CW: Mental Health/ Suicide/PTSD
I don’t want to jinks anything but I think I may finally be getting somewhere in sorting out the mess that is my life and insanely complex health issues. I won’t probably comment on how close I got to the advanced stages of planning I got to. 1/
In regards to doing everything possible to not see tomorrow. But let’s just say the past month has been scary. Those times I’ve just disappeared in here? That’s me going to “can’t see the edge cliff, because I’m right on it” because of systemic mismanaged at most levels 2/
Of various health services, It’s challenging to seek support. Because the last time I tried it was handed poorly and I’ve been literally trying to hold on. Ironically my physical disabilities probably saved my life multiple times. Cause fuck with octogenarian in care the 3/
Barriers to stopping me from acting were gone. How fricken ironic. The pressures on public hospitals are dreadful. It’s responsible for me being discharged to early. I fell within 20 minutes of discharge, readmitted and stayed for months. We need our political leaders at all 4/
Levels to push budgets as far as possible, because I am a result of the current Australian healthcare systems. It looks like I may survive this, now many haven’t. When in Adelaide let’s catchup @AlboMP @billshortenmp @stevegeorganas @PMalinauskasMP @PictonChris @NatCookMP 5/
@TKoutsantonisMP @sandyver @CityofAdelaide @WestTorrens @CentralAdlLHN @LesleyDwyerCEO let’s fix #agedcare #ndis #ramping public #hospital and long waits for the green hero’s of @SA_Ambulance who pick you up when you fall. Let’s build on the unique focus on healthcare in 6/
A global pandemic to provide a better future for all Australians. N.B. I’m not ok, but I am not in any immediate risk to myself or others. As bio, a warm polite nag. I appreciate what you do, but respectfully ask you engage with those with lived experience and #DoBetterTogether
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More from @iPilko

Aug 16
In the state of South Australia in metropolitan #adelaide the #sagov has a #taxi subsidy scheme. Proving 50-75% off the meter up to a cap. Access taxi drivers also get paid a $25 lifting fee. Today is my first journey using the scheme as a full member. Todays booking has been 1/
The smoothest in terms of the access taxi (wheelchair taxi) turning up on time and the driver being happy, cheerful and relaxed. Contrast to my previous experience off driver accepting, rejecting, waiting for another driver to accept. Those without access to the subsidy are 2/
Left waiting or abandoned @DFIT_SA have just done a yoursay review. I hope the sagov and #auspol can help #pwd engaged in the community. @PMalinauskasMP @TKoutsantonisMP @AlboMP @billshortenmp @stevegeorganas those who gain @NDIS often loose access to the scheme are at risk 3/
Read 4 tweets
Aug 15
I used to be confused when I heard people with disabilities describe “winning” or having a battle with something. Right now which battle would you like to pick? Loved catching up with my 83yo father today in aged care, we had lunch together 1/
But hell the reality check was gut wrenching, I knew I’d find issues, probably only that I could advocate to remedy. Today I addressed one concern, left others I have to follow up and one that was made worse. The telling thing, my dad is in 24/7 2/
Residential aged care, where help is literally a button press away. When my parents separated, I literally stepped in, the son became the carer. With the marriage dissolved, new legals in place. I became the sole substitute decision maker, if deemed unable to for himself. 3/
Read 7 tweets
Jul 8, 2021
Good news from my private knee orthopaedic yesterday. I’ve not re-torn the medial meniscus, we’re going to assume I’ve bruised bone. So I have to reduce my step count/impact to let the body recover. Means I will 💯 have to use a wheelchair to mobilise. The knee walker is 1/
Is taking a break. To be really clear, I will do what I have to, I’d rather stand and walk, but right now, outside of transfers I need help my body recover. I’ve got a little over 5 weeks then it should be hydrotherapy 5 times a week. So now is the time to off load build 2/
Upper body strength, use the country time to mentally regroup, because once I’m back in Adelaide, boy! Have I got one hell of a battle to get my on my feet again. That’s without the challenge at end of month, what to do with octogenarian. Still struggling with supports here. 3/
Read 10 tweets

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