🚨 Medical Ethics - #MedTwitter 🚨

#Access2Antivirals is poor. We have heard from NHS sources that only 10-16% of the tiny subset of immunosuppressed people who qualify for treatment receive them within 5 days.

This, in itself, is a serious concern. But not the focus today.

1/ NHS  Dear  You have tested positive for coronavirus (COVID-1
People are being sent the above email when they *do* qualify for treatment directly from the Covid Medicines Delivery Units (CMDUs).

The Panoramic trial has 450 spaces/day and only 225 doses of Paxlovid (a proven treatment) it is open to Clinically Vulnerable people and 50+.

2/
The Panoramic trial is often heavily oversubscribed especially during times of great need. Whether we need a trial for a treatments proven effective is another question....

The question is:

Is it ethical to prompt someone who qualifies for treatment to apply to this trial?

3/ Thank you for your interest in the PANORAMIC Trial, we are c
If a person who qualifies for treatment based on their significant medical need applies for the trial, they are taking a gamble. Someone else, who could also be treated on the trial, will be denied.

/END

β€’ β€’ β€’

Missing some Tweet in this thread? You can try to force a refresh
γ€€

Keep Current with Clinically Vulnerable Families πŸ’™πŸ’œπŸ’—

Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @cv_cev

May 26
⚠️ILLEGAL OFF-ROLLING ⚠️

We asked our group whether schools had suggested families deregister in the interests of the school and NOT the child.

This is called 'off-rolling' and is illegal.

4️⃣2️⃣% had been asked!!!

One member shared their story from November '20:

1/ So just had the strangest p...
This is still happening today.

Many of our members had to withdraw from schools completely as they were threatened with fines & prosecution.

The new 'Schools Bill' threatens Clinically Vulnerable Families further by enabling prosecutions and forced attendance for families.

2/ duty on local authorities t...
It states there is:

"β€’ duty on parents to provide necessary information to local authorities for inclusion on their registers; local authorities will be required to start SAO proceedings should parents not comply with providing this information"

3/
Read 10 tweets
May 25
🚨Following the Science🚨

One of our members has asked about access to #Evusheld. Besides the stock response this paragraph jumped out:

"To date, the evidence has most strongly supported treatment rather than prophylaxis."

1/ [House of Commons letterhead]  17 May 2022  Dear  I refer to16 May 2022  Dear Jake,  Thank you [...].  ImmunocompromisedNon-hospitalised individuals who are in the highest risk gro
"The evidence on preventative therapies will continue to be reviewed to ensure efficacy and safety."

@SyedKamall

We find this particularly peculiar because we have been carefully following the research and are unaware of such evidence. Could you please share it with us?

2/
Why would accepting infection be beneficial especially with the high risks of death and @LongCovidSOS faced by clinically vulnerable people?

Surely this would be an unnecessary drain on NHS ICU resources?

Have you seen the latest research?

3/

astrazeneca.com/media-centre/m…
Read 5 tweets
Apr 12
🚨Living with Covid #Access2Antivirals 🚨

Antiviral treatments are available to the 'Severely Immunosuppressed' a subset of the Clinically Vulnerable who remain at high-risk despite up to 5 vaccine doses.

🧡will cover how Vulnerable groups can access antiviral treatments.
1/ #Access2Antivirals  We often cannot access essential antivir
Early antiviral treatment is a vital tool to prevent severe outcomes in high-risk people.

Currently only a small group who have poor immunity following vaccination are allowed to access them.

Please look through this list to see if you qualify:

england.nhs.uk/coronavirus/do…

2/ Please follow the link in Tweet   * too many words
The 'Severely Immunosuppressed' group is smaller than those offered 5 vaccine doses & includes some never flagged as CEV.

So...
1) What should you do if you have Covid and DO qualify for antivirals?

2) What if you are Clinically Vulnerable/50+ and DON'T qualify on the list?

3/
Read 18 tweets
Feb 21
πŸ“£ What today's announcement means to us? 🧡

This account gives an anonymous voice to Clinically Vulnerable people in our support group on Facebook.

Threats now to:
Lives, jobs, freedoms + safe access to schooling & healthcare.

Join us for support πŸ‘‡
facebook.com/groups/6185063…
1/
This thread aims to share our members thoughts, each struggling with the broad and significant impacts of the announcement to be made today by Boris Johnson in the HoC.

2/ Freedom for some is being granted at the expense of freedom
"End of any freedom with covid has now been stolen for the vulnerable."

"The mental health of my children going to school will now spiral downwards uncontrollably."

3/ Our death sentence from Covid has now been set.
Read 32 tweets
Feb 19
Ultimate Freedom Day is forcing the most vulnerable into impossible situations.

How can we #StaySafe?
No testing. No isolating.

How can we judge our risks?
No ONS data, no government data.

How can we even access healthcare?
No masks.

1/

news.sky.com/story/covid-se…
With no masks and no isolating how can forced return to F2F work be viable in these circumstances?
We are choosing between #LivesAndLivelihoods

How can we send our children to school safely?
We are choosing between #educationANDlives

2/
Why is the answer ONLY more vaccines?
Severely immunosuppressed may not have made a response to 4.

Where is the real world evidence this will make a difference?
No other country is offering 5 doses.

What about the other CV / CEV?
Vaccines waning.

3/
independent.co.uk/news/health/co…
Read 8 tweets
Nov 23, 2021
Nadhim Zahawi has written to School leaders.

Focus = attendance

This is particularly concerning attendance targets are already driving many headteachers to threaten vulnerable households with fines and prosecutions.

1/

content.govdelivery.com/attachments/UK…
He emphasises the fact that schools must not use the following mitigations: bubbles or isolation of contacts.

Whilst insisting on the need to improve attendance "maximising school attendance a top priority" in a #Pandemic.

2/
Next, something we have been pushing for (if only it wasn't in that same paragraph demanding attendance). An acceptance that vulnerable children have been impacted more than others. * although no mention of children in vulnerable households.

3/
Read 19 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

:(