I'm engaging in a lot of encounters lately where people see me masked and ask "oh should I grab a mask?" And I know it comes from a good place, but it can be really exhausting. Why? Let's talk about access labor. 1/10
Time and time again disabled people have to ask permission to be in the same spaces as non-disabled people. We need to ask for access to the building, we need to ask for layouts, we need to ask for captioning, we need to ask for interpreters. 2/10
I am constantly asking for permission to simply get into the room. And now let's compound that with masking. I'll use my own access needs as an example here. Just to get into the office to work I have to ask for so many things. 3/10
I have to ask for an entrance with automatic doors. I have to make sure the elevator is working. When it's not I have to ask for a fix. I have to ask for internal doors I can open. And when depressurized doors get "fixed" by unknowing maintenance teams I have to ask again. 4/10
I have to ask for a desk and chair because I'm expected to stand to teach and I can't do that for 3 hour seminars. I have to ask for captions in virtual meetings because I struggle with processing sometimes. I have to ask for work from home some days. 5/10
I have to ask for permission to inhabit the same spaces as my colleagues at least once a day if not more. And I have to ask other people to provide that access all the time. Now imagine if multiple people ask me "oh should I mask up?" 6/10
Every single time I have to gain the courage to say "yes please." And I am brave but it takes a LOT of courage and privilege to ask for access all the time. It also takes a lot of energy and labor. Some days I don't have it in me to ask permission for safety and security. 7/10
Access labor cannot ONLY be done by disabled people. We need you to alt text images, automatically turn on captions, host virtual/hybrid events that ENGAGE us. We need you to plan for us so we don't have to ask again and again for permission to inhabit the same space. 8/10
I want to be able to be less brave. I want to rest. I want to enter spaces where I don't need to ask, because someone has already taken into account universal design, and maybe even remembered my access needs. 9/10
I want academics to think about their complicity in access labor issues. Are you building access? For whom? Are you relying on someone to ask for access? Are you framing it as a favor? Are you unknowingly making someone feel shame/guilt? 10/10 #AcademicTwitter#AcademicChatter
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Lots of folks out here who drool over AI are just showing their (already) problematic ways of thinking about production. Claiming you dont do data cleaning, lit review, etc and just shove these off on collaborators is not something you should brag about. 1/5
You should actually form your ideas based on your own synthesis of the field. You should read enough to know youre making a contribution. And if you share this work with grad students lord I hope youre teaching them how to DO it well. 2/5
There is value in training the next generation of scholars. Theres value in letting someone shadow you. Theres value in saying "lets both clean the dataset separately, come back, and confirm we got the same results." 3/5
Wow the plan is just eugenics. So much for providing healthcare for disabled people. This forces disabled people into poverty, it deprives them of mobility and access, and it harkens back to ages of forced institutionalization.
A moratorium on new suppliers when there is already a lack of suppliers will, in fact, harm disabled people who need these things. It often takes MONTHS to get these items, esp if insurance is involved, and there are not enough providers.
Not to mention AI screening is going to be used with little recourse for any mistakes made. The Trump admin wants to claim HCBS funding increades are fraud when HCBS already wildly underfunded and few disabled ppl get the respurces they deserve.
Disabled people called this a mass disabling event and cautioned people on how capitalism would plow ahead with disablement and death years ago. Sorry if someone of us are tired of watching our loved ones die, lose their health, and lose their jobs. 1/4
Like I cannot stress how many loved ones are out of work because of ableism, I cannot stress how many people are dealing with long covid on top of existing disabilities. I cannot stress how demoralizing it is to constantly be discriminated against. 2/4
Its exhausting to try to give people receipts, to flag scientific research, to make that research understandable. And then to have someone turn around and go "no I dont like what youre saying fuck you." Ok I dont like this either? 3/4
Im #OneOfTheTwo because Im already disabled, and I know nothing is capable of saving me in this capitalist hellscape. No govt, no partner, no family member can save me if I become too disabled to work. If I cant work, I cant get the meds I need to stay alive. 1/5
Being disabled is incredibly expensive. Securing drs, paying for scans and bloodwork, covering compounded meds, buying safe foods - I could not afford these things on disability. I literally cannot afford to become more unwell. 2/5
As a historian I know what the government does to people it does not want to care for. And as a disabled community member, I see how poverty accelerates community members towards preventable deaths. 3/5
In the 1810s, economists and govt officials in Europe and the US conducted a ton of poverty investigations. They concluded that poor people were poor because they were just lazy immoral alcoholics. Officials recommended mass incarceration. 1/9
Officials complained that "foreigners" were overcrowding American hospitals, that pension recipients were "faking" disability, and that everyone out of work receiving charity should be institutionalized and forced to work by the govt. 2/9
Officials argued that people needed to feel the "fear" and "shame" of poverty (see Philly report linked below) to actually change. Officials wanted to design a system where welfare was so terrible that ppl would do anything to avoid asking the govt for help. 3/9
Historian #1: wealthy ppl got upset they had to pay taxes for poor relief, so they built the carceral state and passed laws to cut relief. This was bad for poor people. Costs went down bc of threats of incarceration. 1/5
Historian #2: the city was plagued with high poverty rates, so the govt passed laws to regulate relief. Costs went down bc the city hired more govt officials to screen applicants and made "better" choices about who "deserved" care. This was good. 2/5
I google these people.
#1 - history prof, multiple teaching awards, wrote extensively on childhood, poverty, crime, family
#2 - econ prof who then worked in NYC as an economist 3/5