Clinically Vulnerable Families ๐Ÿ’™๐Ÿ’œ๐Ÿ’— Profile picture
May 7, 2023 โ€ข 11 tweets โ€ข 4 min read โ€ข Read on X
๐Ÿต THE COVID CYCLE โ™ป๏ธ

As we navigate our way through the post-Covid world, it's important to consider the link between infections and outcomes.

1/๐Ÿงต

TLDR :
๐Ÿšซ Try to avoid catching / spreading infections
๐Ÿ’จ Clean air will help THE COVID CYCLE   Diagram: ...
While you may well start off healthy, anyone can become Clinically Vulnerable at some point in their life, making them more susceptible to severe infections.

Take it from us, it isn't particularly fun - and frequently, our lives feel less valued.

2/ Diagram :  Healthy person  ...
Covid infections or repeat infections of healthy people can lead to Long Covid*, where people experience prolonged symptoms and conditions including: fatigue, brain fog and respiratory issues.

* Some data suggests that up to 1 in 10 infections result in long-term symptoms.

3/ Diagram :  Healthy person  ...
Also, people with Long Covid can become Clinically Vulnerable if they acquire conditions including:

๐Ÿซ Chronic respiratory conditions
๐Ÿซ€ Cardiovascular diseases
๐Ÿ’‰ Diabetes
๐Ÿง  Neurological complications

You might have noticed people who have developed a persistent cough.

4/ Diagram:  Healthy with arro...
According to the final ONS Covid Survey data, Clinically Vulnerable people have a 5.4x increased risk of Long Covid following Covid infections.

๐Ÿ’™ Catching Covid isn't healthy
๐Ÿ’œ It doesn't promote 'natural immunity'
๐Ÿ’— Living with Covid = constant reinfection

6/ Diagram:  Healthy with arro...
Vaccination has been a crucial tool in breaking the Covid cycle and protecting lives.

Highly vaccinated countries are experiencing lower mortality despite the virus not actually being milder.

7/
However, we mustn't forget that Covid continues to claim far too many lives.

Anyone can be at risk, and we are all 3 years older and 3 years more vulnerable.

8/ Diagram  Clinically Vulnera...
To further break the Covid cycle, we need clean air as Covid spreads in aerosols.

We mustn't simply accept ~6 peaks a year as new variants continue to rip through the global community. It places a continuous burden on struggling health services. It is not 'flu.

HT - @jneill
9/ Image
No one wants to see more people suffering from Long Covid or losing their lives.

While the Covid cycle may be here to stay, we can't simply accept current rates of infection and reinfection.

10/
Going forward, we should consider the following:

๐Ÿ’จ #CleanAir
๐Ÿ˜ท #WearAMask in high-risk, poorly ventilated indoor settings inc. healthcare
๐Ÿฅ„ Testing / isolation if symptomatic
๐ŸŒ ๐Ÿ’‰Supporting equitable access to vaccines around the world

11/
...and for anyone who thinks that young children can't or shouldn't be tested, there are saliva 'lollypop' tests that are accurate and trouble-free.

Parents in our Facebook group have been very happy with them.

12/ Image

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More from @cv_cev

Nov 16
Who will get a Covid booster in 2025? Far fewer than before...

The JCVI decision means that Clinically Vulnerable people u70 and who aren't immunosuppressed lose access.

โ€œCost-effectivenessโ€ prioritised over protection.

NEW CONCERNING STUDY ๐Ÿ‘‡

1/๐Ÿงต Adult eligibility  Adult eligibility should be based on the willingness-to-pay approach that is subject to procurement and delivery at a cost-effective price. The advice for universal vaccination from age 75 years is an example. JCVI has no role in the procurement or delivery of COVID-19 vaccines or any other vaccine.
Until now, Covid vaccine policy prioritised protecting 'at risk' groups.

Their approach focuses on โ€œcost-effectiveness,โ€ raising age thresholds. Not providing vaccine protection to younger Clinically Vulnerable. Itโ€™s a deeply worrying change.

This data may have been used.
2/ Fig. 3: Using data from the spring and autumn 2023 boosters and the 2023/24 winter wave of COVID-19, vaccine threshold prices stratified by age-group, risk-group and modelling approach.  We calculate the vaccine threshold price for the two time periods (top row: winter 2023/24; bottom row: spring 2023), 16 age groups (y-axis), three risk groups (panels) and five methodologies (red, dark-blue, light-blue, grey and black). Dots show the most likely value assuming ยฃ20,000 per QALY; when assuming ยฃ30,000 per QALY the extended bar-and-whisker plots show the 95%, 80% and 50% credible intervals co...
Younger Clinically Vulnerable people e.g. those with chronic heart failure, COPD, or diabetes could be excluded.

The study admits data for our group is limited, meaning the most at-risk could fall through the cracks.

*It is unclear if the study was used in decision-making.*

3/ Image
Read 17 tweets
Nov 10
๐ŸšจCOVID INQUIRY ROUND UP (Wk 7)

Rosemary Gallagher MBE (Professional Lead for Infection Prevention and Control at the Royal College of Nursing) supported non-IP specialists e.g. aerosols experts "shaping guidance".

1/
"If Covid-19 was, in fact, airborne [.] it had implications for infection prevention and control guidance [.]"

"What was the NHS estate going to do to make it safe?"

"Improving the ventilation or looking at other technologies [.]."
2/
Next, possibly the best quote from Baroness Hallett this week:

3/
Read 10 tweets
Nov 6
Questioning Jenny Harries is "like pinning jelly to a wall", according to one CVF๐Ÿ’™๐Ÿ’œ๐Ÿ’— member!

Thanks @AdamWagner1 for trying!
๐Ÿงฑ๐Ÿฎ๐Ÿ”จ

"People should be enabled to wear what they wish, as long as it's safe."
"FRSMs recommended because of issues of handling and fit-testing."
1/
Would you agree that FFP3 masks, if fit-tested, mean that the Clinically Vulnerable patient *is* safer, they don't just "feel safer"[.]?

๐Ÿ”จ 'Hierarchy of controls'
๐Ÿฎ Don't want to tell people - no harm
๐Ÿงฑ Difference feeling safe and effective PPE. Equally support FRSM

2/
"The evidence of effectiveness between FFP3s and FRSMs in clinical use is very, very small."

3/
Read 6 tweets
Oct 29
โ™ป๏ธ RETWEET if you think that Clinically Vulnerable people (those at the most risk from Covid) were economically impacted by the pandemic. โ™ป๏ธ

The @covidinquiryuk rejected us for this module, leaving us with * NO VOICE * !!!!

1/ Image
Image
Clinically Vulnerable (CV) people and their families faced, and in many cases continue to face, enormous economic strain.

For many, shielding was the only safe option, but it came with serious costsโ€”lost jobs, reduced hours, and in many cases, the inability to work at all.

2/ 82%  of Clinically Vulnerable households lost work or retired early due to high Covid risks  [Poll of 364 Clinically Vulnerable people March 2024]  Clinically Vulnerable Families
Without protections, CV people and their families couldnโ€™t simply return to โ€œbusiness as usualโ€ as measures lifted.

Many continued shielding, at their own expense, as they were unable to risk exposure. For some, this meant months / even years out of the workforce.

3/ #CVVoices
Read 9 tweets
Oct 8
๐Ÿ’ฅClinically Vulnerable Families ๐Ÿ’ฅ

Quite a moment as Dr Catherine Finnis take the stand as volunteer deputy leader of CVF.

1/ FOLLOW THIS THREAD Dr Catherine Finnis swears in
A brief introduction to CVF

We were founded due to the risks in schools, but the inquiry is focused on the risks in healthcare in this module.

2/
One of the benefits of the shielding programme:

"was that you had a passport through that shielding letter to enable you to work from home."

3/
Read 34 tweets
Oct 6
๐ŸšจCOVID INQUIRY ROUND UP (Wk 4)
Due to sickness, this week of evidence ended early.

CMO ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
Impact witnesses:
Ambulance, GPs, Intensive Care
Former medical director of WHSCT
National Ambulance Adviser NHS England
Intensive Care Experts and witnesses

1/
๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ The Welsh CMO, Sir Frank Atherton, spoke about "broadly accepting" advice from the now highly contentious 'IPC cell' led by Dr Lisa Ritchie.

2/
The term "precautionary principle" has now been redefined within the inquiry multiple times to suit different people's purposes.

This is CMO ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ's interpretation.

3/
Read 11 tweets

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