I feel like we should be talking more about the GAO report on #LongCovid that stated, "The full magnitude of health and economic effects [of Long Covid] is unknown but is expected to be significant." a 🧵 gao.gov/products/gao-2…
What is the GAO you ask? The US Government Accountability Office is a non-partisan agency that uses data to evaluate how much something is gonna cost us. That's it. Their mandate is to, "improve the performance of government, ensuring transparency and saving money."
After reviewing the data available on #LongCovid, the GAO concluded that it, "has potentially affected up to 23 million Americans, pushing an estimated 1 million people out of work."
The very concise (well supported with citations), 2 page report covers what we know medically about Long Covid and concludes that LC will have a serious impact on the US economy via lost labor and increasing need for social services. Here's a PDF link: gao.gov/assets/gao-22-…
At this point, I've given up trying to appeal to people's empathy. I've also given up trying to convince people to protect themselves because of the risk to their long-term health. Maybe if we can show people that this will actually hurt our economy they will care?
Never mind that you or your children might have permanent neuro-inflammatory brain damage, or develop diabetes, or have long-term vascular/mitochondrial dysfunction, will an all but guaranteed economic slowdown prompt politicians to take action?
It's an approach I'm willing to try. Of course the larger issue is what needs to be done to change things. Simple policy initiatives like mask mandates in public indoor spaces, an Indoor Clean Air Act to fund ventilation and filtration in schools and other public buildings...
These are the most obvious first steps to reduce new cases. But then we also need to expand things like paid sick leave and social/economic support for those already affected by #LongCovid. We need to expand funding for agile, iterative medical research into treatments.
Hell, we need universal healthcare and a massive shift in values surrounding the funding, support, and medical care available for chronically ill people in general (especially those with poorly researched diseases). #MEcfs #NEISvoid #MCAS
All of these things are the morally right thing to do, but since that clearly isn't enough to motivate action, I propose we spend more time talking about how poor companies and the country's economic growth will suffer.
I hate constantly raging on this topic but I genuinely believe that, if we don't take some kind of action, we will face the economic and social consequences of our short sighted approach to Covid and the GAO agrees that it won't be pretty.

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More from @ECooperAuthor

Jun 9
The general public doesn’t seem to know that Covid is airborne, that reinfection is common, that the vaccinated can get it, that Covid is a vascular disease with serious neurological complications possible, that #LongCovid is common and can disable anyone including the vaxed.
How can we expect people to accurately assess their Covid risk when they don’t understand such basic information? Public health like the @CDCgov has failed so spectacularly during this pandemic I sometimes marvel at how badly this has been bungled.
We’ve abandoned parents to let them sort through mounds of conflicting information on their own with no clear guidance on the often frightening data about the potential horrific health consequences of Covid.
Read 8 tweets
Jun 8
Life with #LongCovid: I've had a great few months where I felt like I was really starting to heal. Today, I'm back in bed, crashing though I don't know exactly why. Yesterday, I was able to write, talk on the phone, I got things done. Today I'm having trouble walking or speaking.
To be fair, I did a lot yesterday (walked up and down stairs 6 whole times, played with my son and puppy, took my son to an art class, did almost a hour of writing, called a pharmacy to work out a snafu with meds) but not so much that I would expect this massive crash.
I've tried to emotionally prepare myself that this could happen, but I was feeling really hopeful that I was actually recovering. After 1.5 years of no hope, I was feeling slightly better and let myself imagine that maybe I would, one day, get back to my "old self."
Read 8 tweets
Apr 7
I want to talk about the hot button topic of exercise and #LongCovid. I had an interaction with a doctor recently and when I said I had long covid, she said I should be on a graded exercise program to "start healing." The thing is, I have been getting better. 1/
In the last 2 months, I've been able to do some VERY light movement and it isn't sending me into a crash (yay!). I think doctors and the public see me doing a bit of exercise, and they think that's why I'm improving. And yes, it is certainly helping me 2/
build back some of strength that I'd lost being stuck in bed for so long. But, until I had a basic level of health, all exercise did was send my body into a full on crash, and I mean stretching for less than a minute would put me in bed for a day or two. 3/
Read 11 tweets
Mar 14
Since so many people asked for details about treatment in my last #LongCovid thread, I thought I'd do a detailed thread on it. I'll start by saying that this was with guidance from my doctors. I know medical care is inaccessible to many but please be cautious.
Things that have helped me the most:
- d-ribose was the first thing that allowed me to get out of bed for more than a few minutes. I credit this with turning the corner from bed bound to "just" home bound.
- CoQ10 gave me some more energy and clarity.
- NADH is the third supplement that has made a real difference in my energy levels.
- B1 and B12 plus a multivitamin
- D+K vitamins
- Floradix for anemia
Read 12 tweets
Mar 12
On my 2 year Covid anniversary, a thread about my experience with #LongCovid and what I've learned about post-viral illnesses like #MECFS. This is me just before I caught Covid 3/20. I'd just hiked 10 miles and was having a blast. I was celebrating publishing my 3rd book. 1/ A healthy woman in her mid 40s smiles at the camera inside a
At the time I was in great shape, hiking and running regularly, working on my next book, being a very active mom, contemplating going back to do some university teaching. About a month after that photos was taken, I thought I had allergies. I felt a little tired. 2/
I knew Covid was coming but, as far as I knew, it wasn't really in the states yet. But then, a week later, I had trouble breathing and my doctor confirmed that I had Covid. I was one of the very first cases in the US. Yay me! 3/
Read 22 tweets

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