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Nicole Lee Schroeder, PhD Profile picture
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May 16 • 5 tweets • 2 min read
So many professions direct their services at disabled populations. Education and healthcare are both glaring sectors where non-disabled people can receive absolutely no training from disabled voices, and interact with disabled people on a daily basis. 1/5
Why are disabled people paying for services where they'll be seen by wholly untrained "professionals?" People who do not understand or care to understand our needs/desires/goals, who put us into boxes based on capacity? 2/5
These people quite literally get to determine our access to services. Our access to medications, treatments, interventions, therapeutics. Our access to life. They determine our inclusion. And they act as barriers to save the government money. 3/5
I went to school to get a PhD at the intersection of medical and disability history, because I was incredibly naive. It's not that these sectors CANT reform. It's that they don't want to. Because suddenly most of the profession would be unqualified. 4/5
As I get older I'm realizing that ignorance is a choice, not a byproduct. 5/5 #MedEd #MedTwitter #EdTwitter #DisabilityTwitter

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More from @Nicole_Lee_Sch

Nicole Lee Schroeder, PhD Profile picture
May 17
A lot of my friends have just stopped talking to me because they feel guilty talking about their lives while my whole social life, apart from work, has been on hold since March 2020. And that's a whole extra thing to grieve about. 1/7
High risk people are dealing with the fact that we're still high risk over 2 years in with no meaningful infrastructure changes to protect us. We didn't use that time to radically transform our indoor environments to offer ventilation and distancing. 2/7
Many of us still can't risk shifting back into social lives when there's so much misinformation. When people are blaming COVID symptoms on allergies or stomach bugs. We can't go back out in public with a disease that's rapidly evolving and still killing people every day. 3/7
Read 7 tweets
Nicole Lee Schroeder, PhD Profile picture
May 15
When are we going to incorporate disability studies into medical training? How much of our population (and how much of our population who needs frequent medical care) needs to become disabled before we integrate meaningful curriculum changes? 1/11
Medical professionals are not kind to disabled people. COVID policies continue to uphold eugenics-centered ideologies (like utilitarian ethics). Policies will continue to focus on treating ICU patients rather than preventing disease or providing palliative care. 2/11
Disabled people have, for the whole pandemic, put off care. Now even more people are putting off care because some medical centers have dropped mask mandates, or are requiring switches to subpar surgical masks instead of proper N95s. 3/11
Read 11 tweets
Nicole Lee Schroeder, PhD Profile picture
May 14
Looking through my medical records and God what a nightmare. So many incorrect allergies, medications, and diagnoses. Having drop down or fill in menus is not efficient or accurate. Just let patients fill these sections out themselves and get verbal confirmation in office. 1/5
If I have to explain how to spell Ehlers Danlos syndrome, or Arnold Chiari, or any of the other "rare" diseases I have to some nurse who's never heard of them I am going to just fully disassociate and go through the rest of my appts as a disembodied ghost. I'm out. 2/5
I have had the wrong meds sent to me all yr bc they click eye drops instead of pills every single time. I have had to petition for months to get a dx of terminal brain cancer removed from my files bc it was totally inaccurate and it made Drs question all my other real dx. 3/5
Read 5 tweets
Nicole Lee Schroeder, PhD Profile picture
Apr 27
I really wish non-disabled people understood just how few resources disabled people can secure as they navigate the world. My most valuable asset is my community, because this world grants me next to nothing else. 1/8
Do I have affordable accessible healthcare? No. Do I have specialists who know best therapeutics? No. Do I have pain management? No. Do I have meaningful therapy for decades of medical abuse and neglect? No. Do I have affordable medications? No. 2/8
Do I have accessible housing? Rarely. I have only ever been able to afford accessible housing when demanding accommodations on university campuses. I have never independently been able to afford an accessible apartment/home in the housing market. 3/8
Read 8 tweets
Nicole Lee Schroeder, PhD Profile picture
Apr 25
A lot of discourse about staying/leaving Twitter that is bringing up good points about the point of social media. Regardless of what you choose to do I hope you realize that those of us who leave are likely those who already feel unsafe here. 1/5
It's just a question of how much more unsafe we will be in the future. I get messages or comments on posts frequently that are outright threats or personal attacks. Being able to block users and curate my feed is important. 2/5
I do not exist here to be given eugenics-based drivel every single second of every single day. I like being here with other disabled people. I do not want to be in a place where disabled people are disproportionately targeted and harassed. 3/5
Read 5 tweets
Nicole Lee Schroeder, PhD Profile picture
Apr 25
If this is a productive time for you - for research or conferences or publications - that's great. But it's not a productive time for me or other high risk people. So what's going to happen in the coming years? 1/6
What will happen when I'm on the job market and someone says "well they didn't publish much" or "they should've used that time to go to archives" or "they didn't present at the top conferences"? 2/6
Who on any hiring committee or external review board is going to say "I think that's an unfair standard to hold them to, because they were high risk and could not go to all of these in-person events with a pandemic still raging on"? 3/6
Read 6 tweets

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