Hi, I'm Emily! I used to be a documentary filmmaker, teacher, environmental activist, artist, adventurer, wife, friend. Now I spend 22 hours a day in bed, too sick to interact w/ the world, too sick to watch films, much less make them. #MillionsMissing #MECFS #LongCovid 1/
Over the past 3 years of the pandemic, millions more have joined me in this abyss of illness. We’ve been swept under the rug by the government, doctors, & society. We need research funding, financial support, treatments, a cure. We need our lives back. #StillSickStillFighting 2/
Thank you to @MEActNet & @itsbodypolitic for putting together this stunning protest on the National Mall today to help make the millions of us who have disappeared from our lives visible. 3/
We were invited to mail in personalized pillowcases to help tell our stories of loss, grief, resistance, & resilience, & I'm so proud to have mine displayed alongside many others in front of the Washington Monument (thank you @dsethlewis & @caseygd43 for capturing photos!) 4/
While the world may want to forget the pandemic, it's far from over for us or for the many new people still joining us every day. Many people still have no idea they're risking a lifetime of disabling illness with every infection. Please protect yourself & your community! 😷 5/
Thank you to everyone w/ #MECFS & #LongCovid using your precious energy to protest in person & from home today. And a huge thank you to our abled allies & caregivers whose help we're so grateful & desperate for. 🙏
6/
And of course, I'm sending out so much love to everyone too ill to participate at all today. When I was making my pillowcase, I was thinking of you. Every day, I think of you. 💙
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