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The #Lyme disease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization.
Aug 30 5 tweets 2 min read
In 14 days the California Board of Pharmacy (BOP) could vote to restrict a long list of legal and widely used natural compounds. This discussion and potential vote will take place at their 9/12 public board meeting.
Learn How You Can Help 🧵 1/ Image 1. Sign and share the petition today! (or link in bio)

2. Alert your representatives: Visit to find them. Not in California? No problem. You can still contact Gov. Newsom to defend your California neighbors! 2/change.org/stopthebop
findyourrep.legislature.ca.gov
May 7, 2022 13 tweets 8 min read
Dr. Scott Commings. Beyone Meat: What alpha-gal syndrome teaches us about the immune response to tick bites. Dr. @scott_commins says they first began to notice patients complaining of delayed reactions to beef in mid-2000's.
May 7, 2022 16 tweets 12 min read
Next is Dr. @aucott_john on Lyme disease and infection associated chronic illness. Lessons from COVID Long Haulers and ME/CFS.
Infection associated illness is not new. #LymeDiseaseAwarenessMonth Dr @aucott_john quickly noticed the symptoms of #LongCOVID were very similar to #LongLyme. Can occur in patients with mild illnesss. Something similar in how these diseases are affecting humans (P.S. Long-haul does not occur post-flu.) #LymeDiseaseAwarenessMonth
May 7, 2022 5 tweets 5 min read
Jeff says they were able to present the @liv_lyme @TicktrackerAPP to the The National Association and County and City Health Officials (NACCHO) and the Centers for Disease Control and Prevention (CDC) during Vector Week. #LymeDiseaseAwarenessMonth Since it's launch in 2018 @TicktrackerAPP has had over 8,000 submissions. Submissions peak in May-June. American dog tick was number one tick identified. #LymeDiseaseAwarenessMonth
May 7, 2022 7 tweets 6 min read
Tickborne Disease Updates from Sue Visser, DrPH, MS Associate Directors for Policy and Extramural Program @CDCgov Division of Vector-borne Diseases Image Visser pointing out that surveillance is comes from the states. ImageImage
May 7, 2022 9 tweets 7 min read
Dr. Jayakumar Rajadas on the striking similarities & possible therapeutic options for #LongCOVID & #LongLyme #LymeDiseaseAwarenessMonth Dr. Rajadas, a pharmacologist by training, finding doxycycline is not clearing infection in the lab. However, mitomycin & azlocillin are working well. Prefers fewest number of molecules as treatment option (1 or 2 at most). #LymeDiseaseAwarenessMonth
May 7, 2022 5 tweets 5 min read
Next is Dr. Saravanan Thangamani @Thangamani_Lab Emergence of ticks and tick-borne diseases in NY.
Deer tick
Lone star tick
Dog tick
Asian longhorned tick Dr. @Thangamani_Lab reviewing the many pathogens carried by Deer tick, Lone star tick, Dog tick, Gulf coast tick, and the invasive Asian longhorned tick. #LymeDiseaseAwarenessMonth
May 7, 2022 9 tweets 6 min read
Dr. Monica Embers | Persistent Lyme Disease: Supportive Evidence and Potential Solutions. #LymeDiseaseAwarenessMonth Embers "there are three potential causes of post-treatment #LymeDisease
Inflammatory response
Continuous infection
Autoimmune
May 7, 2022 4 tweets 3 min read
Dr. Eva Sapi discussing morphological forms (spirochete, L-form, biofilm) of Borrelia burgdorferi and a potential connection to breast cancer. #LymeDiseaseAwarenessMonth Did you know in 2013, with the help of the #Lyme community, LymeDisease,org helped Dr. Eva Sapi purchase her first atomic force microscope she needed to continue her important work with Lyme biofilms. #LymeDiseaseAwarenessMonth @liv_lyme lymedisease.org/sapi-microscop…
May 7, 2022 4 tweets 5 min read
Dr. Steven Harris discussing how to evaluate complex #LymeDisease cases.
Steven's father Nick Harris, who recently passed away, was the founder of @igenexlab and founding member @ilads_lyme lymedisease.org/nick-harris-ig… #LymeDiseaseAwarenessMonth #LymeDisease makes all other diseases more complex (eg Lyme + Babesia is worse than Lyme alone) and other conditions make Lyme harder to treat (eg. Bartonella &/or MCAS) #LymeDiseaseAwarenessMonth
May 7, 2022 5 tweets 5 min read
Dr. @khoney giving an update on the progress that has been made since 2015 and how @Lyme_X is promoting innovation in Lyme disease diagnostics and treatment.
#LymeDiseaseAwarenessMonth We at LymeDisease,org and all of you who participated in our survey helped establish the number one research priority for Lyme disease: Better testing. lymedisease.org/top-ten-lyme-p…
May 6, 2022 10 tweets 7 min read
Next speaker
Albert Garcia-Romeu, PhD
Assistant Professor of Psychiatry and Behavioral Sciences @JHPsychedelics Johns Hopkins University School of Medicine
#LymeDiseaseAwarenessMonth Albert Garcia-Romeu, PhD
Is working with psychedelics @JHPsychedelics
#LymeDiseaseAwarenessMonth
May 6, 2022 10 tweets 6 min read
Next speaker
Pegah Touradji, PhD
Assistant Professor of Physical Medicine & Rehabilitation @HopkinsMedicine #LymeDiseaseAwarenessMonth Image Pegah Touradji, PhD
It is well known that many patients have persistent symptoms of Lyme disease 6+ month after treatment, including cognitive issues.
#LymeDiseaseAwarenessMonth ImageImageImage
May 6, 2022 16 tweets 11 min read
Next speaker
John Miller, MD
Assistant Professor of Medicine @HopkinsMedicine
#LymeDiseaseAwarenessMonth Next speaker
John Miller, MD talking about Lyme arthritis
Assistant Professor of Medicine @HopkinsMedicine
#LymeDiseaseAwarenessMonth
May 6, 2022 11 tweets 9 min read
Next speaker
John Aucott, MD
Persistent symptoms in Lyme disease
Associate Professor of Medicine @HopkinsMedicine @JohnsHopkinsSPH @jhrheumatology
#LymeDiseaseAwarenessMonth John Aucott, MD
Persistent symptoms in Lyme disease are often difficult to measure and lead to delayed diagnosis and poorer outcomes.
#LymeDiseaseAwarenessMonth
May 6, 2022 14 tweets 12 min read
Next speaker
Peter Rowe, MD: Lessons from ME/CFS that can inform Lyme disease as well as Long COVID
Professor of Pediatrics @HopkinsMedicine
#LymeDiseaseAwarenessMonth Image Peter Rowe, MD
Postural Orthostatic Intolerance #POTS is very common in ME/CFS.
#LymeDiseaseAwarenessMonth ImageImage
May 6, 2022 12 tweets 7 min read
Adrian Baranchuk, MD, FACC, FRCPC, FCCS, FSIAC
Professor of Medicine at Queen’s University, Ontario, Canada @adribaran #LymeDiseaseAwarenessMonth Image Adrian Baranchuk, MD,
Overview of today
#LymeDiseaseAwarenessMonth Image
May 6, 2022 19 tweets 10 min read
Next speaker:
John Aucott, MD
Associate Professor of Medicine @HopkinsMedicine
#LymeDiseaseAwarenessMonth John Aucott, MD
The stages of Lyme disease
#LymeDiseaseAwarenessMonth
May 6, 2022 21 tweets 11 min read
Next speaker
Alison Rebman, MPH
Instructor in Medicine @HopkinsMedicine
#LymeDiseaseAwarenessMonth Image Alison Rebman, MPH
The history of Lyme disease. First detected in Europe 5,300 years ago.
#LymeDiseaseAwarenessMonth ImageImage
May 6, 2022 22 tweets 11 min read
Mark J. Soloski, PhD. Lyme disease is caused by a spirochete Borrelia burgdorferi. #LymeDiseaseAwarenessMonth Mark J. Soloski, PhD
Lyme disease is found in the temperate zones throughout the world.
#LymeDiseaseAwarenessMonth
Apr 2, 2022 18 tweets 11 min read
The lone star tick (Amblyomma americanum) has been rapidly expanding its range, from the Southern United States into the Northeast and Midwest. This tick is a major vector of several viral, bacterial, and protozoan pathogens affecting humans & animals.🧵 lymedisease.org/lyme-sci-super… A recent crowdsourced science project has documented the largest increase of the lone star tick in decades. Researchers @TickSpotters documented new tick encounters in over 300 counties—including six new counties in western states—where these ticks had not been documented before. Image