@MassGov
@RepPressley
@SenWarren
#DisabilityRights #DisabilityTwitter
I'm told that Medicaid must be stopped in one state before one can even apply in the next. That is up to 90 days out of pocket on treatment costs for the disabled. That is unacceptable.
@MassGov
@RepPressley
@SenWarren
#DisabilityRights #DisabilityTwitter
That 90 days is enough to limit a disabled person's ability to move within the U.S. Healthcare is expensive.

It is worse when the disabled person has developmental or intellectual disabilities.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
For autism & intellectual disability, there is a huge wait for services: 3 months MA Health application +
10 months DDS eligibility application + gods know how long on waitlists for services.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
When your adult child is in a Medicaid-covered residential facility in another state for severe behaviors related to their disability, you can either:
A. Not move.
B. Fight this ableist system.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
Disabled individuals & their families should be able to move within the U.S. & not be denied the services they require for health, hygiene, & basic safety for over a year and more.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
BOTH parents of children, esp. adult children, should be able to work full-time outside the home.

Services are so hard to fight for & often don't exist; so both parents usually can't. #misogyny
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
The State has historically relied on the free labor of mothers to shore up this pathetically inadequate social safety net for our disabled & elderly populations.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
Now, some states are paying parents to be their adult child's caregiver. This is better than zero pay. However, it's also indicative of the impending collapse of the system. Services are closing.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
They need more funding, mostly for reimbursement rates that make BHPs/CNAs a living-wage career option.

Until then, we all fight over services like it's the last slice of pie.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
Until then, states gatekeep their services like dragons hoarding gold, rather than addressing the health & housing needs of their disabled citizens.
@RepPressley @SenMarkey
@SenWarren @RepMoulton
#DisabilityRights #DisabilityTwitter
My daughter is moving to MA.

It's too bad that her transition is likely to involve the police, ERs, child protective services, etc. But that isn't on her or the rest of my family.

That's on MA.
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More from @LaraKD_2020

Aug 3, 2022
This is Gottlieb's op-ed for the NYT, so take that into account.

But this is how prepared the U.S. is for smallpox:

"The United States had on hand fewer than 2,400 doses in mid-May, mostly as a hedge against the risk of smallpox, which was the vaccine’s other indication."
Monkeypox Is About to Become the Next Public Health Failure nyti.ms/3oGybP5
We know Russia has this shit. We're supposed to be terrified of them. And Putin may not be around much longer, if cancer rumors are true. That'll create an interesting power vacuum.

But we have 2400 doses of the safer vaccine in event of a terrorist attack?
Read 13 tweets
Jun 16, 2022
@louisegable @diemondsRforeva @x3r0gxx @PattiDrebis @thesafestbear @midwestmargrave @Theresa_Chapple But that aside, do you have kids?

I thank all the gods my son graduated high school early in 2019. We got to see his final band, choir, theater, variety show performances. We got to go to graduation. HE got to go to graduation.

All of that is affected by masking.
@louisegable @diemondsRforeva @x3r0gxx @PattiDrebis @thesafestbear @midwestmargrave @Theresa_Chapple Theaters. Have you gone back to either movie or local community theaters? No popcorn, which isn't that big a hardship, but it is part of the experience. Often those old theaters have no AC. Let's add masks and see how many patrons don't come and how many close.
@louisegable @diemondsRforeva @x3r0gxx @PattiDrebis @thesafestbear @midwestmargrave @Theresa_Chapple The arts were decimated by our COVID restrictions.

I'm more concerned about peoples' health (which, for me, means no experimental treatments w/o LT data that they likely do not need as individuals) than I am about the arts or even local economies. But both are important to me.
Read 10 tweets
Jun 15, 2022
#NEISvoid I am trying to get our local backasswards medical corporation to set up my mother's patient portal correctly and they are insisting she needs to go somewhere in person to do it. Her next appts are all telehealth, because she's home recovering from a GI bleed. 🧵
Why is this shit so difficult!?! They set it up without connecting it to their organization, so no data has ever been added to her patient portal. 2 years of labs, visits, meds, etc.... Poof! You'd have to request them all on paper. 😡
And you can fax/email this organization a medical records request without ever seeing anyone in Medical Records in person, so why the in-person to give them your email address? Again, cuz we've already gone through all of this once two years ago and they couldn't get it right.
Read 14 tweets
Sep 26, 2021
@Tierney4351 @AdeleXHome @KimberlyMcKeeve @RHampton09 @bubbaprog Did I say "No childhood vaccines!"? No, I didn't. I implied & now I will state that we (U.S.) do them stupidly.

We vaccinate people for things they aren't likely to face here (polio). We vaccinate with vaccines we know aren't solving the problem (pertussis & mumps)...
@Tierney4351 @AdeleXHome @KimberlyMcKeeve @RHampton09 @bubbaprog We vaccinate the WRONG PEOPLE for some things. Women of child-bearing age (but not pregnant at the time) should get rubella. Not kids who already get 3 million shots.

And some things just aren't that serious. They keep people out of work, which is why the gov't likes vaccines.
@Tierney4351 @AdeleXHome @KimberlyMcKeeve @RHampton09 @bubbaprog My generation is probably the last one that just got chicken pox naturally. Chicken pox killed 100 kids a year, usually due to underlying health conditions, in the US before the vaxx. The U.K. doesn't vaxx for chicken pox. Here's why:
ox.ac.uk/research/every… Image
Read 5 tweets

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