Thread by @NotUnexplained

URGENT - PLEASE SHARE
This is about Ella Copley, a young woman suffering terribly from Myalgic Encephalomyelitis (ME).

Ella Copley is 17 years old. She has severe ME and is also in intestinal failure. Ella has been a patient in Leeds General Infirmary (UK) for 18 weeks.

People with ME are often not believed and Ella is in severe pain. The pain is so bad that Ella says she wants to die. Even though Ella’s pain is unbearable, Leeds General Infirmary is withholding pain treatment.

We want them to KNOW they are being watched and to give Ella the correct pain relief. Joanne thinks Ella will die soon if she is not given the proper treatment.

EMAIL
Please make the subject line of the email:
ELLA COPLEY – HER PAIN IS REAL
Please send the emails to:
[e-mail]
[e-mail]
POSTCARD/LETTER

Can you also send postcards to LGI. Again, please use the same line:
ELLA COPLEY – HER PAIN IS REAL
Please send the postcard/envelopes to:
Julian Hartley
Chief Executive
Leeds General Infirmary
Clarendon Wing
LEEDS LS1 3EX

Can you say the following in your email/on your postcard/letter:
“Ella Copley is a 17yo patient in your hospital. She is on Ward L42, Clarendon Wing. Ella has SEVERE ME and is in constant pain. Please understand that ME is a real physical illness. It is not psychological.

“Can you look into Ella’s case and ensure that she is provided with the correct pain medication. Thank you”

#standup4ellacopley #activism #humanrights #nonprofit #MillionsMissing #MECFS #MEAction #dogood #leedsgeneralinfirmary #actionforME

This is a video of Ella screaming in pain. It's very difficult to watch but this is Ella's, and her family's, ongoing, daily, horrendous, reality.

https://twitter.com/Jomckee131144/status/1545353375457443840?t=PmoZesQGVBltfXJZ8DiFYw&s=19

This is Ella with her dog, Star, whom Ella describes as her "Saviour".

Please help Ella #NEISvoid #pwME @sajidjavid @doctorasadkhan @DoctorsWithME @actionforme @MEActNet @MEAssociation @BinitaKane

See full post here m.facebook.com/story.php?stor…

For those less familiar with ME: pain uses energy, which makes the condition worse. Light makes it worse. Noise makes it worse. It's a downward spiral. The body can only tolerate it for so long. Anyone treating severe ME needs to know this.

Any clinician who is in any doubt needs to refer to the NICE Guideline nice.org.uk/guidance/ng206…