❗️trigger warning ❗️
Paediatric acute-onset neuropsychiatric syndrome secondary to Covid-19. (PANS)

Anna is very distressed in these videos.
I have met Anna and she is a quiet, observant girl.
She should be enjoying life right now.
Instead, due to Covid, she has lost years.
Only due to her Mum’s persistence has she got a diagnosis and treatment.
This happened before Covid to children BUT we don’t know how many children have been affected now.
Who is counting this Covid sequelae? CAMHS? Paediatrics?
It’s hard enough to find a dr to diagnose it.
It is caused by inflammation in the brain.
It’s autoimmune- think of a condition like rheumatoid arthritis but the brain is affected not the hands
It is often misdiagnosed as primary mental health disorder.
A similar condition is PANDAS- this is when the inflammation in the brain is due to strep bacteria.
Symptoms:
Change in behaviour
Anxiety
OCD
New tics
Stuttering
Not eating
Intolerance of light/sound
Emotional regression
See photo for more Image
I know, because I saw it in my own son in March 22 immediately post Covid.
He can now describe the difference between PANS and autism beautifully.
Thankfully, he got better after 2 months.
He is not counted.
How many children are on children’s mental health long waiting lists, or get better before they are seen?
With Covid so prevalent, no mitigations in schools and reinfections we should be counting this.
We should:
-know the numbers.
- diagnose quickly
-treat!
Helen and Anna are very brave sharing this. Please be aware of #PANS and #PANDAS
- you never know if it might be your child affected.
- only lowering Covid prevalence and mitigations in schools will lower the risk.
I am ever hopeful that the adults of this world will, eventually, think about the children who have done everything asked of them in this pandemic.
So far I haven’t seen much evidence of it.
Please, policy makers, think of the kids and balance the risks to their health
It would not be asking too much to improve ventilation in schools and ask sick children to stay home.
Consider watching the film ‘brain on fire’ it is about an adult with a similar issue. Beautiful acting.
A diagnostic puzzle.

m.imdb.com/title/tt370470…
This tweet is relevant to anyone with children. It can happen to anyone’s child. It can happen to yours. #cleanairclassroom #DavosSafe

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More from @drclairetaylor

Mar 6
Are we actually seeing mass amnesia of what happened in the last 3 years? Even people forgetting Covid infections? What’s going on?
IT’S HAPPENED BEFORE
Spanish flu.
How did we not predict this?
#PandemicAmnesia
Relevance: will leave us totally unprepared for the next pandemic.
There will always be a next pandemic.

beckershospitalreview.com/public-health/…
My generation has been incredibly lucky
Huge reduction in child mortality rates
First pandemic in my 40s
Clean, running water
Housing
Read 18 tweets
Mar 4
Really worth watching this session on misinformation/disinformation. Fascinating stuff. See below for how people (often anonymous) twist words online
Now, clearly I am not a flat earther. That’s another level of I don’t even know what to call it. But someone who does not know me could be led to believe that I am. I’d hope they can recognise sarcasm but perhaps not. Image
Really interesting discussion on @IndependentSage on why people like him do this. Discussion on why people cherry pick data to run untrue headlines. And many people only read headlines.
Read 8 tweets
Mar 3
Whoever invented dressing up for world book day was not a working parent. I have SEWED a dress at 7am, found&lost again red hairband x 3, one autistic meltdown due to non matching top/bottoms and I feel about to have a stroke. #WorldBookDay
As a consumer of thousands of books I am a massive book fan and in fact #WorldBookDay is a lovely idea to raise awareness of reading, although I imagine that’s what schools do anyway? Reading?
Massive parental social media contest into who got the best outfit. Kids bewildered. Wonder if the creator of world book day got home from work at 10pm last night after 14 hours.
Read 6 tweets
Feb 28
There are so many things wrong with this I don’t know where to start.
- getting Covid will not prevent reinfection.
- it is not like a booster at all as you have no idea with each infection if you will land up in hospital 🤷🏻‍♀️
- there is no mention of the risk of long Covid.
Is this where we are at? Really? With all our modern technology and giant brains surely we can do better than this. The logic is upside down and back to front.
Paper on reinfection:
5.9% had at Least one reinfection

12.6% required either an ED visit or hospitalization or passed away following their reinfection!

🔴individuals who experienced a severe initial infection, 7.4% experienced a severe reinfection&another 5.7% passed away…
Read 11 tweets
Feb 28
Uk Covid-19 inquiry module 3 the impact of the pandemic on healthcare. includes long Covid. Live now. youtube.com/live/2rtO2AiPm…
Lots of coughing in the background 😳
Heard of behalf of clinically vulnerable families @cv_cev
- half a million forgotten people
- they have a 7.5x higher Mortality from SARS-CoV-2 than the general population
- a 5.2x increase risk of #LongCovid
- the pandemic is not over, there was no freedom day for them.
Read 10 tweets
Feb 27
Totally agree. POTS is now much more prevalent. Around half* of people with Long Covid have POTS ( around 1.5% of population) and add to that those who already have POTS- over one million people could have POTS in the UK.
* estimates vary for prevalence of POTS in long Covid from 15-50%. From experience in long Covid clinic it is at the higher end, if not even higher.
Recent article in BMJ on POTS. Starter article for when to suspect, how to test, investigations, medications.
POTS= postural orthostatic tachycardia syndrome
Heart rate goes up on standing but effect may take several minutes&many don’t feel faint.

bmj.com/content/380/bm…
Read 4 tweets

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