🧵 Got active yesterday. Compelled to move. Couldn't sleep afterwards. Too tired to write since. Can't sleep again tonight. Awake in bed for hours. Resting heart rate thumping into the 90s. Oxygen saturation dipping into the 80s.
#LongCovid #MECFS #LongCovidDiaries /1
#LongCovid #MECFS #LongCovidDiaries /1
In a system that forces us to fight for help, I fight for validation. Benefits assessors tell us we don't qualify. Medical professionals suggest it's in our heads. Governments are not interested. I am but one of many. /2
Come move with me. Keep up while I fire up my system and move like my life depends on it. Then live my nights with me. Feel the pain in my belly and the waste in my legs. Feel the heart beat that hammers in my head. /3
Fuck you @DWP. Fuck you @NIH. Fuck you @GOVUK. This shit is real. Get in the fucking ring. People are suffering. The gloves are off and the rules are long gone. Come feel the brutality of your actions. /END
I think I'd better meditate a while. No good fighting all riled up. Time to breathe and be still with the storm.
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