LymeDisease.org Profile picture
May 7 5 tweets 5 min read
Dr. @khoney giving an update on the progress that has been made since 2015 and how @Lyme_X is promoting innovation in Lyme disease diagnostics and treatment.
#LymeDiseaseAwarenessMonth
We at LymeDisease,org and all of you who participated in our survey helped establish the number one research priority for Lyme disease: Better testing. lymedisease.org/top-ten-lyme-p…
The AAAS meeting, bringing patients and other stakeholders together resulted in the recommendation of the Tick-Borne Disease Working Group as part of the Cures Act. @khoney & @aucott_john were the co-chairs of the first TBDWG which led to the Kay Hagan Tick Act. #LymeDisease
Announced today @Lyme_X offering millions of dollars for Lyme diagnostics. If you are a researcher and are working on a diagnostic tool for #LymeDisease check here for details: hhs.gov/about/news/202… #LymeDiseaseAwarenessMonth
There are many ways to get involved @Lyme_X.
If you are a Lyme patient, advocate, academic or industry entrepreneur and have a project or idea go to: lymex.crowdicity.com

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More from @Lymenews

May 7
Dr. Scott Commings. Beyone Meat: What alpha-gal syndrome teaches us about the immune response to tick bites. Image
Dr. @scott_commins says they first began to notice patients complaining of delayed reactions to beef in mid-2000's. Image
Commings says Initially the only test they had for Alpha-gal was a two step skin test. Image
Read 13 tweets
May 7
Next is Dr. @aucott_john on Lyme disease and infection associated chronic illness. Lessons from COVID Long Haulers and ME/CFS.
Infection associated illness is not new. #LymeDiseaseAwarenessMonth Image
Dr @aucott_john quickly noticed the symptoms of #LongCOVID were very similar to #LongLyme. Can occur in patients with mild illnesss. Something similar in how these diseases are affecting humans (P.S. Long-haul does not occur post-flu.) #LymeDiseaseAwarenessMonth ImageImageImageImage
Patients with chronic illnesses are often disbelieved. It is difficult as there are no diagnostic tests to prove "Long haul" is real. Image
Read 16 tweets
May 7
Jeff says they were able to present the @liv_lyme @TicktrackerAPP to the The National Association and County and City Health Officials (NACCHO) and the Centers for Disease Control and Prevention (CDC) during Vector Week. #LymeDiseaseAwarenessMonth Image
Since it's launch in 2018 @TicktrackerAPP has had over 8,000 submissions. Submissions peak in May-June. American dog tick was number one tick identified. #LymeDiseaseAwarenessMonth ImageImage
Detail on @TicktrackerAPP submissions. They are working to improve the program to help better identify ticks especially nymphs. #LymeDiseaseAwarenessMonth Image
Read 5 tweets
May 7
Tickborne Disease Updates from Sue Visser, DrPH, MS Associate Directors for Policy and Extramural Program @CDCgov Division of Vector-borne Diseases Image
Visser pointing out that surveillance is comes from the states. ImageImage
Visser. Pointing out the challenges and opportunities for #LymeDisease surveillance. #LymeDiseaseAwarenessMonth ImageImage
Read 7 tweets
May 7
Dr. Jayakumar Rajadas on the striking similarities & possible therapeutic options for #LongCOVID & #LongLyme #LymeDiseaseAwarenessMonth
Dr. Rajadas, a pharmacologist by training, finding doxycycline is not clearing infection in the lab. However, mitomycin & azlocillin are working well. Prefers fewest number of molecules as treatment option (1 or 2 at most). #LymeDiseaseAwarenessMonth
Rajadas finding TLR2 interaction in both Borrelia and SARS-Cov-2 surface proteins, also elevation of quinolinic acid. #LymeDiseaseAwarenessMonth
Read 9 tweets
May 7
Next is Dr. Saravanan Thangamani @Thangamani_Lab Emergence of ticks and tick-borne diseases in NY.
Deer tick
Lone star tick
Dog tick
Asian longhorned tick
Dr. @Thangamani_Lab reviewing the many pathogens carried by Deer tick, Lone star tick, Dog tick, Gulf coast tick, and the invasive Asian longhorned tick. #LymeDiseaseAwarenessMonth
Dr. @Thangamani_Lab started a citizen science project in 2019 that allows citizens to send in ticks that they are able to use for research. number of ticks and the % pathogens they carry are increasing. #LymeDiseaseAwarenessMonth upstate.edu/whatsup/2021/0…
Read 5 tweets

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