When you find out you're autistic later in life its... weird. My whole life I've been memorizing the things that upset people & what I'm supposed to say or do to un-upset them, the whole time being bewildered bc the way other people process things is not the way I process things
It's difficult to talk about bc I've always had to orient myself around social rules that allistics get really wrapped up in, that they seem to just intuitively understand in a way that I don't. I end up with a lot of anxiety around shit I don't actually understand or care about
Psychs told me I isolate bc of anxiety, & anxiety is certainly part of it, but I think the bulk of it is exhaustion. It's exhausting to force myself not to rock, to look at & (attempt to) listen to other people, don't repeat myself, don't flip out if noise is happening, etc
I'm ADHD & autistic, so it's hard to separate the two. If ADHD makes me pick up more of the ambient sounds around me, makes it harder to ignore them, and then sensory issues start to build, it's hard to attribute a sensory meltdown to either individually
And I think that principle still holds for interpersonal relationships. My brain wants to do what it wants to do, it wants to think about the thing it wants to think about. I care deeply about other people, esp those I love, but I kinda... have to be reminded they exist?
I often need time to process and distance from my own needs to have empathy. I dunno how else to describe it. I can be overwhelmed with empathy for people I don't know in situations I've had time to process, but when someone is having a hard time right in front of me I panic
So I remember when I was a teenager my grandpa died, my mom was grieving, & I knew I should be supportive & comforting but I was just kinda annoyed about it. I understood why she was upset, but felt this intense pressure to "fix" the situation & since I couldn't I was frustrated
On the other hand, in my mid 20s I went on a weekend road trip for @Pragnacious's birthday. I was very involved in Palestine solidarity activism at the time. We were driving around & I just got overwhelmed with sorrow & cried "Palestinians don't get to go on roadtrips"
It's always been like that for me. I have no problem feeling deeply for people. I've been, I dunno, civically-minded my entire life? I think the point of society is to protect the whole not enrich a small portion of the population. But real-time empathy has always been a struggle
I thought there was something majorly wrong with me that I could crumble when bad things happen to strangers, but judt awkwardly panic when they happen to people I love. This was something I didn't understand about myself until I understood my ADHD, autism, & processing speed
I can spend literally years thinking about the same small handful of things, pretty much exclusively. I can process things *deeply* but not *quickly*. So with a cause I've had time to think about, like Palestine, the emotional response is instant. Without that time, I just flail
During the first year of the pandemic there was a news story about a woman who was living in her car with her 6 month old twins, which is around how old my kid was at the time, and it wrecked me. I thought about it for weeks
But when ppl in my life are suffering it can just kinda skip off the surface initially. I think in part bc in a real time situation where I'm with people, I'm doing so much systems monitoring that I can't spare the processing space for empathy right away?
I've got to monitor restless leg syndrome, sensory issues, distractions, don't rock, pay attention, DON'T ROCK, don't sway so hard, why does it feel like my muscles are fighting their way out of my skin, look at people, stop repeating yourself, what is my mouth doing, and so on
I imagine that if you don't have to manage sensory issues, distractions, bad body feels, don't have to actively make yourself seem less weird and continually enforce those self-restrictions, you probably have more brain space for social rules, norms, whatever
I'm not a computer person so hopefully I have this right, but my #ADHD & #ActuallyAutistic brain is like a computer with a metric fuckton of secondary memory & very little RAM. There's a ton of knowledge packed in there, but I don't have a reliable shortcut to quickly access it
I'm butchering the analogy, but let's say my RAM will let me have like five things running at once, one is breathing & blinking, one is whatever train of thought I'm on, one is self-regulation, etc. When an upset happens around me my brain says "whoa we're too busy for this!"
when I'm home alone & have time to recover (and don't have to use all my available tasks on Not Being Weird) I can start up whatever that upset was & start to process it. When I personally get upset tho, it forces tasks off of the queue & I'm unable to regulate emotional response
A lot of people think empathy is what makes you a good person, & that #ActuallyAutistic people are uniquely devoid of empathy. But empathy isn't an accurate measure of the morality of your beliefs/actions. Empathy is slippery even for NTs (especially *who* they empathize with)
I have issues with my real time empathy, my ability to immediately feel for someone in a way that allows me to intuitively help them. But I also have a strong desire to be an ethical person, to be kind, protective, to take care of others
It's internally awkward, but I don't need empathy or high processing speed to make ethical decisions. Depending on who your lump of salt, fat, and water deems worthy of empathy is unreliable. Rigid ethical standards are not (ofc those can be destructive, racist, sexist too)
Before you know you're autistic, it can be really distressing. You feel like you're broken because you don't have that emotional connection to what is happening immediately around you. I knew I could feel *too* deeply for others sometimes, but not precisely when ppl needed me to
Becoming a leftist really helped me w compensating for that absence of immediate empathy by giving me some shortcuts that allow me to understand one bad thing happening within a system built to generate bad things. It wasn't empathy, it was knowledge that made me a better person
To be clear, I am not saying that intelligence or even knowledge is what makes you a good person. That's far too complicated to reduce down to simple cause & effect. But for me, having *context* for the world around me helped me refine that ethical framework & respond w kindness
This is all stuff I've always wanted to talk about, but it's scary because saying you don't have empathy or have an empathy lag makes the neurotypicals think you're a scary scary [insert mental health slur]. NTs have these empathy gaps too, they just refuse to acknowledge them
My partner is also ND. Sometimes we'll both be overloaded, he starts melting down, I lock up bc I can't process what's happening & I'm trying to avoid meltdown. Partner is BPD so my empathy lag can be interpreted as abandonment. Its a real struggle in our relationship sometimes
I try to be there for him & do all the things a "good" person would do to care for someone else, but my partner senses that I'm just going through the motions (he's right) & has a BPD trauma response to it. One of the hardest things about a ND relationship is our competing needs
And to be clear I also have meltdowns and put him through tough times, he's just a lot better at quickly processing the situation and offering genuine support, whereas I will just freeze, go through the motions, & eventually get to the empathetic comforting & caregiving
We've been isolated with a toddler for over two years now, so the things affecting him also affect me. When he goes into a meltdown I'm usually headed there myself. So instead of comforting him my brain is desperately trying to hold on to my emotional regulation
Even before the pandemic pressure cooker, this was an issue. It can be hard to just make space in my limited RAM to hold a conversation with someone, so dealing with upset either pushes self-regulation out of the way or I freeze to maintain regulation despite the issues it causes

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More from @Deezovariez

Jun 9
After taking my kid to the park (a different, more busy park than usual) I really have to work out my shit. I found myself sometimes policing her for Proper Neurotypical Behavior the same way I police myself. I don't know what to do bc it's so ingrained in me at this point
How do I do this? I've trained myself to be hyper-aware of what other people are thinking & how they may react to me. My kid only wanted to look at a bright green piece of resin stuck into the narrow staircase, it was her only interest, but so many kids were stampeding...
And there's a legitimate safety issue with her blocking the stairs, blocking other kids from using the playset, but there was also a part of me that... resented her for being ~weird~ & sobbing & screaming when I had to move her bc she's only 2 & talking doesn't always work
Read 7 tweets
Jun 7
When you are #ADHD/#autistic & have chronic pain, it's like the worst of all worlds. Pain, especially long term pain, can make life with ADHD/A miserable. Pain takes up your mental resources for sensory management, leaving your body a raw nerve. It eats away at your concentration
I can get distracted in an empty room, just by thinking my own thoughts. But when pain is involved it's like someone is tugging at me & trying to talk to me non-stop & my ability to focus on something (no matter how important) is severely impaired. I'm using all my cope on pain
Drs have largely been ordered to abandon pain patients, to discourage, discredit & smear them to avoid liability, so the advice we often get is stuff like "try mindfulness" (while offering zero resources) or "learn to live with it." So you do- by shoving everything else aside
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Mar 10
When you're undiagnosed w ADHD people take your lack of forward motion, your lack of career success, as evidence of laziness & lack of interest/ambition. In my experience, it's more like choice paralysis. I've daydreamed dozens of careers I'd be good at- I just can't stick to one
It is very, very difficult to plan for a career you love when your devotion to a particular activity could suddenly die off in a few days or weeks. As ADHDers we tend to pick either jobs that provide an adrenaline rush, or jobs where we're doing something different all the time
It's hard to explain that I have two modes: hyperfocus, where I work harder & longer, am totally preoccupied with that thing in a way that annoys or worries neurotypicals. Or non-hyperfocus, where doing literally anything takes every ounce of energy I have & then I melt down
Read 34 tweets
Mar 9
The cycle of ADHD executive dysfunction/hyperfocus is so tricky to get correctly diagnosed. For me, it was misdiagnosed as bipolar disorder. For some, it's misdiagnosed as depression & anxiety, but it's poorly understood (even sometimes to those of us who experience it)
For me, I feel the best when I have a New Interesting Thing to throw all of my energy behind. It's refreshing to feel focused, competent, to play in a new sandbox. Hyperfocus takes my mind off of the discomfort of hyperactivity & sensory issues. I'm always hoping hyperfocus hits
There's also a downswing, when one hyperfocus has died a sudden death but theres no other dopamine node available to mine, no other hyperfocus in the pipeline. I feel deflated. Not sad, exactly, but the things I need to do feel harder to accomplish, I'm more withdrawn & fatigued
Read 8 tweets
Feb 22
Before I was diagnosed w #ADHD & figured out my autism, I'd bring up my pacing, rocking, swaying, skin-picking, tapping, & Drs always told me it was anxiety. I thought of myself as an extremely anxious person, but outside of specific contexts anxiety isn't much of an issue for me
I keep thinking about that insight someone had on one of my threads- that the accepted analogy for hyperactivity is "as if driven by a motor-" a phrase many AFAB people wouldn't reach for bc we don't tend to get motorized toys & often aren't encouraged to learn how motors work
Its a "boys will be boys" concept of hyperactivity- that hyperactivity is when little white boys are too loud/rambunctious. As a hyperactive girl, I did not get away w the kind of hyperactivity my male ADHD cousins did. We get told "girls are more mature" practically from birth
Read 20 tweets
Feb 21
People with #ADHD are more likely to have poor oral hygiene, we have higher levels of plaque, gingivitis, pretty much every dental complication because we can't focus/remember to brush our teeth. ADHDers are also more likely to live in poverty & not be able to afford dental care
Its cool to know that if I were a boy & lived in a family with resources I would've been dxed, & maybe I could've gotten meds to help me remember to brush my goddamn teeth. Instead, Drs see my poor person teeth, don't know about ADHD & oral health, & conclude I'm a "drug-seeker"
CW: eating disorder
.
.
OH! And ADHDers are more likely to have eating disorders, which can lead to even worse dental health issues they can't afford to treat, which makes them more identifiably poor & less likely to get treatment for the thing that has destroyed their teeth
Read 4 tweets

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