🧵 4 hour sleep. Awake with return of sensation like a mild and clunky AC current inside me, most prevalent in head and neck. Meditated a little but find it hard to be present in stillness with this symptom. It doesn’t let me sleep either. #LongCovid #LongCovidDiaries #MECFS /1
Staying in bed with Twitter, Facebook, music and writing. Pulse rate as low as 49. Oxygen saturation still low at 92%. Sweet message from dear old friend who lives in Australia. It’s good to reconnect with someone from the adventurous and wild days of my youth and early 20s. /2
We have crazy memories of mountains and climbing, motor bikes and mountain bikes, girls and women, bars and clubs, booze and fights, thrills and spills, breaks and crashes. A few scars and broken teeth aside, we felt quite invincible back then. We’ve both grown a lot since. /3
This latest adventure, into chronic illness and #LongCovid, brings a new dimension of growth for me. I welcome and appreciate what it has to offer. The words of advice I have now for the me back then make me smile. I laugh and wonder if I would have listened to them? /4
Underneath bravado and confidence, there was a deeper level, entirely different. If I got through to the parts I was hiding from most of the time, facing them in my worst moments alone, that’s where real change would happen. I’m happy that I’ve been able to reach them since. 🙂

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More from @HumanOnPlanet

May 25
🧵 Got active yesterday. Compelled to move. Couldn't sleep afterwards. Too tired to write since. Can't sleep again tonight. Awake in bed for hours. Resting heart rate thumping into the 90s. Oxygen saturation dipping into the 80s.
#LongCovid #MECFS #LongCovidDiaries /1
In a system that forces us to fight for help, I fight for validation. Benefits assessors tell us we don't qualify. Medical professionals suggest it's in our heads. Governments are not interested. I am but one of many. /2
Come move with me. Keep up while I fire up my system and move like my life depends on it. Then live my nights with me. Feel the pain in my belly and the waste in my legs. Feel the heart beat that hammers in my head. /3
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