“Nothing is more threatening to who you think you are than a patient with a problem you cannot solve”
Just finished @meghanor amazing book #InvisibleKingdom — incredibly cathartic & informative.
Took like 3 months to get through (listening) but was highly worth it.
Just finished @meghanor amazing book #InvisibleKingdom — incredibly cathartic & informative.
Took like 3 months to get through (listening) but was highly worth it.
It’s not “another sick person’s story” — It really disentangles the entire mess we are in — with regards to how we treat & view conditions like #LongCovid, it really helped orientate me — and @meghanor’s story is so painfully relatable. Overall very high quality writing.
The way @meghanor shares the tension of her relationship w husband throughout whole journey is so spot on to what I imagine a lot of people are dealing with — unconditional but completely exhausted support that is sometimes a little zoned out & unsure of when to be suspicious.
The historical assessment & evaluation of our current medical system is so illuminating — & well researched — highlights how there is explicit precedent, almost a law of social science — for the medical community to ubiquitously rebuke new unexplained medical phenomena..
Anyways really impressed with the whole thing & not surprised it’s receiving the acclaim it has — this is not a paid ad lol I just really enjoyed it, and it’s almost comically poignant & helpful to our lives rn. Highly recommend.
Very last thing — while there are stretches where she sounds to be clearly bed/couch bound — her story also highlights how you can appear to be a very functional person (Traveling, teaching, public transit, coffee visits) — but be desperately ill & completely drowning in health..
These also stuck with me:
“One of our most difficult duties as human beings is listening to voices of those who suffer”
“It is nearly impossible to adjust to your new identity when the medical community itself refuses to acknowledge the physical reality of your disease.”
“One of our most difficult duties as human beings is listening to voices of those who suffer”
“It is nearly impossible to adjust to your new identity when the medical community itself refuses to acknowledge the physical reality of your disease.”
@meghanor — and everyone else — any other books (preferably audio) you would recommend to further dive into health / medicine / chronic illness / disability / political etc ?
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