2/ Being able to translate patient experience into the language of science, medicine and healthcare, and connect worlds of expertise has tremendous value.
These often painful experiences can enrich the care and wisdom we offer to others.
4/ The rest of this thread, I’m going to link some accounts, books, and articles of clinicians who have been public ally open about also being patients and some lessons they have learned ♥️
5/ First up, my dear friend @RanaAwdish. Rana you are & have been a buoy in an endless sea of uncertainty for so many of us. There is so much power in witnessing & validating pain.
Your book #InShock is essential reading for anyone caring for patients. TY for art, light & hope
6/ (These amazing folks are not in any particular order other than the order of what my brain can recall)
Like Dr. @RanaAwdish, @marklewismd is also a cancer survivor. He is also an oncologist who cares for other patients with cancer. A brilliant clinician with epic dad jokes ♥️
7/ I call @DocZing a golden Zebra. She is an incredible clinician with training in orthopedics and preventive medicine. Alissa built her own practice #PRISM to care for patients with Ehlers Danlos Syndrome #EDS because she has the connective tissue disorder herself. ♥️🦓
8/ @MDaware works as an emergency medicine physician. In January, Seth detailed his journey of navigating our broken systems to get a rare diagnosis of paraneoplastic syndrome. He also plays the guitar & has a hilariously dry sense of humor.
9/ @RuhoyMD is one of those shooting star type of people. Ilene is a brilliant neurologist, an unrelenting medical detective, a fierce advocate, & an all around amazing human. She is also a cancer survivor & sees daily how our system fails patients. ♥️
10/ @Twitter's favorite ophthalmologist, @DGlaucomflecken, is also a survivor of cardiac arrest & cancer x 2. Will has spread laughter & joy during a horrific pandemic. I also appreciate his open stance against insurance companies unfettered corruption.
11/ @drjessigold has been such an incredible advocate for mental health, especially for healthcare professionals during the pandemic. Jessi has also been vulnerable about the stigma that comes with these diagnoses & the use of medications that can help.
12/ Dr. @Craig_A_Spencer survived Ebola infection & then fought #COVID on the frontlines in New York. When patients started talking about #LongCOVID, he was one of the few physicians who openly believed them and talked about his own long recovery journey.
13/ .@ShawnteJamesMD is joy personified. She is a pediatrician who cares for babies and delights @Twitter with stories of their adorableness. Dr. James is also an cancer survivor and shared her experience here for us:
14/ Dr. @Adamhill1212 is a pediatrician specializing in oncology and palliative care. As he details in his book, #LongWalkOutOfTheWoods, Adam is also in recovery from substance use disorder, depression & suicidal ideation. Your vulnerability is STRENGTH ♥️
15/ Both Dr. @rocketgirlmd (internal medicine) and Dr. Paul Kalanithi (neurosurgery) shared the story of navigating Paul's terminal lung cancer diagnosis during their medical training in the book #WhenBreathBecomesAir. It is an *incredible* read ♥️
16/ .@DrJenGunter is an OB/GYN and a fierce advocate for women's health and women's rights. Jen had a very complicated triplet pregnancy and lost one of her babies at 22 weeks. Her 2 other sons were born at 26 weeks & after their birth she became septic.
17/ .@jfitzgeraldMD is a female pelvic medicine reconstructive surgeon and OB/GYN rock star.
"I knew that if I was my own patient I would say, "just get an ultrasound!"--so I did, and I found a 7cm ovarian mass." (thankfully a benign Cystadenomafibroma)
19/ Dr. @DianaCejasMD is a pediatric neurologist. She was diagnosed with cancer in residency (a malignant carotid body paraganglioma) and shortly after suffered from a stroke.
20/ I am so grateful for @drannamvaldez because for as ableist as medicine is, nursing as a profession is almost worse 😞. Anna is a professor, and scholar and also has several autoimmune disorders, including Lupus. She is kind and compassionate and a powerful force for change ♥️
21/ And then there is me. November will be 3 years since I first got sick. It has been an odyssey and it’s not over. I keep collecting diagnoses like rare coins. I need a rollator & a cane to ambulate and my health has deteriorated to the point that I’m mostly house bound. 😔
24/ @dgurdasani1 has not only been an incredible voice of reason during the #COVID pandemic, she is trained in internal medicine and genetic epidemiology. She also has the autoimmune disease, ulcerative colitis.
25/ @AmyTanMD is trained in family medicine and palliative care. She almost died in a car accident and broke her spine in 4 places. She survived but has ongoing disability and pain.
26/ Dr. @jbullockruns is a research fellow in nephrology. He also published an incredibly genuine and honest account of his personal struggle with mental health as a physician in @NEJM. I am so grateful that you are here and that you have shared your story with all of us ♥️
27/ Dr. @annabonkhoff is now a research fellow in vascular neurology, But while she was a medical student she suffered from stroke and arterial dissection and underwent a thrombectomy. She wrote about her experience here on @Twitter & in this interview:
28/ Dr. @AG_EM33 is dual trained in emergency medicine and critical care medicine. She also underwent a heart transplant for familial dilated cardiomyopathy that worsened after a viral infection in the middle of residency. She is amazing ♥️
29/ I love this thread so much, so I'm going to keep adding more brilliant patient-clinicians to it because it makes my heart happy. ♥️
30/ Dr. @MVGutierrezMD is trained as a physiatrist, she serves as Professor & Chair of the Department of Rehabilitation Medicine. She also has #LongCOVID. Despite her illness, she created a Post-COVID Recovery Clinic & is a fierce advocate for patients.
31/ Dr. @calirunnerdoc is a board-certified cardiologist, as well as Chief Medical Officer & Founding Director of a non-profit called Blooming Magnolia. She helps to research, advocate & support patients w/ #LongCOVID; tenacious patients just like her ♥️
Vanilla spice is from the pods of an orchid that blooms once a year for 1 day. It is naturally pollinated by a specific type of bee that's only found in the tropical regions of the Americas. Most pollination is done by hand & the technique was discovered by a 12 yo enslaved boy.
Edmond Albius was eventually freed and his discovery was acknowledged but he died impoverished in 1852 at the age of 51. His method of hand pollination transformed the global vanilla spice industry. Today, almost all farmed vanilla is manually pollinated. bbc.com/travel/article…
Vanilla is also the only type of orchid that produces edible fruit. It’s also endangered and at risk of extinction due to various human accelerated causes. Most of the “vanilla” consumed today as flavoring or scent is synthetic due to the high labor/cost.
Just so we are clear, this perspective is deeply ableist, unquestionably organized abandonment, and optimizes passive eugenics. Disabled lives are more important than your comfort. When we say you’re cosplaying revolution, this is what we mean. You don’t leave comrades to die.
And you don’t actively contribute to spreading infection & disease and fail to protect the same people you are in alleged community with. That’s what colonizers and white supremacists do. That’s why I say that disease is a weapon of empire. Masks coming off in more ways than one.
So once again, for the people just joining…disease does the dirty work of empire and it is a well utilized tool to facilitate both eugenics and genocide at home and abroad. So if you are able to, #MaskUpComrade
Governments doing nothing but facilitating mass death and disablement while hoarding resources that are only worsening the problem makes more sense to me now.
2100 is only 76 years from now. That’s less than a human lifetime. All the things you think matter now really don’t.
Yes. You need an actual gas mask. Chlorine gas was used in WW1 by the Germans as chemical warfare. It can be very damaging, especially to the lungs. You need to check that your filters are specifically approved for Chlorine gas.
I see as a collective we need to reflect on the fact that passive eugenics (we won’t help you survive and will make conditions unsurvivable) is much more palatable to the public than the active eugenics Trump alludes to here. Although both methods result in dead disabled people.
Negative eugenics deselects for people that society doesn’t want to survive. It can be active or passive. Our COVID policies are examples of both active and passive negative eugenics. Who lives. Who dies. Who is protected or not (The poor, elderly, young, disabled, Black & brown)
And that’s not even bringing up the unhoused, undocumented, or incarcerated. Many folks couldn’t outright kill a person but are perfectly ok with a society that does nothing to protect them or keep them alive. And this is what COVID has put in SHARP relief for so many of us.
Most dermatologists do not recommend using Neosporin d/t risk of allergic contact dermatitis. Declared the Contact Allergen of the Year for 2010 by the American Contact Dermatitis Society (ACDS). Can cause secondary dermatosis known as autosensitization. ncbi.nlm.nih.gov/pmc/articles/P…
Derms recommend polysporin instead because it doesn’t contain neomycin, just polymixin & bacitracin. Would also be curious what infectious disease physicians think of prolonged use of topical antibiotics in an era of increasing antimicrobial resistance & antibiotic stewardship…
This is particularly a concern for people who have altered immune systems, autoimmunity or issues with allergies already like with MCAS.