Clinically Vulnerable Families πŸ’™πŸ’œπŸ’— Profile picture
May 7, 2023 β€’ 11 tweets β€’ 4 min read β€’ Read on X
🏡 THE COVID CYCLE ♻️

As we navigate our way through the post-Covid world, it's important to consider the link between infections and outcomes.

1/🧡

TLDR :
🚫 Try to avoid catching / spreading infections
πŸ’¨ Clean air will help THE COVID CYCLE   Diagram: ...
While you may well start off healthy, anyone can become Clinically Vulnerable at some point in their life, making them more susceptible to severe infections.

Take it from us, it isn't particularly fun - and frequently, our lives feel less valued.

2/ Diagram :  Healthy person  ...
Covid infections or repeat infections of healthy people can lead to Long Covid*, where people experience prolonged symptoms and conditions including: fatigue, brain fog and respiratory issues.

* Some data suggests that up to 1 in 10 infections result in long-term symptoms.

3/ Diagram :  Healthy person  ...
Also, people with Long Covid can become Clinically Vulnerable if they acquire conditions including:

🫁 Chronic respiratory conditions
πŸ«€ Cardiovascular diseases
πŸ’‰ Diabetes
🧠 Neurological complications

You might have noticed people who have developed a persistent cough.

4/ Diagram:  Healthy with arro...
According to the final ONS Covid Survey data, Clinically Vulnerable people have a 5.4x increased risk of Long Covid following Covid infections.

πŸ’™ Catching Covid isn't healthy
πŸ’œ It doesn't promote 'natural immunity'
πŸ’— Living with Covid = constant reinfection

6/ Diagram:  Healthy with arro...
Vaccination has been a crucial tool in breaking the Covid cycle and protecting lives.

Highly vaccinated countries are experiencing lower mortality despite the virus not actually being milder.

7/
However, we mustn't forget that Covid continues to claim far too many lives.

Anyone can be at risk, and we are all 3 years older and 3 years more vulnerable.

8/ Diagram  Clinically Vulnera...
To further break the Covid cycle, we need clean air as Covid spreads in aerosols.

We mustn't simply accept ~6 peaks a year as new variants continue to rip through the global community. It places a continuous burden on struggling health services. It is not 'flu.

HT - @jneill
9/ Image
No one wants to see more people suffering from Long Covid or losing their lives.

While the Covid cycle may be here to stay, we can't simply accept current rates of infection and reinfection.

10/
Going forward, we should consider the following:

πŸ’¨ #CleanAir
😷 #WearAMask in high-risk, poorly ventilated indoor settings inc. healthcare
πŸ₯„ Testing / isolation if symptomatic
🌍 πŸ’‰Supporting equitable access to vaccines around the world

11/
...and for anyone who thinks that young children can't or shouldn't be tested, there are saliva 'lollypop' tests that are accurate and trouble-free.

Parents in our Facebook group have been very happy with them.

12/ Image

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More from @cv_cev

Jan 31
🚨Clinically Vulnerable Families πŸ’™πŸ’œπŸ’—

Our oral closing statement highlights 5 key concerns - however, further details will be explored in depth in our later written submissions.

1: Therapeutics programme - wasn't good enough!

1/
The immunosuppressed were left behind.

2/
What could we have done better?

Dame Kate Bingham is an independent and trusted voice. She has no reasons to defend decisions on therapeutics that weren't the right ones.

3/
Read 26 tweets
Jan 29
🚨Prof Sir Pirmohamed

"Would you support the development of a more diverse portfolio of vaccine formats and antivirals, both as part of future pandemic preparedness plans and during [.] 'peace time' to ensure that Clinically Vulnerable groups are adequately protected?"

1/
"Absolutely, I think it is really important to make sure that we have good therapeutics and vaccines for the whole population."

2/
Q - Why is it important to have that breadth of formats?

...not many [immunosuppressed] were involved in the initial trials.

We now know [.] that booster doses help in terms of vaccine efficacy.

2/
Read 5 tweets
Jan 21
🚨Dame Kate Bingham🚨
Dubbed the "hero in a pink jacket πŸ’•"

On Evusheld:
"I felt very strongly [.]. We were following a very clear 2 tier strategy where the CV immunocompromised were being deprioritised [.] I felt that was *manifestly* wrong both ethically and morally [.]"
1/🧡
The above video was taken out of sequence. The below should give more context...

KB "So actually, the first goal was around protecting the UK population."

CTI [Hugo Keith KC]
"Do you think you succeeded on securing or making available those monoclonal antibodies?"

KB "No!"
2/
Kate goes on to make the argument that by not protecting this population, we were also promoting viral mutation and the evolution of variants.

3/
Read 23 tweets
Jan 17
πŸ’₯Clinically Vulnerable Families πŸ’₯

Yesterday, @lara_wong, took the stand as founder and leader of CVF.
**Sorry for the delay!**

- New risks posed by Covid-19
- We need to be recognised as an equality group.

1/ FOLLOW THIS THREAD
Clinically Vulnerable people were, and are still, being let down.

2/
The lack of infection prevention and control in vaccination centres for an airborne virus was very concerning.

3/
Read 21 tweets
Dec 28, 2024
πŸ’Š Important 🧡 - 'flu antivirals πŸ’Š

Here’s a quick thread on what you need to know about accessing antivirals for treatment and prevention in the UK.

1/ Image
When are antivirals recommended?

Antivirals are advised for:
πŸ’™πŸ’œπŸ’— High-risk groups (see list below)
πŸ₯ People with severe symptoms or those hospitalised.

Early action is vital!

2/ Risk factors for complicated influenza  These include:  neurological, hepatic, renal, pulmonary and chronic cardiac disease  diabetes mellitus  severe immunosuppression  age over 65 years  pregnancy (including up to 2 weeks post-partum)  children under 6 months of age  morbid obesity (BMI β‰₯40)
The 'severe immunosuppression' group is different again, but this list is "not comprehensive".

If you think you may qualify as Clinically Vulnerable to 'flu, it is always worth asking.

3/ 5. Severe immunosuppression  Examples of severe immunosuppression relevant to this guidance are given below. Degrees of immunosuppression are difficult to quantify and individual variation exists, therefore this list is not comprehensive. Examples of severe immunosuppression include:  severe primary immunodeficiency  current or recent (within 6 months) chemotherapy or radiotherapy for malignancy.  solid organ transplant recipients on immunosuppressive therapy  bone marrow transplant recipients currently receiving immunosuppressive treatment, or within 12 months of receiving immunosuppressio...
Read 8 tweets
Nov 27, 2024
🚨Clinically Vulnerable Families - closing
** Shared in full**

Thanks to the @covidinquiryuk staff & team

"The vast majority of people who died [.] were Clinically Vulnerable [.] including people who caught Covid-19 in hospitals, which were supposed to be places of safety."

1/
"Most urgently, we need to make healthcare safe for Clinically Vulnerable people."

"And by making it safe for them - by improving ventilation and putting in place other protective measures - we make it safe for others too."

2/
πŸ›‘Shielding

CEV people are a diverse group with varied personal circumstances.

It provided a passport:
🏠 Right to work from home
πŸ’· SSP entitlement
🚚 Food & medicine deliveries
πŸ’‰ Priority vaccine access

3/
Read 28 tweets

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