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1)A few facts about the hit piece by the @nypost that could be potentially be considered libelous by the study participants.
"According to researchers’ assessment, the majority (69%) had previously collaborated with a pharmaceutical company in
vianypost.com/2023/03/17/pat…
"According to researchers’ assessment, the majority (69%) had previously collaborated with a pharmaceutical company in
vianypost.com/2023/03/17/pat…
2)some way — serving on advisory boards, speaking to physicians and researchers or communicating with key audiences — but appeared to have honorable intentions in spreading awareness and information about their condition."
jmir.org/2023/1/e41867/
jmir.org/2023/1/e41867/
3)"All the influencers (26/26, 100%) were motivated by their own experiences after diagnosis, not having had enough accessible and culturally appropriate information.
▶️One of the inclusion criteria for this study was that the patient influencers collaborate with brands.
▶️One of the inclusion criteria for this study was that the patient influencers collaborate with brands.
4)All the participants (26/26, 100%) collaborated with brands, but not all of those relationships were paid or with pharmaceutical companies.
More than half (18/26, 69%) of the influencers interviewed collaborated with a pharmaceutical company in some way:
More than half (18/26, 69%) of the influencers interviewed collaborated with a pharmaceutical company in some way:
5)serving on advisory boards, speaking to physicians and researchers, or communicating with key audiences.
Although the way patient influencers communicated about pharmaceutical medications differed, as did how they responded to questions about specific drugs, it was agreed
Although the way patient influencers communicated about pharmaceutical medications differed, as did how they responded to questions about specific drugs, it was agreed
6)serving on advisory boards, speaking to physicians and researchers, or communicating with key audiences.
Although the way patient influencers communicated about pharmaceutical medications differed, as did how they responded to questions about specific drugs, it was agreed
Although the way patient influencers communicated about pharmaceutical medications differed, as did how they responded to questions about specific drugs, it was agreed
7)among the sample that drug information should only be shared if the patient influencer had direct experience with the medication. When patient influencers communicated about a particular medication, it was usually related
8)to side effects they experienced or “how it worked for me.”"
@CGMMaher was right about one thing...
"Many things are not what they first seem."
@CGMMaher was right about one thing...
"Many things are not what they first seem."
https://twitter.com/CGMMaher/status/1674694138699333634?s=20
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