Nicole Lee Schroeder, PhD Profile picture
Sep 29, 2022 10 tweets 3 min read Read on X
I'm engaging in a lot of encounters lately where people see me masked and ask "oh should I grab a mask?" And I know it comes from a good place, but it can be really exhausting. Why? Let's talk about access labor. 1/10
Time and time again disabled people have to ask permission to be in the same spaces as non-disabled people. We need to ask for access to the building, we need to ask for layouts, we need to ask for captioning, we need to ask for interpreters. 2/10
I am constantly asking for permission to simply get into the room. And now let's compound that with masking. I'll use my own access needs as an example here. Just to get into the office to work I have to ask for so many things. 3/10
I have to ask for an entrance with automatic doors. I have to make sure the elevator is working. When it's not I have to ask for a fix. I have to ask for internal doors I can open. And when depressurized doors get "fixed" by unknowing maintenance teams I have to ask again. 4/10
I have to ask for a desk and chair because I'm expected to stand to teach and I can't do that for 3 hour seminars. I have to ask for captions in virtual meetings because I struggle with processing sometimes. I have to ask for work from home some days. 5/10
I have to ask for permission to inhabit the same spaces as my colleagues at least once a day if not more. And I have to ask other people to provide that access all the time. Now imagine if multiple people ask me "oh should I mask up?" 6/10
Every single time I have to gain the courage to say "yes please." And I am brave but it takes a LOT of courage and privilege to ask for access all the time. It also takes a lot of energy and labor. Some days I don't have it in me to ask permission for safety and security. 7/10
Access labor cannot ONLY be done by disabled people. We need you to alt text images, automatically turn on captions, host virtual/hybrid events that ENGAGE us. We need you to plan for us so we don't have to ask again and again for permission to inhabit the same space. 8/10
I want to be able to be less brave. I want to rest. I want to enter spaces where I don't need to ask, because someone has already taken into account universal design, and maybe even remembered my access needs. 9/10
I want academics to think about their complicity in access labor issues. Are you building access? For whom? Are you relying on someone to ask for access? Are you framing it as a favor? Are you unknowingly making someone feel shame/guilt? 10/10 #AcademicTwitter #AcademicChatter

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More from @Nicole_Lee_Sch

Dec 15, 2024
I live in an urban space where its been hard to get to nature (I dont have a car, and public transit is dismal here). So I challenged myself this year to take whatever photos I could in the few green spaces I can access. Theyre just phone photos, but I hope you enjoy! 1/11
Found this fierce hunter at the local park 2/11 A large bird standing over an animal its hunted. It has a white chest with brown speckled wings and a sharp crooked beak.
This majestic creature was lurking about our shitty campus fountain/manmade lake on a rainy day. 3/11 A white crane with a long neck poking through fluffy brown reeds. You can see water and lake plants behind it.
Read 11 tweets
Dec 9, 2024
This happens because people dont take disability seriously. They assume food requests are about preferences rather than life threatening allergies. And we see similar takes all across disability experiences. 1/11
Ive seen tons of posts from blaming and shaming to arguments we should all have epi pens. I just want to add: we need medical bystander training. Most people do not know what epi does, or how to use it, and our pens are difficult. 2/11
Epi pens arent a perfect solution. An allergic reaction can escalate rapidly and it doesnt initially have to include airway issues to qualify as anaphylaxis. Many people assume its easy to spot, its not. 3/11
Read 12 tweets
Dec 5, 2024
At 22 I had brain surgery for a Chairi Malformation and cervical kyphosis. My brain was slipping down my spinal column, and getting pinched off by vertebrae dislocating past one another. 1/6
Because I have EDS, I metabolize anesthesia quickly. My anesthesiologist confirmed this with me ahead of the surgery, and laid out a proper plan to make sure I was adequately medicated. We didnt know how long the surgery would take, so the plans were very detailed. 2/6
I was lucky that my surgeon got all of the materials needed for a decompression, and fusion in one go. He used part of my skull that was removed in the decompression to make the bone graft for my fusion. 3/6
Read 6 tweets
Dec 5, 2024
Lots of "activists" on here telling you to be quiet and play nice and accept your murder easily. Lots of people saying anger doesnt fuel rebellion. Lots of people claiming that calling people out for their behaviors is "bad" community behavior. This is all bs. 1/4
The whole system is designed to uplift people who are palatable. Whether its social media or politics or white collar jobs - every sector is going to uplift those who do not challenge the status quo. 2/4
Imo, its worth it to continually document eugenics in all its forms. Its important to document, for the historical record, injustice wherever you see it. Perhaps you wont change how people act, but you will change how historians write about this time. 3/4
Read 4 tweets
Dec 2, 2024
I want everyone supporting assisted dying to read up on "utilitarian ethics." If med professionals deem you to have a "lower quality of life" you will be targeted by the state in public health crises. 1/5
What leads med professionals to believe you have a "lower quality of life"? Being disabled. Being a person of color. Being elderly. Experiencing poverty. Basically holding any marginalized identity whatsoever. 2/5
The abject devaluation and dehumanization that is done to disabled people is rooted in SOCIAL and CULTURAL norms. When you say "I couldnt live like you I'd kill myself" that is an example of devaluing life. 3/5
Read 5 tweets
Nov 25, 2024
I used to believe in assisted dying, because I thought of it from a wholly selfish standpoint. I had seen loved onces face agony and suffering in death, with far too little medical support. I did not want to go through the same. 1/5
Then I learned that assisted dying wasnt JUST applied to cases like those of my family members. I learned about how unequally the law was applied, and I learned about how vulnerable people were coerced into accepting death before being offered life. 2/5
You can inform yourself by listening to the people who are being targeted by the system. Current laws are hurting people, and if they scale up, they will hurt even more people. This is eugenics in action. 3/5
Read 5 tweets

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