Clinically Vulnerable Families ๐Ÿ’™๐Ÿ’œ๐Ÿ’— Profile picture
May 7, 2023 โ€ข 11 tweets โ€ข 4 min read โ€ข Read on X
๐Ÿต THE COVID CYCLE โ™ป๏ธ

As we navigate our way through the post-Covid world, it's important to consider the link between infections and outcomes.

1/๐Ÿงต

TLDR :
๐Ÿšซ Try to avoid catching / spreading infections
๐Ÿ’จ Clean air will help THE COVID CYCLE   Diagram: ...
While you may well start off healthy, anyone can become Clinically Vulnerable at some point in their life, making them more susceptible to severe infections.

Take it from us, it isn't particularly fun - and frequently, our lives feel less valued.

2/ Diagram :  Healthy person  ...
Covid infections or repeat infections of healthy people can lead to Long Covid*, where people experience prolonged symptoms and conditions including: fatigue, brain fog and respiratory issues.

* Some data suggests that up to 1 in 10 infections result in long-term symptoms.

3/ Diagram :  Healthy person  ...
Also, people with Long Covid can become Clinically Vulnerable if they acquire conditions including:

๐Ÿซ Chronic respiratory conditions
๐Ÿซ€ Cardiovascular diseases
๐Ÿ’‰ Diabetes
๐Ÿง  Neurological complications

You might have noticed people who have developed a persistent cough.

4/ Diagram:  Healthy with arro...
According to the final ONS Covid Survey data, Clinically Vulnerable people have a 5.4x increased risk of Long Covid following Covid infections.

๐Ÿ’™ Catching Covid isn't healthy
๐Ÿ’œ It doesn't promote 'natural immunity'
๐Ÿ’— Living with Covid = constant reinfection

6/ Diagram:  Healthy with arro...
Vaccination has been a crucial tool in breaking the Covid cycle and protecting lives.

Highly vaccinated countries are experiencing lower mortality despite the virus not actually being milder.

7/
However, we mustn't forget that Covid continues to claim far too many lives.

Anyone can be at risk, and we are all 3 years older and 3 years more vulnerable.

8/ Diagram  Clinically Vulnera...
To further break the Covid cycle, we need clean air as Covid spreads in aerosols.

We mustn't simply accept ~6 peaks a year as new variants continue to rip through the global community. It places a continuous burden on struggling health services. It is not 'flu.

HT - @jneill
9/ Image
No one wants to see more people suffering from Long Covid or losing their lives.

While the Covid cycle may be here to stay, we can't simply accept current rates of infection and reinfection.

10/
Going forward, we should consider the following:

๐Ÿ’จ #CleanAir
๐Ÿ˜ท #WearAMask in high-risk, poorly ventilated indoor settings inc. healthcare
๐Ÿฅ„ Testing / isolation if symptomatic
๐ŸŒ ๐Ÿ’‰Supporting equitable access to vaccines around the world

11/
...and for anyone who thinks that young children can't or shouldn't be tested, there are saliva 'lollypop' tests that are accurate and trouble-free.

Parents in our Facebook group have been very happy with them.

12/ Image

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More from @cv_cev

Jan 23
โš ๏ธโš ๏ธโš ๏ธ
Don't scroll past without ๐Ÿ’• + โ™ป๏ธ... ๐Ÿ™
๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡

- Can you help us to help you?

If you value our work at the Cโ—‹vid Inquiry and beyond, your continued support is vital.

1/ Clean Air & Safer Access  United Kingdom  St Thomas' Hospital  LEARN to LIVE with COVID  #CLEANAIR  HIGHLIGHTED: Another way to help CVF  Arrow to start your own crowdfunder.  Clinically Vulnerable Families CIC About the project owner  Aim  We urgently need your help to support families by improv providing vital support, and advocating for freedoms.  access,  ยฃ380  Target: ยฃ15,000  2%  4 supporters  42 days left  Donate  Share  Help them get starte  Your support makes a difference  Become a fundraiser for  Clean Air & Safer Access  Start fundraising for this cause โ†’
It is hard to explain how much effort has gone in over the past few years to raise understanding and awareness of issues amplified the emerge of Cโ—‹vid.

2/ #ProtectVulnerableProtesters  CVF logo Image of a masked protester
We have participated in NICE as stakeholders and the inquiry as Core Participants (as the only group representing Clinically Vulnerable people).

๐Ÿ“‰๐Ÿ“Š We have collected evidence as data and thousands of ๐Ÿ’ฌ impact statements from people.

3/ Clinically Vulnerable Families  represent you as a Stakeholder  in the NICE appraisals of Evusheld & Antivirals  We can:  NICE  Comment  Give Evidence  Consult on Draft Guidance
Clinically Vulnerable Families  have been designated as  Core Participants  in the UK Covid-19 Inquiry  We can:  Access Evidence  Make opening & closing statements  Ask the witnesses questions
Read 8 tweets
Jan 21
๐Ÿšจ'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
โ€œItโ€™s farcical, sorry we offended you, weโ€™ve noted your complaint.โ€

BUT if you (like us) aren't unhappy with this response, here is our next move... ๐Ÿงต

1/ Thank you for contacting us regarding episode one of 'Can You Keep a Secret?'  'Can You Keep a Secret?' is an adult, farcical and offbeat comedy that follows a couple, William and Debbie, who commit insurance fraud after William takes too much of his medication, is left unconscious, and is mistakenly declared dead.  There was never any intention to make light of infection control or to trivialise the real challenges faced by those affected by Covid-19, including those who are clinically vulnerable. In the scene in question, their son Harry has just learned that his father is still alive, an...
Their response dodges the point.
Because the problem really wasnโ€™t that โ€œI didnโ€™t get the jokeโ€.

The problem is who the joke is aimed at and what it encourages most people to laugh at.

2/ Image
If the punchline is โ€œPPE / precautions = anxious / ridiculousโ€ then people who still need precautions (Clinically Vulnerable people) are the collateral damage.

So it is not about โ€œoffenceโ€ but creating stigma.

3/ Image
Read 10 tweets
Jan 8
Hi @bbccomedy.

We need to talk about the new @Dawn_French โ€œcomedyโ€ series that implies that infection control is a joke.

This is a serious issue, particularly for Clinically Vulnerable people who remain at increased risk, and we are not laughing.
1/
In the first episode, a GP appears in a dramatic โ€œprotective outfitโ€ and face shield, and weโ€™re told itโ€™s because โ€œsince Covidโ€ theyโ€™ve developed โ€œvery, very, very bad health anxiety.โ€

2/ Image of doctor in white coveralls, gloves and a face shield pulling a face and grabbing the sides of the face shield whilst failing to examine a patient effectively.
Then the doctor refuses to get close to the patient, barely touches a wrist, and incorrectly declares them dead.

It invites audiences to mock precautions (during the current flu wave) and suggests that doctors who take measures are less competent.

3/ The doctor briefly grabs the patient's wrist...
Before rapidly pulling their hand away and dropping their arm. Failing to take a pulse, but then declaring the patient dead.
Read 11 tweets
Dec 8, 2025
๐Ÿฅณ This is a HUGE win for CVF!

- Safe access to public buildings is a right!

As a consequence of our advocacy, national voting guidance has been updated to:
โœ… Improve ventilation
โœ… Add air filters
โœ… โ€œSee a mask, wear a maskโ€

* VERY IMPORTANT THREAD *
PLEASE SHARE!
1/ Support for clinically vulnerable electors - alongside increasing ventilation of the room either through opening windows or doors or using HEPA filters where windows or doors cannot be kept open, you can ensure face masks are provided for polling station staff to use (using see a mask, wear a mask as a basis) and promote the use of social distancing when interacting with clinically vulnerable voters. Your staff training should cover how you can offer to conduct photographic ID checks for mask wearers, including whether checks could be conducted outside for these voters if photographic ID is...
6 years since Covid emerged, we are finally making important changes... thanks to your help!

The new guidance not only recognises our needs - due to heightened health risks - but also the risks posed by mask removal.

2/ polling station staff not having awareness of health risks when asking a clinically vulnerable voter to remove a face mask in order to check photographic ID  The Electoralย Commission
Why is this so important?

- It is the first national guidance to address our issues directly.... and it sets an important precedent that we plan to build on!

3/ Read more:
clinicallyvulnerable.org/post/how-cliniโ€ฆ
Read 7 tweets
Dec 3, 2025
A letter just landed on Baroness Hallettโ€™s desk from CATA (Covid Airborne Transmission Alliance).

If you are a patient, an NHS worker, or Clinically Vulnerable... or you want to see safety measures updated - you need to see this!

1/
The Covid Inquiry is there to help us to learn lessons and change how we plan for pandemics.

But, NHS England quietly published a strategy (July '24) that says:

it will not be possible to halt the spread of a new pandemic virus, and it would be a waste... to attempt to do so
2/ See Appendix 5  https://www.england.nhs.uk/long-read/framework-for-managing-the-response-to-pandemic-diseases/#appendix-5-planning-assumptions
That clashes with Hallettโ€™s recommendation:

"risk assessment that moves away... reasonable worst-case scenarios towards... a wider range of scenarios"

But their plan assumes mass infection is inevitable and acceptable.

For some, it isnโ€™t survivable!
3/
Read 11 tweets
Nov 8, 2025
๐Ÿงต This autumn the UKHSA is rightly worried, as 'flu is a real risk...

TLDR:
Clinically Vulnerable people ALL need 'flu vaccines + antivirals this year (if symptomatic or exposed) + confused infection control guidance.

If you are Clinically Vulnerable, please read on...

1/ Graph showing the early rise of flu in the UK.
This year's strains aren't looking good:

The infections have started earlier.
A(H3N2) strains are dominant - and linked to worse outcomes.
A shifted strain (slightly different to vaccines) is also doing the rounds.

2/ Summary:  Influenza is now circulating in the community with earlier than usual onset of activity in the 2025 to 2026 season, and with an A(H3N2) drifted strain (K, also known as J.2.4.1) predominating  A(H3N2) predominance is associated with higher morbidity and mortality, particularly in the elderly, than when A(H1N1) predominates  All eligible groups should be encouraged to get vaccinated with the 2025 to 2026 seasonal influenza vaccine as soon as possible  Prompt antiviral post exposure prophylaxis and treatment for seasonal influenza should be offered to eligible groups  Antivirals gui...
If you have been invited for a vaccine, or live with a Clinically Vulnerable person (but don't qualify) please consider getting a vaccine - they can be as cheap as ยฃ9.95.

Everyone benefits from 'flu vaccines and children (up to 16) are offered them for free in school.

3/ Image of a banner outside a shop. A pharmacist is on the picture. She is has black straight hair, brown eyes, a big smile and is wearing a cream suit jacket with a staff badge.  Superdrug  *REMINDER!!!  IT'S FLU VACCINATION SEASON  Flu Jab Service provided by our healthcare professionals  Noyne Pharmacist  MEMBER PRICE ยฃ9.95  NORMAL PRICE ยฃ19.95  MEMBERS SAVE MORE  Service available here  Help protect yourself against several strains of the flu this season with one simple visit in-store. ูˆูˆ
Read 10 tweets

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