stakeholders together resulted in the recommendation of the Tick-Borne Disease Working Group as part of the Cures Act. @khoney & @aucott_john were the co-chairs of the first TBDWG which led to the Kay Hagan Tick Act. #LymeDisease
Announced today @Lyme_X offering millions of dollars for Lyme diagnostics. If you are a researcher and are working on a diagnostic tool for #LymeDisease check here for details: hhs.gov/about/news/202… #LymeDiseaseAwarenessMonth
There are many ways to get involved @Lyme_X.
If you are a Lyme patient, advocate, academic or industry entrepreneur and have a project or idea go to: lymex.crowdicity.com

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More from @Lymenews

LymeDisease.org Profile picture
Aug 30
In 14 days the California Board of Pharmacy (BOP) could vote to restrict a long list of legal and widely used natural compounds. This discussion and potential vote will take place at their 9/12 public board meeting.
Learn How You Can Help 🧵 1/ Image
1. Sign and share the petition today! (or link in bio)

2. Alert your representatives: Visit to find them. Not in California? No problem. You can still contact Gov. Newsom to defend your California neighbors! 2/change.org/stopthebop
findyourrep.legislature.ca.gov
3. Call or email The BOP your objections: 916-518-3100 or debbie.damoth@dca.ca.gov
4. Attend the 9/12 Board Meeting via Webex or in person and exercise your 1st amendment right by giving a public comment! Access links and instructions will be available at stopthebop.com/actnow
Read 5 tweets
LymeDisease.org Profile picture
May 7, 2022
Dr. Scott Commings. Beyone Meat: What alpha-gal syndrome teaches us about the immune response to tick bites.
Dr. @scott_commins says they first began to notice patients complaining of delayed reactions to beef in mid-2000's.
Commings says Initially the only test they had for Alpha-gal was a two step skin test.
Read 13 tweets
LymeDisease.org Profile picture
May 7, 2022
Next is Dr. @aucott_john on Lyme disease and infection associated chronic illness. Lessons from COVID Long Haulers and ME/CFS.
Infection associated illness is not new. #LymeDiseaseAwarenessMonth
Dr @aucott_john quickly noticed the symptoms of #LongCOVID were very similar to #LongLyme. Can occur in patients with mild illnesss. Something similar in how these diseases are affecting humans (P.S. Long-haul does not occur post-flu.) #LymeDiseaseAwarenessMonth
Patients with chronic illnesses are often disbelieved. It is difficult as there are no diagnostic tests to prove "Long haul" is real.
Read 16 tweets
LymeDisease.org Profile picture
May 7, 2022
Jeff says they were able to present the @liv_lyme @TicktrackerAPP to the The National Association and County and City Health Officials (NACCHO) and the Centers for Disease Control and Prevention (CDC) during Vector Week. #LymeDiseaseAwarenessMonth
Since it's launch in 2018 @TicktrackerAPP has had over 8,000 submissions. Submissions peak in May-June. American dog tick was number one tick identified. #LymeDiseaseAwarenessMonth
Detail on @TicktrackerAPP submissions. They are working to improve the program to help better identify ticks especially nymphs. #LymeDiseaseAwarenessMonth
Read 5 tweets
LymeDisease.org Profile picture
May 7, 2022
Tickborne Disease Updates from Sue Visser, DrPH, MS Associate Directors for Policy and Extramural Program @CDCgov Division of Vector-borne Diseases Image
Visser pointing out that surveillance is comes from the states. ImageImage
Visser. Pointing out the challenges and opportunities for #LymeDisease surveillance. #LymeDiseaseAwarenessMonth ImageImage
Read 7 tweets
LymeDisease.org Profile picture
May 7, 2022
Dr. Jayakumar Rajadas on the striking similarities & possible therapeutic options for #LongCOVID & #LongLyme #LymeDiseaseAwarenessMonth
Dr. Rajadas, a pharmacologist by training, finding doxycycline is not clearing infection in the lab. However, mitomycin & azlocillin are working well. Prefers fewest number of molecules as treatment option (1 or 2 at most). #LymeDiseaseAwarenessMonth
Rajadas finding TLR2 interaction in both Borrelia and SARS-Cov-2 surface proteins, also elevation of quinolinic acid. #LymeDiseaseAwarenessMonth
Read 9 tweets

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