Thread by @tessfalor

#IIMEC15 Kristian Sommerfelt

Funcap - Functional Capacity Questionnaire in #MECFS

How do you access functional capacity?

5857 responses from #MECFS patients (online anonymous, spread via social media)

Questions like "can you X? How often do you Y?" don't work, because it is context dependent. It depends on what else the patient has decided to do, doesn't take consequences into account

If only ask about symptoms, what happens if an intervention works? The patient often increases their activities to go up to same previous symptoms, so looks like the intervention doesn't work if you just look at symptoms.

5th iteration of their questionnaire

Asked about consequences if you perform the activities? How does this affect how much else you can do on that day.