Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture
May 7, 2023 β€’ 11 tweets β€’ 4 min read β€’ Read on X
🏡 THE COVID CYCLE ♻️

As we navigate our way through the post-Covid world, it's important to consider the link between infections and outcomes.

1/🧡

TLDR :
🚫 Try to avoid catching / spreading infections
πŸ’¨ Clean air will help THE COVID CYCLE   Diagram: ...
While you may well start off healthy, anyone can become Clinically Vulnerable at some point in their life, making them more susceptible to severe infections.

Take it from us, it isn't particularly fun - and frequently, our lives feel less valued.

2/ Diagram :  Healthy person  ...
Covid infections or repeat infections of healthy people can lead to Long Covid*, where people experience prolonged symptoms and conditions including: fatigue, brain fog and respiratory issues.

* Some data suggests that up to 1 in 10 infections result in long-term symptoms.

3/ Diagram :  Healthy person  ...
Also, people with Long Covid can become Clinically Vulnerable if they acquire conditions including:

🫁 Chronic respiratory conditions
πŸ«€ Cardiovascular diseases
πŸ’‰ Diabetes
🧠 Neurological complications

You might have noticed people who have developed a persistent cough.

4/ Diagram:  Healthy with arro...
According to the final ONS Covid Survey data, Clinically Vulnerable people have a 5.4x increased risk of Long Covid following Covid infections.

πŸ’™ Catching Covid isn't healthy
πŸ’œ It doesn't promote 'natural immunity'
πŸ’— Living with Covid = constant reinfection

6/ Diagram:  Healthy with arro...
Vaccination has been a crucial tool in breaking the Covid cycle and protecting lives.

Highly vaccinated countries are experiencing lower mortality despite the virus not actually being milder.

7/
However, we mustn't forget that Covid continues to claim far too many lives.

Anyone can be at risk, and we are all 3 years older and 3 years more vulnerable.

8/ Diagram  Clinically Vulnera...
To further break the Covid cycle, we need clean air as Covid spreads in aerosols.

We mustn't simply accept ~6 peaks a year as new variants continue to rip through the global community. It places a continuous burden on struggling health services. It is not 'flu.

HT - @jneill
9/ Image
No one wants to see more people suffering from Long Covid or losing their lives.

While the Covid cycle may be here to stay, we can't simply accept current rates of infection and reinfection.

10/
Going forward, we should consider the following:

πŸ’¨ #CleanAir
😷 #WearAMask in high-risk, poorly ventilated indoor settings inc. healthcare
πŸ₯„ Testing / isolation if symptomatic
🌍 πŸ’‰Supporting equitable access to vaccines around the world

11/
...and for anyone who thinks that young children can't or shouldn't be tested, there are saliva 'lollypop' tests that are accurate and trouble-free.

Parents in our Facebook group have been very happy with them.

12/ Image

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More from @cv_cev

Mar 1
🚨COVID INQUIRY ROUND UP (Wk2)

This week saw CVF's evidence & organisations representing: disability, domestic abuse, faith, migrants, homeless, prisons, local government.

Expert evidence focused on: later life, LGBTQ+, race and gender inequalities (Dr Clare Wenham, below)

1/
EXPERT RACIAL INEQUALITIES

Prof Laia BΓ©cares discussed the risks in multigenerational households where there were keyworkers and children in schools.

2/
EXPERT LATER LIFE
Prof @JamesNazroo

CVF were concerned that many older people, who were at high risk, were not supported to shield - which included advice on how to stay safe, as well as food deliveries and community outreach.

3/
Read 15 tweets
Feb 26
🚨 NEW DfE GUIDANCE
- VENTILATION & AIR QUALITY -

Clean air matters - especially for #ClinicallyVulnerable children, staff and families. This is an important recognition that airborne transmission is preventable.

1/ Image
But the proposed COβ‚‚ thresholds are too high. 800ppm should be the upper limit - not 1500ppm. By 1500ppm, air is already significantly rebreathed. That’s not a precautionary standard for children, let alone those at higher risk.



2/gov.uk/government/pub…
If we’ve learned anything from the pandemic, it’s that minimum compliance is not the same as safety. #ClinicallyVulnerable pupils cannot β€œchoose” lower exposure if the baseline standard is poor.

3/
Read 8 tweets
Feb 25
🚨FINAL CVF EVIDENCE

We would encourage you to watch @lara_wong 's inquiry evidence in full.

However, out amazing team have clipped these extracts for you!

1/
CVF's Survey

In the summer of 2025, CVF gathered in depth survey evidence about the impacts of the pandemic on CV households - which has now been shared multiple times to inquiry experts and others.

2/
People were commonly told that

"They should hurry up and die so that they could get their lives back."

3/
Read 31 tweets
Feb 18
🚨 Profs Herrick & @Azeem_Majeed on clinical vulnerability

We are grateful that data collected by CVF (last year) was used by @covidinquiryuk to highlight some of the ongoing impacts faced by Clinically Vulnerable people.

1/
You can have a sneak (advanced) peak at @lara_wong's witness statement on behalf of Clinically Vulnerable Families...

Many and varied consequences (relating to mental health) were identified.
2/
Long term mental health impacts persist to this day.

3/
Read 7 tweets
Jan 23
⚠️⚠️⚠️
Don't scroll past without πŸ’• + ♻️... πŸ™
πŸ‘‡πŸ‘‡πŸ‘‡

- Can you help us to help you?

If you value our work at the Cβ—‹vid Inquiry and beyond, your continued support is vital.

1/ Clean Air & Safer Access  United Kingdom  St Thomas' Hospital  LEARN to LIVE with COVID  #CLEANAIR  HIGHLIGHTED: Another way to help CVF  Arrow to start your own crowdfunder.  Clinically Vulnerable Families CIC About the project owner  Aim  We urgently need your help to support families by improv providing vital support, and advocating for freedoms.  access,  Β£380  Target: Β£15,000  2%  4 supporters  42 days left  Donate  Share  Help them get starte  Your support makes a difference  Become a fundraiser for  Clean Air & Safer Access  Start fundraising for this cause β†’
It is hard to explain how much effort has gone in over the past few years to raise understanding and awareness of issues amplified the emerge of Cβ—‹vid.

2/ #ProtectVulnerableProtesters  CVF logo Image of a masked protester
We have participated in NICE as stakeholders and the inquiry as Core Participants (as the only group representing Clinically Vulnerable people).

πŸ“‰πŸ“Š We have collected evidence as data and thousands of πŸ’¬ impact statements from people.

3/ Clinically Vulnerable Families  represent you as a Stakeholder  in the NICE appraisals of Evusheld & Antivirals  We can:  NICE  Comment  Give Evidence  Consult on Draft Guidance
Clinically Vulnerable Families  have been designated as  Core Participants  in the UK Covid-19 Inquiry  We can:  Access Evidence  Make opening & closing statements  Ask the witnesses questions
Read 8 tweets
Jan 21
🚨'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
β€œIt’s farcical, sorry we offended you, we’ve noted your complaint.”

BUT if you (like us) aren't unhappy with this response, here is our next move... 🧡

1/ Thank you for contacting us regarding episode one of 'Can You Keep a Secret?'  'Can You Keep a Secret?' is an adult, farcical and offbeat comedy that follows a couple, William and Debbie, who commit insurance fraud after William takes too much of his medication, is left unconscious, and is mistakenly declared dead.  There was never any intention to make light of infection control or to trivialise the real challenges faced by those affected by Covid-19, including those who are clinically vulnerable. In the scene in question, their son Harry has just learned that his father is still alive, an...
Their response dodges the point.
Because the problem really wasn’t that β€œI didn’t get the joke”.

The problem is who the joke is aimed at and what it encourages most people to laugh at.

2/ Image
If the punchline is β€œPPE / precautions = anxious / ridiculous” then people who still need precautions (Clinically Vulnerable people) are the collateral damage.

So it is not about β€œoffence” but creating stigma.

3/ Image
Read 10 tweets

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