Thread by @AnilvanderZee

1) For #severeMEday I've decided to post a picture of me in the light. I've been doing so the last couple of months. Since I've moved to my new place and crash less because the noise of my neighbours, I can allow myself to do things like quickly take a picture in

2) the light right before I'm about to get up without it making me too ill.

While these pictures seem like I'm doing rather well, these are just snap shots, and the rest of the day I still live in a darkened home, with earplugs, silent, no visitors & with some exceptions no

3) music, video or any other entertainment.

While I'm very happy with being a bit more stable because of my living situation, I know that with ME it's like switching some unknown switch and you'll relapse for no particular reason. Maybe that moment will be next week. So I'm

4) treasuring and sharing these moments of light, but they don't reflect the daily darkness of severe ME.

I've therefore also written a post on LinkedIn to raise awareness about severe ME. Since I've managed to connect to quite a bit of medical professionals and scientists

5) treasuring and sharing these moments of light, but they don't reflect the daily darkness of severe ME.

I've therefore also written a post on LinkedIn to raise awareness about severe ME. Since I've managed to connect to quite a bit of medical professionals and scientists

6) during the pandemic, I felt it was important for them to read about us patients with #severeME and how they might be able to help.

Normally posts about ME aren't that popular, so if you are in LinkedIn, please give it a like or share so this time this year people with

7) #severeME will receive the love they deserve. Hopefully one day being in the light for people with severe ME will not just a snapshot, but rather a normality.

linkedin.com/posts/anilvand…

CU on LinkedIn & thank you!!

Anil! ❤️

Thnx to @BenteKubin for the amazing t-shirt. 😍💋❤️