Thread by @loscharlos

Spoke to @washingtonpost how POTS is one of the most common complications of #LongCovid — can easily be diagnosed with clinical testing — yet majority of #MedTwitter unfamiliar — this why it’s critical to educate docs on all existing post viral literature. washingtonpost.com/wellness/2023/…

I went to ER in June 2020 (3 months after infection) after my heart rate was suddenly 140 walking to the kitchen, I was told “pandemic has been stressful” — it took me 3 cardiologists, 3 neurologists, & 12 months later to be diagnosed with POTS at @StanfordMed autonomic center.

POTS & other forms of @Dysautonomia are clear bio-medical abnormalities found in up to 67% of #LongCovid patients — & has a mountain of preexisting research, so when folks say “there’s nothing wrong clinically” — speaks volumes to their knowledge on LC. This is easy to diagnose.

Yet still — people like @SawyerBlatz, who just developed #LongCovid this year and are exhibiting crystal clear POTS symptoms, are walking into office of cardiologists & being told it’s depression. This is appalling & unacceptable. This is one thing we can easily diagnose.

https://twitter.com/sawyerblatz/status/1626391336965521408

There ARE zero approved treatments for #LongCovid — however there are many treatments & therapies people with @Dysautonomia & POTS can try. These can make a huge quality of life difference for folks. This is why it’s critical #MedTwitter become familiar with this research.

There’s 10k+ studies documenting clear biomedical findings on #LongCovid — many which build off decades of existing research into postviral conditions & manifestations such as #MECFS, @Dysautonomia & #MCAS. Some of our most promising trials (LDN, IVIG) are based off this work.

So it’s paramount #MedTwitter not only become familiar with the existing #LongCovid research, which is rapidly expanding our understanding of all infectious-onset conditions — but also familiar with the pre-existing tools, research & diagnostics available in this field of study.

“They were overwhelmed and flooded long before covid,” Stiles said “We need to increase the amount of experts in this because it wasn’t enough before covid, and it’s certainly not enough now.” #LongCovid washingtonpost.com/wellness/2023/…

@Dysautonomia is an amazing resource for patients & physicians ready to learn more about this condition. 👇

https://twitter.com/dysautonomia/status/1629255776157024256

@dysclinic @ahandvanish @MVGutierrezMD @KashPrime @LekshmiMD @WesElyMD @farid__jalali @GYamey @doctorasadkhan @LongCovidSOS @long_covid @itsbodypolitic @patientled @PutrinoLab @VirusesImmunity @MeetJess @TRyanGregory @1goodtern @Tinu @DGlaucomflecken @EricTopol @LongCOVIDPhysio

@Bethenny thank you for sharing your recent experience with #LongCovid POTS. today.com/health/womens-…

Overall this is a very easy thing the medical community can do to catch up, in the meantime — we’re waiting. #LongCovid

Thank you @AmandaMoMorris for writing this story — So much gratitude to every journalist that is stepping up to shine a light on #LongCovid. With million suffering, and a deluge of new patients not slowing down — we need all the help we can get. 🙏